Can a 5-year-old refuse treatment: The Case of Julianna Snow

by Craig Klugman, Ph.D. Julianna Snow is a 5-year-old who suffers from Charcot-Marie-Tooth disease, a neurodegenerative illness. This is the most common of all inherited neurological disorders (about 1 in 2,500 people have it). The disease usually is noticed in adolescence or early adulthood. For Julianna, the disease affects not only movement but swallowing and breathing. She is subjected to NT suctioning every few hours to remove the mucus that accumulates. Her decline was rapid and severe. Michelle and Steve Snow have written extensive blogs about their experiences and conversations.…
Source: blog.bioethics.net - Category: Medical Ethics Authors: Tags: Clinical Ethics End of Life Care Featured Posts Pediatrics Julianna Snow paternalism refusal Source Type: blogs