Cystic fibrosis sufferer Naomi Hulme, died before she could have lung transplant

Naomi Hulme, from Macclesfield, suffered from the genetic condition cystic fibrosis. Her condition worsened before doctors could arrange an operation.
Source: the Mail online | Health - Category: Consumer Health News Source Type: news

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AbstractSummaryPatients with cystic fibrosis awaiting lung transplantation for end-stage respiratory failure have high prevalence of reduced bone mineral density and fragility fracture. Suboptimal 25-hydroxyvitamin D levels could significantly contribute to the development of cystic fibrosis-related bone disease.IntroductionThe assessment of the prevalence of cystic fibrosis-related bone disease (CFBD) and its associated risk factors in young adults with cystic fibrosis (CF) awaiting lung transplantation for end-stage respiratory failure.MethodsClinical characteristics, bone mineral density (BMD), the parameters of calcium...
Source: Osteoporosis International - Category: Orthopaedics Source Type: research
Cystic fibrosis liver disease (CFLD) remains the third leading cause of death in patients with cystic fibrosis. Although most patients with CFLD present in childhood, recent studies suggest a second wave of liver disease in adulthood. There are no clear guidelines for diagnosing CFLD. Treatment options for CFLD remain limited, and while UDCA is widely used, its long-term benefit is unclear. Those who develop hepatic decompensation or uncontrolled variceal bleeding may benefit from liver transplant, either alone, or in combination with lung transplant.
Source: Clinics in Liver Disease - Category: Gastroenterology Authors: Source Type: research
CONCLUSION: Our results suggest that ESS is associated with a reduction in the frequency of antibiotic utilization for respiratory tract infections in lung transplant recipients with CF. A prospective study is needed to investigate these relationships further. PMID: 30781973 [PubMed - as supplied by publisher]
Source: American Journal of Rhinology and Allergy - Category: ENT & OMF Authors: Tags: Am J Rhinol Allergy Source Type: research
We have read with great interest the case report by Pujol et al entitled Synchronous multiple non-small cell lung cancers in an allograft lung recipient [1], about a young cystic fibrosis lung transplant recipient who developed metastatic lung cancer. We would like to comment on this ‘rare’ long-term complication post lung transplantation. Recent registry data from the International Society of Heart and Lung Transplantation showed that the overall incidence of a malignancy post lung transplantation at 1, 5 and 10 years is 5.3%, 19.6% and 31.7% respectively [2] In observation al studies the incidence of lung can...
Source: Lung Cancer - Category: Cancer & Oncology Authors: Source Type: research
Tiffany Senter (pictured) of Shasta Lake City, California is only 25, but she's been at deaths door twice. Tiffany was born with cystic fibrosis and has had to have two lung transplants.
Source: the Mail online | Health - Category: Consumer Health News Source Type: news
Sophie Gannon, from Bexley, South London, had a double lung transplant in 2011. Her and her partner, Josh Thomas, were told they do not fit the funding criteria, and are now fundraising money.
Source: the Mail online | Health - Category: Consumer Health News Source Type: news
by Craig Klugman, Ph.D. Jump to The Resident (Season 2; Episode 13): A risky organ transplant; Jump to The Good Doctor (Season 2; Episode 14):Face Transplant; Jump to Chicago Med (Season 4; Episode 13): Suspecting the worst; HIV safety or stigmatization; Suspicion and stealing from patients; Jump to Greys Anatomy (Season 15; Episode 12): Removing Dying Patient’s Autonomy The Resident (Season 2; Episode 13): A risky organ transplant Eloise is a third year medical student in need of a double lung transplant as a result of her cystic fibrosis.…
Source: blog.bioethics.net - Category: Medical Ethics Authors: Tags: BioethicsTV Decision making End of Life Care Featured Posts HIV/AIDS Informed Consent Organ Transplant & Donation Privacy Source Type: blogs
Sophie Gannon, from Bexley, South London, had a double lung transplant in 2011. Her and her partner, Josh Thomas, were told they do not fit the funding criteria, and are now fundraising money.
Source: the Mail online | Health - Category: Consumer Health News Source Type: news
ConclusionThe cumulative effective dose exceeded 100 mSv in 5 years in 37% of LT recipients, the reason why continuous efforts should be made to optimize chest CT acquisitions accounting for 73% of the radiation dose.
Source: Diagnostic and Interventional Imaging - Category: Radiology Source Type: research
CONCLUSION: The twenty-five years experience shows a consistent improvement in the results of lung transplantation which is now accepted as the only effective curative treatment for end stage lung disease. PMID: 30686555 [PubMed - as supplied by publisher]
Source: Revue des Maladies Respiratoires - Category: Respiratory Medicine Tags: Rev Mal Respir Source Type: research
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