Barriers to enrollment in a pediatric critical care biorepository

CONCLUSION: Inability to enroll patients in a critical care biorepository may be associated with several sociodemographic factors at various points in recruitment/enrollment.IMPACT: Individuals of minority race/ethnicity are less likely to enroll in genomic research and in critical care research. This study evaluated sociodemographic characteristics associated with decisions to enroll a child in a pediatric critical care biorepository. Sociodemographic factors including race/ethnicity, primary language, and insurance status and patient clinical characteristics are associated with differential enrollment into a pediatric critical care biorepository. More research is needed to understand how study team-participant interactions may play a role in differential enrollment. Barriers to enrollment occur both at the time of approaching and consenting for enrollment.PMID:36755188 | DOI:10.1038/s41390-023-02465-w

Source: Pediatric Research - February 9, 2023 Category: Pediatrics Authors: Erin Paquette Avani Shukla Tracie Smith Tricia Pendergrast Susan Duyar Karen Rychlik Matthew M Davis Source Type: research