[Spanish rare disease registries research network: first results of Spain-RDR's project in Navarre].

CONCLUSIONS: It is necessary to expand the sources and the period of data collection, as well as to validate the cases registered in order to know the real magnitude of the problem as a whole and for each specific disease included in the registry. PMID: 31133768 [PubMed - as supplied by publisher]

https://www.ncbi.nlm.nih.gov/pubmed/31133768?dopt=Abstract

Source: Anales del Sistema Sanitario de Navarra - May 27, 2019 Category: General Medicine Authors: Vicente Cemborain E, Guevara M, Lasanta MJ, Ramos-Arroyo MA, Ardanaz E Tags: An Sist Sanit Navar Source Type: research