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The information system of REIN
Nephrol Ther. 2023 Aug 28;18(S2):94-96. doi: 10.1016/S1769-7255(22)00577-6.ABSTRACTOn the occasion of the 20th anniversary of the REIN (French Renal Epidemiology and Information Network), a summary work on the contributions of the national French ESKD register was carried out. On the issue of its information system, the following key messages were retained. The REIN information system accompanies the register throughout the life cycle of the data. Two collection tools, one for dialysis, the other for transplantation are accessible via a secure WEB site. Several data quality control tools have been added. Finally, several r...
Source: Nephrologie and Therapeutique - August 28, 2023 Category: Urology & Nephrology Authors: Genevi ève Bernède Joseph Sa ïd Antonio Sequeira Blandine Wurtz Carole Ayav C écile Couchoud Mathilde Lassalle Source Type: research
REIN and international collaboration
Nephrol Ther. 2023 Aug 28;18(S2):90-93. doi: 10.1016/S1769-7255(22)00576-4.ABSTRACTOn the occasion of the 20th anniversary of the REIN (French Renal Epidemiology and Information Network), a summary work on the contributions of the national French ESKD register was carried out. On the issue of its international role, the following key messages were retained. Right from its inception, the REIN registry has been integrated into the family of European registries under the direction of the European society ERA and its registry based at the Academic Medical Centre of Amsterdam. In this context, the registry has been a part of nu...
Source: Nephrologie and Therapeutique - August 28, 2023 Category: Urology & Nephrology Authors: C écile Couchoud Carole Ayav Source Type: research
REIN: a tool at the service of health monitoring, exemple of the SARS-Cov-2
Nephrol Ther. 2023 Aug 28;18(S2):85-89. doi: 10.1016/S1769-7255(22)00575-2.ABSTRACTOn the occasion of the 20th anniversary of the REIN (French Renal Epidemiology and Information Network), a summary work on the contributions of the national French ESKD register was carried out. On the issue of its role in health monitoring, the following key messages were retained. The recent health crisis showed the adaptability and agility of the registry. Thanks to a human network that has been established and organised for many years, and the possibility of rapidly developing the collection system, the registry was able to provide infor...
Source: Nephrologie and Therapeutique - August 28, 2023 Category: Urology & Nephrology Authors: Sophie Lapalu Ghizlane Izaaryene Nadia Honor é Mohamed Belkacemi Carole Ayav C écile Couchoud Source Type: research
REIN: a tool at the service of vigilance and pharmaco-epidemiology
Nephrol Ther. 2023 Aug 28;18(S2):81-84. doi: 10.1016/S1769-7255(22)00574-0.ABSTRACTOn the occasion of the 20th anniversary of the REIN (French Renal Epidemiology and Information Network), a summary work on the contributions of the national French ESKD register was carried out. On the issue of its role in vigilance, the following key messages were retained. The vigilance system consists, among other things, of collecting information that is useful for the surveillance of health products that are drugs for pharmacovigilance, and medical devices for materiovigilance. This includes the reporting of adverse events by health pro...
