Evaluation of repositories for sharing individual-participant data from clinical studies

ConclusionsOur evaluation, though often hampered by the lack of sufficient information, can help researchers to find a suitable repository for their datasets. Some repositories are more mature because of their support for clinical dataset preparation, contractual agreements, metadata and identifiers, different modalities of access, and long-term preservation of data. Further work is now required to achieve a more robust and accurate system for evaluation, which in turn may encourage the sharing of clinical study data.Trial registrationStudy protocol available athttps://zenodo.org/record/1438261#.W64kW9Egrcs.

Source: Trials - March 14, 2019 Category: Research Source Type: clinical trials