Adolescents with Rett syndrome at critical care pathway junctures: Examining clinicians' decision to initiate invasive long-term ventilation

CONCLUSION: As the rights of those with disabilities improve and participation of adolescents in decision-making becomes more established, effective communications with the family around goals of care and particular sensitivity and reflective practice around methods of consensus building will likely contribute to a positive decision-making process at this difficult time.PMID:38484415 | DOI:10.1016/j.ejpn.2024.02.015
Source: European Journal of Paediatric Neurology - Category: Neurology Authors: Source Type: research