Source: Nephrologie and Therapeutique - August 28, 2023 Category: Urology & Nephrology Authors: Lucile Mercadal Cl émence Béchade C écile Couchoud Source Type: research
Performance of high-sensitivity cardiac troponin T in predicting major cardiovascular events in patients admitted to the emergency department for syncope with normal ECG: An observational prospective study
CONCLUSION: Hs-cTnT may be a relevant tool for assessing MACE risk in patients with syncope and normal ECG results.PMID:37640627 | DOI:10.1016/j.acvd.2023.07.006
Source: Archives of Cardiovascular Diseases - August 28, 2023 Category: Cardiology Authors: Frederic Balen Nicolas Boumaza Cyrille Mouret Jerome Roncalli Sandrine Charpentier Xavier Dubucs Source Type: research
Changes in amyloidosis phenotype over 11 years in a cardiac amyloidosis referral centre cohort in France
CONCLUSIONS: This study shows that increasing cardiologist awareness and referrals have increased CA diagnoses. With improved awareness and non-invasive diagnostic techniques, more patients with ATTRwt with milder disease and more ATTRv Val122Il mutations are being referred and diagnosed. Although more AL cases are being recognised, patients are diagnosed with severe cardiac involvement.PMID:37640624 | DOI:10.1016/j.acvd.2023.07.003
Source: Archives of Cardiovascular Diseases - August 28, 2023 Category: Cardiology Authors: Thibaud Damy Amira Zaroui Marie de Tournemire Mounira Kharoubi Romain Gounot Arnault Galat Soulef Guendouz Benoit Funalot Emmanuel Itti Louise Roulin Vincent Audard Pascale Fanen Vincent Leroy Elsa Poulot Karim Belhadj Sophie Mallet Gagan Deep Singh Chada Source Type: research
REIN: a tool at the service of the patients
Nephrol Ther. 2023 Aug 28;18(S2):54-58. doi: 10.1016/S1769-7255(22)00569-7.ABSTRACTOn the occasion of the 20th anniversary of the REIN (French Renal Epidemiology and Information Network), a summary work on the contributions of the national French ESKD register was carried out. On the issue of patients’ perspectives, the following key messages were retained. As shown by the SONG (Standardised Outcomes in Nephrology) initiative, the criteria for judging the dialysis treatment that patients and care-givers prefer are not those that are traditionally found in published studies. For example, for haemodialysis, they are fatigu...
Source: Nephrologie and Therapeutique - August 28, 2023 Category: Urology & Nephrology Authors: Carole Ayav Maxime Raffray Cl émence Béchade C écile Couchoud Source Type: research
REIN: a tool to highlight inequalities in health
Nephrol Ther. 2023 Aug 28;18(S2):50-53. doi: 10.1016/S1769-7255(22)00568-5.ABSTRACTOn the occasion of the 20th anniversary of the REIN (French Renal Epidemiology and Information Network), a summary work on the contributions of the national French ESKD register was carried out. On the issue of Social Inequalities in Health, the following key messages were retained. Social inequalities in health exist throughout the journey of a patient with chronic kidney disease and manifest as territorial inequalities in access to home-based or independent dialysis treatment and to transplant, whether preemptive or otherwise. SIH are obse...
Source: Nephrologie and Therapeutique - August 28, 2023 Category: Urology & Nephrology Authors: Val érie Chatelet Sahar Bayat B énédicte Driollet V éronique Merle Olivier Moranne Mathilde Lassalle Source Type: research
REIN: a tool to evaluate pratices
Nephrol Ther. 2023 Aug 28;18(S2):46-49. doi: 10.1016/S1769-7255(22)00567-3.ABSTRACTOn the occasion of the 20th anniversary of the REIN (French Renal Epidemiology and Information Network), a summary work on the contributions of the national French ESKD register was carried out. On the issue of its role in practices evaluation, the following key messages were retained. The evaluation of our practices allows improving them as proposed by the concept of the Edward Deming wheel (Plan, Do, Check, Act). Measurement also allows setting goals and targets. Where there are recommendations available, the REIN indicators allow comparis...
Source: Nephrologie and Therapeutique - August 28, 2023 Category: Urology & Nephrology Authors: Isabelle Kazes Olivier Moranne Mathilde Lassalle Source Type: research
REIN: a tool for the benefit of renal transplantation
Nephrol Ther. 2023 Aug 28;18(S2):40-45. doi: 10.1016/S1769-7255(22)00566-1.ABSTRACTOn the occasion of the 20th anniversary of the REIN (French Renal Epidemiology and Information Network), a summary work on the contributions of the national French ESKD register was carried out. On the issue of access to renal transplantation for ESKD patients, the following key messages were retained. The registry of the REIN includes data about kidney transplant and dialysis. It thus allows evaluating the access to kidney transplant in France based on the needs of the population with stage 5 CKD treated by renal replacement therapy. The da...
