Exploring the support needs of Australian parents of young children with Usher syndrome: a qualitative thematic analysis
Advancements in genetic testing have led to Usher syndrome now being diagnosed at a much earlier age than in the past, enabling the provision of early intervention and support to children and families. Despite...
Source: Orphanet Journal of Rare Diseases - Category: Internal Medicine Authors: L. Johansen, F. O ’Hare, E. R. Shepard, L. N. Ayton, L. J. Pelenstov, L. S. Kearns and K. L. Galvin Tags: Research Source Type: research
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