My Life Matters! Honoring the Voice of the Intellectually and Developmentally Disabled and Other Marginalized Patients (TH332)

Our country is currently engaged in vital conversations about stereotyping and implicit bias. In attempts to root out our collective prejudices, we now appreciate the necessity to talk about the underlying thoughts, beliefs, and values that inform our everyday actions and behaviors. Though many of us are drawn to the work of hospice and palliative care to practice compassion and advocate for patients ’ values, we may not realize how implicit bias influences our practice. The Intellectually and Developmentally Disabled (IDD) population has a history of social injustice and wrongful medical treatment that accentuates the harm of implicit biases.
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Source Type: research

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This study aimed to assess the efficacy of suprascapular nerve block for the management of shoulder pain in patients with motor neurone disease. METHODS: A total of 27 patients with motor neurone disease and shoulder pain were offered a suprascapular nerve block. Ten of these patients had bilateral shoulder pain and both were injected, making a total of 37 shoulders. The patients were followed up for a total of 3 months, or until death. Shoulder pain was measured using the pain scale (out of 100) of the shoulder pain and disability index and compared with baseline scores and a placebo control group from an earl...
Source: Palliative Medicine - Category: Palliative Care Authors: Tags: Palliat Med Source Type: research
Aging adults (65+) with disability are especially vulnerable to coronavirus disease 2019 (COVID-19), and on contracting, they are a cohort most likely to require palliative care. Therefore, it is very important that health services —particularly health services providing palliative care—are proximately available. Treating the Melbourne metropolitan area as a case study, a spatial analysis was conducted to clarify priority areas with a significantly high percentage and number of aging adults (65+) with disability and high b arriers to accessing primary health services.
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Tags: Research Source Type: research
Ageing adults (65+) with disability are especially vulnerable to COVID-19 and upon contracting, are a cohort most likely to require palliative care. Therefore, it is very important that health services - particularly health services providing palliative care - are proximately available. Treating the Melbourne metropolitan area as a case-study, a spatial analysis was conducted to clarify priority areas with a significantly high percentage and number of ageing adults (65+) with disability, and high barriers to accessing primary health services.
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Source Type: research
Depression is common in hospice and palliative care populations, with prevalence's ranging from 17% in the palliative care population and upwards of 40% in hospice patients. Depressive disorders such as major depression frequently go unrecognized and undertreated. Consequences of depressive illness include worsening of quality of life, creation of disability and added symptom burden. Limitations of currently available antidepressant therapies include delayed onset of efficacy and low remission rates after multiple courses of pharmacotherapy.
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Source Type: research
Chronic breathlessness is a clinical syndrome that results in significant distress and disability. Morphine can reduce chronic breathlessness when the contributing aetiologies are optimally treated.
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Tags: Original Article Source Type: research
Chronic breathlessness is a clinical syndrome that results in significant distress and disability. Morphine can reduce chronic breathlessness when the contributing etiologies are optimally treated.
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Tags: Original Article Source Type: research
Conclusion: These findings support the hypothesis that in FM a deteriorated function of cortical inhibition, indexed by a higher SICI parameter, a lower function of the DPMS, together with a higher level of BDNF indicate that FM has different pathological substrates from depression. They suggest that an up-regulation phenomenon of intracortical inhibitory networks associated with a disruption of the DPMS function occurs in FM. Introduction Major depressive disorder (MDD) and fibromyalgia (FM) present overlapped symptoms. Although the connection between these two disorders has not been elucidated yet, the disruption...
Source: Frontiers in Human Neuroscience - Category: Neuroscience Source Type: research
Conclusions: From the interviews of the clinicians, we can conclude that care of a stroke patient is more than medical management and rehabilitation, as several other aspects of the patient's life are affected by the condition. The quality of life aspect has to be looked upon as an area that requires active intervention in a setting of stroke. Physical disabilities were viewed as the most significant factor in reducing the quality of life. Spiritual needs have a low priority in comparison to other physical needs. Due to high patient load and time constraints, many of the needs are unaddressed. Two important areas where...
Source: Indian Journal of Palliative Care - Category: Palliative Care Authors: Source Type: research
Stroke is a leading cause of disability and the third leading cause of death in Canada, according to the Heart and Stroke Association. Despite a high mortality rate, the experience of dying from a stroke has received limited attention from a palliative point of view. When attempting to make inferences from other specialties that have well researched methods of palliation, there was an obvious gap when considering the stroke population. Palliative stroke patients, at the Royal University Hospital, rarely have access to a bed on a specialized palliative care unit.
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Source Type: research
Purpose of review Exercise and movement are increasingly used in pain management and in palliative care, outside the traditional context of physical medicine and rehabilitation. This critical review aims to provide specialists in pain and palliative medicine with recent insights into the use of exercise and movement in the approach to musculoskeletal disorders when pain and disability are the major complaints. Recent findings If there is a common sense linking pain and movement in both directions, that is pain influencing movement – as a withdrawal movement or a reduction of mobility as a defense reaction &ndash...
Source: Current Opinion in Supportive and Palliative Care - Category: Palliative Care Tags: MUSCULOSKELETAL PROBLEMS: Edited by Roberto Casale Source Type: research
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