Table 0; documenting the steps to go from clinical database to research dataset

Data-driven decision support tools have been increasingly recognised to transform healthcare. However, such tools are often developed on predefined research datasets without adequate knowledge of the origin of this data and how it was selected. How a dataset is extracted from a clinical database can profoundly impact the validity, interpretability and interoperability of the dataset and downstream analyses, yet is rarely reported. Therefore, we present a case study illustrating how a definitive patient list was extracted from a clinical source database and how this can be reported.

Source: Journal of Clinical Epidemiology - April 1, 2024 Category: Epidemiology Authors: Jip W.T.M. de Kok, Bas C.T. van Bussel, Ronny Schnabel, Thijs T.W. van Herpt, Rob G.H. Driessen, Daniek A.M. Meijs, Joep A. Goossens, Helen J.M.M. Mertens, Sander M.J. van Kuijk, Laure Wynants, Iwan C.C. van der Horst, Frank van Rosmalen Tags: Original Article Source Type: research