Source: Nephrologie and Therapeutique - August 28, 2023 Category: Urology & Nephrology Authors: Mathilde Prezelin-Reydit Thierry Lobbedez Mathilde Lassalle Source Type: research
Survival of patients with End Stage Kidney Disease
Nephrol Ther. 2023 Aug 28;18(S2):35-39. doi: 10.1016/S1769-7255(22)00565-X.ABSTRACTOn the occasion of the 20th anniversary of the REIN (French Renal Epidemiology and Information Network), a summary work on the contributions of the national French ESKD register was carried out. On the issue of survival of ESKD patients, the following key messages were retained. The annual mortality rates of ESKD patients are relatively stable even though patients are ageing and increasingly have diabetes or obesity. These changes are probably linked to improved practices. Cardiovascular diseases and infections are the main causes of death. ...
Source: Nephrologie and Therapeutique - August 28, 2023 Category: Urology & Nephrology Authors: Jean-Philippe Jais Thierry Lobbedez C écile Couchoud Source Type: research
Treatment trajectories of patients with End Stage Kidney Disease
Nephrol Ther. 2023 Aug 28;18(S2):31-34. doi: 10.1016/S1769-7255(22)00564-8.ABSTRACTOn the occasion of the 20th anniversary of the REIN (French Renal Epidemiology and Information Network), a summary work on the contributions of the national French ESKD register was carried out. On the issue of trajectory of ESKD patients, the following key messages were retained. Apart from a few rare, absolute or relative contraindications, till date, there is no medical consensus on the indications of one treatment modality as compared to another, and therefore, no recommendations allowing defining criteria for guiding patients, based on ...
Source: Nephrologie and Therapeutique - August 28, 2023 Category: Urology & Nephrology Authors: Adeline Cremades Olivier Moranne C écile Couchoud Source Type: research
Prevalence of End Stage Kidney Disease and distribution of treatment modalities
Nephrol Ther. 2023 Aug 28;18(S2):25-30. doi: 10.1016/S1769-7255(22)00563-6.ABSTRACTOn the occasion of the 20th anniversary of the REIN (French Renal Epidemiology and Information Network), a summary work on the contributions of the national French ESKD register was carried out. On the issue of ESKD prevalence, the following key messages were retained. While chronic kidney disease affects all age groups, there always are more patients to treat in the older age groups, with a median age of 71.1 years (IIQ 60.3-80.0) under dialysis and 58.7 years (IIQ 47.4-68.3) under renal transplant. Despite an increase in transplant activit...
Source: Nephrologie and Therapeutique - August 28, 2023 Category: Urology & Nephrology Authors: Belkacem Issad Roula Galland V éronique Merle Thierry Lobbedez Mathilde Lassalle Source Type: research
Incidence of End Stage Kidney Disease and context of dialysis initiation
Nephrol Ther. 2023 Aug 28;18(S2):19-24. doi: 10.1016/S1769-7255(22)00562-4.ABSTRACTOn the occasion of the 20th anniversary of the REIN (French Renal Epidemiology and Information Network), a summary work on the contributions of the national French ESKD register was carried out. On the issue of ESKD incidence, the following key messages were retained. Thanks to several studies conducted using data from the REIN registry, the spatial variations of incidence of stage 5 chronic kidney disease in the replacement stage could be explained, in part, by the health condition of the general population as well as by the socio-economic ...
Source: Nephrologie and Therapeutique - August 28, 2023 Category: Urology & Nephrology Authors: Isabelle Kazes Cl émence Béchade Thierry Lobbedez C écile Couchoud Mathilde Lassalle Source Type: research
Health care provision
Nephrol Ther. 2023 Aug 28;18(S2):13-18. doi: 10.1016/S1769-7255(22)00561-2.ABSTRACTOn the occasion of the 20th anniversary of the REIN (French Renal Epidemiology and Information Network), a summary work on the contributions of the French national ESKD register was carried out. On the issue of healthcare provision, the following key messages were retained. France offers diversified, local healthcare that adapts to the patients’ needs with several additional players (public, university, lucrative private, solidarity private). However, the spatial distribution of this offer shows differences between territories as regards t...
Source: Nephrologie and Therapeutique - August 28, 2023 Category: Urology & Nephrology Authors: Marc Bauwens Florian Bayer Thierry Lobbedez C écile Couchoud Source Type: research
