MUST be satisfied!

When I was pregnant, my husband Adam had the 32 gene mutation panel done and was NOT found to be a carrier. At the time, we were satisfied with that. However, as time goes on and I learn more about this disease and just how many mutations exist (thanks, in large part, to this website!) I'm not really satisfied with that anymore. I've been interested in getting more testing done, either on her or possibly having gene sequencing done on my husband. But since she shows no symptoms, our family doctor and everyone at my CF center have completely dismissed my concerns. Usually saying something like "She's growing fine, so you don't have to worry about it." I'm beyond frustrated with this. I can't seem to make them realize that the only way I'll be satisfied is if I KNOW FOR CERTAIN that Adam is not a carrier...of ANY known mutation, not just 32 of them. If the doctors are unwilling to help, how can I pursue futher (affordable) testing on my own?
Source: Cystic Fibrosis Parenting Forum - Category: Respiratory Medicine Authors: Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums