P145 Analysis of the natural evolution of SV95C in ambulant patients with Duchenne muscular dystrophy

The progressive nature of functional loss in Duchenne Muscular Dystrophy (DMD) is well established and routinely characterised in clinic using assessments such as the North Star Ambulatory Assessment and the Six Meter Walk Test. The trajectory of functional loss depends on the patient's age and baseline functional ability. There is a need to better characterise the trajectory of disease progression in order to try to predict disease evolution and optimise patient care. Stride Velocity at the 95th Centile (SV95C) is a novel clinical outcome measure that is captured during normal daily living using wearable technology and represents the maximum ambulatory ability of a patient.

Source: Neuromuscular Disorders - October 1, 2023 Category: Neurology Authors: M. Rogers, S. Motola, D. Eggenspieler, M. Poleur, G. Parinello, D. Lozeve, A. Danon, L. Szabo, K. Aragon-Gawi ńska, A. Potulska-Chromik, N. Butoianu, C. Anghelescu, Mirea, D. Osredkar, E. Vrščaj, T. Golli, J. Haberlova, S. Kodsy, A. Salah, P. Strijbos Source Type: research