Patients ’ perception on the quality of care for multiple endocrine neoplasia disorders in Europe: an online survey from a patient support group

ConclusionThe results of this unique Europe-wide, patient-driven survey on QoC of patients with MEN show that ratings for overall QoC were lower than ratings for different aspects of care. This may be because of the complex nature of care for genetic syndromes. Furthermore, patients who connect with patient groups may be deemed “expert patients” whose answers are not representative of the overall MEN patient community. We hope that Endo-ERN can support further education and training for HCPs based on these results.

http://link.springer.com/10.1007/s12020-021-02637-w

Source: Endocrine - February 3, 2021 Category: Endocrinology Source Type: research