Barriers to the spiritual care of parents taking care of their child with a life-limiting condition at home

Conclusion:  Parents of children with life-limiting conditions face existential challenges. However, care needs are often not identified, and existing support is not recognized as such. The main challenge is to provide care professionals and parents with the tools and terminology that suit existing care needs.What is Known:• Spiritual care needs are an important aspect of pediatric palliative care.• Parents of children with life-limiting conditions feel unsupported when dealing with spiritual questions.What is New:• Parents and professionals mention barriers that hinder spiritual support for parents.• There is a disconnect between existing support and the care needs that parents have.
Source: European Journal of Pediatrics - Category: Pediatrics Source Type: research