“Be an ambassador for change that you would like to see”: a call to action to all stakeholders for co-creation in healthcare and medical research to improve quality of life of people with a neuromuscular disease

Patient and public involvement for co-creation is increasingly recognized as a valuable strategy to develop healthcare research targeting patients ’ real needs. However, its practical implementation is not as a...

Source: Orphanet Journal of Rare Diseases - June 7, 2019 Category: Internal Medicine Authors: Anna Ambrosini, Ros Quinlivan, Valeria A. Sansone, Ingeborg Meijer, Guus Schrijvers, Aad Tibben, George Padberg, Maarten de Wit, Ellen Sterrenburg, Alexandre Mejat, Alexandra Breukel, Michal Rataj, Hanns Lochm üller and Raffaella Willmann Tags: Research Source Type: research