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Adaptation and content validation of a patient-reported measure of treatment burden for use in stroke survivors: the patient experience with treatment and self-management in stroke (PETS-stroke) measure
CONCLUSIONS: PETS-stroke has content that is relevant, meaningful and comprehensible to stroke survivors. Content validity and reliability testing are now required. The validated tool will aid testing of tailored interventions to lessen treatment burden.IMPLICATIONS FOR REHABILITATIONTreatment burden is reported by stroke survivors but no stroke-specific measure of treatment burden exists.We adapted an existing measure of treatment burden for use in multimorbid patients (PETS) to create a stroke specific version (PETS-stroke).The items in PETS-stroke are relevant and meaningful to people with stroke.Further testing will ex...
Source: Disability and Rehabilitation - August 7, 2023 Category: Rehabilitation Authors: Karen Wood Aleema Sardar David T Eton Frances S Mair Lisa Kidd Terence J Quinn Katie I Gallacher Source Type: research

What is important in supporting self-management in community stroke rehabilitation? A Q methodology study
CONCLUSIONS: Differing views exist on what is most important in SSM. These views could be used to inform quality improvement strategies to support the delivery of SSM that considers the preferences of stroke survivors. IMPLICATIONS FOR REHABILITATIONClinicians should be aware of their own viewpoint of supported self-management and consider how their perspective may differ from stroke survivors' and colleagues' perspectives of what's important to support self-management.Working in partnership with stroke survivors plus developing a trusting and supportive relationship with them are core components of supporting self-managem...
Source: Disability and Rehabilitation - June 27, 2022 Category: Rehabilitation Authors: Julie Duncan Millar Helen Mason Lisa Kidd IMPETUS Research Team Source Type: research

Post-stroke emotionalism (PSE): a qualitative longitudinal study exploring individuals' experience with PSE
CONCLUSION: The results indicate specific psychological aspects of PSE which could be viable targets in psychological interventions such as increasing adaptive coping strategies and challenging negatively held beliefs.IMPLICATIONS FOR REHABILITATIONEmotionalism can cause emotional consequences such as distress, embarrassment and fear.Helping individuals to develop insight into triggers for emotionalism could be beneficial to help gain understanding and awareness whereby post-stroke emotionalism (PSE) has the potential to be anticipated and adapted to psychologically.Potential adaptive responses such as acceptance or contro...
Source: Disability and Rehabilitation - November 17, 2021 Category: Rehabilitation Authors: Sophie Fitzgerald Fergus Gracey Niall Broomfield Source Type: research

A qualitative study of sedentary behaviours in stroke survivors: non-participant observations and interviews with stroke service staff in stroke units and community services
CONCLUSIONS: Staff are aware of the consequences of prolonged sitting but did not relate to SB. Explicit knowledge of SB was limited. Staff need training to support stroke survivors to reduce SB. Sedentary behaviour in the community was not reported to change markedly, highlighting the need to engage stroke survivors in movement from when capable in hospital, following through to home.Implications for rehabilitationStroke survivor sedentary behaviour is influenced, directly and indirectly, by the actions and instructions of stroke service staff in the inpatient and community setting.The built and social environment, both i...
Source: Disability and Rehabilitation - July 26, 2021 Category: Rehabilitation Authors: Sarah Morton Jennifer Hall Claire Fitzsimons Jessica Hall Coralie English Anne Forster Rebecca Lawton Anita Patel Gillian Mead None David J None Clarke Source Type: research

Questionnaire assessment of usual practice in mood and cognitive assessment in Scottish stroke units.
Conclusion: Response rate was modest but included all mainland Scottish regions with active stroke services. Although the majority of responders are assessing cognition and mood there is substantial heterogeneity in measures used and certain commonly used tools are not validated or appropriate for use in stroke. We suggest development of evidence based, standardised assessment protocols. Implications for Rehabilitation Screening stroke survivor's for cognitive and mood issues is recommended but there is little guidance on the preferred assessment strategy Across Scottish stroke services there is a lack of consensus in asse...
Source: Disability and Rehabilitation - May 14, 2013 Category: Rehabilitation Authors: Lees RA, Broomfield NM, Quinn TJ Tags: Disabil Rehabil Source Type: research