From the Editor of Sexuality and Disability : Global Perspectives on Sexuality and Disability
(Source: Sexuality and Disability)
Source: Sexuality and Disability - November 9, 2019 Category: Disability Source Type: research

Professional Educational Opportunities
(Source: Sexuality and Disability)
Source: Sexuality and Disability - November 4, 2019 Category: Disability Source Type: research

Contraceptive Practices and Reproductive Health Considerations for Adolescent and Adult Women with Intellectual and Developmental Disabilities: A Review of the Literature
AbstractWhereas progress has been made on increasing access to comprehensive healthcare for individuals with intellectual and developmental disabilities (I/DD), disparities continue in health outcomes, including those related to the reproductive health of adolescent and adult women with I/DD. This review summarizes reproductive care considerations for adolescent and adult women with I/DD and current practices regarding the delivery of contraceptive services to these women. Forty-seven (47) articles based on research conducted in the US between 1999 and 2019 were selected for inclusion in the review. Primary themes discusse...
Source: Sexuality and Disability - October 23, 2019 Category: Disability Source Type: research

Sexuality in People With Ostomies: A Literature Review
AbstractOstomies have shown to compromise different components of an individual ’s quality of life, particularly their sexuality. Although some elements that can affect sexuality have been described in this population like body image or lifestyle changes, being a necessity to understand these difficulties, as well as to know the strategies the same patients have used to impro ve their sexual life. A review of the literature was performed using the following databases: Medline, Central, Embase, Scopus, Lilacs and Psycinfo. The include studies required a qualitative or mixed method approach with the purpose of investig...
Source: Sexuality and Disability - October 18, 2019 Category: Disability Source Type: research

Perceived Satisfaction and Inequity: A Survey of Potential Romantic Partners of People with a Disability
AbstractPeople with disabilities (PWD) may be stigmatized when dating. As suggested by previous research, people may avoid forming romantic relationships with PWD because they fear being stigmatized by association. We tested this explanation and proposed alternative reasons for the potential stigmatization of PWD. Specifically, we predicted that people may be less willing to date PWD because they stereotypically infer that such relationships may not be satisfying and may be inequitable, favoring the PWD more than themselves. To test these hypotheses, we surveyed 390 single people regarding their willingness to date a poten...
Source: Sexuality and Disability - October 14, 2019 Category: Disability Source Type: research

Sexual Dysfunction in Patients with Multiple Sclerosis from Argentina: What are the Differences Between Women and Men?
In conclusion, SD is extremely common in pwMS from Argentina. The previously mentioned physical and neuropsychological factors have a negative impact on sexual function. (Source: Sexuality and Disability)
Source: Sexuality and Disability - October 14, 2019 Category: Disability Source Type: research

The Sexual Health Needs and Perspectives of College Students with Intellectual and/or Developmental Disabilities and Their Support Staff: A Brief Report
This study also makes a significant contribution to the dearth of literature on the sexual health of college students with IDD. (Source: Sexuality and Disability)
Source: Sexuality and Disability - October 9, 2019 Category: Disability Source Type: research

Female Medicaid Enrollees with Disabilities and Discussions with Health Care Providers About Contraception/Family Planning and Sexually Transmitted Infections
AbstractFor women with disabilities in particular, there is a need for information about both contraception and planning for a baby and preventing sexually transmitted infections (STIs). The study purpose was to determine which variables were associated with whether health care providers discussed birth control or planning for a baby and what enrollees can do to prevent STIs among a sample of female Medicaid enrollees with disabilities. A cross-sectional survey design was used in this study of 584 female Medicaid enrollees in a Midwestern state. Independent variables included demographics, community participation, experien...
Source: Sexuality and Disability - September 30, 2019 Category: Disability Source Type: research

Sexual Activity in Older Adults with Visual Impairment: Findings from the English Longitudinal Study of Ageing
AbstractSexual activity is a central component of intimate relationships and has been shown to have numerous benefits for health and wellbeing. Studies have shown that people with disabilities often report less satisfaction with their sex lives, but none have examined the levels of sexual activity in older adults with visual problems. We investigated associations between self-rated eyesight and sexual activity in a population-based sample of older adults. Analyses were conducted using data from 2587 men and 3238 women participating in the English Longitudinal Study of Ageing. Participants provided information on self-rated...
Source: Sexuality and Disability - September 24, 2019 Category: Disability Source Type: research

Sexual Health Communication Between Healthcare Professionals and Adolescents with Chronic Conditions in Western Countries: An Integrative Review
AbstractAdolescent patients and healthcare professionals find it difficult to initiate the discussion on sexual health in consultations. The aim of this integrative review is to give an overview of determinants in the communication about sexual health between adolescents with chronic conditions, their parents, and their healthcare professionals. A systematic literature search for the period of January 2000 to October 2018 was conducted in four databases (Cinahl, Cochrane, PsycINFO, and Pubmed) and resulted in fifteen included studies. Four determinants were found in these studies: attitude, beliefs, knowledge, and self-eff...
Source: Sexuality and Disability - September 18, 2019 Category: Disability Source Type: research

Effectiveness of Sexual Counseling Using PLISSIT Model to Promote Sexual Function of Women with Spinal Cord Injury: A Randomized Controlled Trial
This study aimed to evaluate the effectiveness of a PLISSIT model sexual counseling to promote sexual function of women with spinal cord injury. In this randomized clinical trial the participants included a total number of 44 women with spinal cord injury randomly assigned to intervention and control groups using random blocking. The intervention group received the PLISSIT sexual counseling in three sessions weekly, and the control group received the routine consultation of the center. Female Sexual Functions of participants were assessed using women ’s Sexual Function Index questionnaires at three times. Two-way rep...
Source: Sexuality and Disability - September 16, 2019 Category: Disability Source Type: research

The Impact of Lifelong Family Care on Family Caregivers ’ Perceptions of the Sexuality of Young Adults with Intellectual Disabilities in the Western Cape of South Africa
AbstractThis paper presents findings of a constructivist grounded theory study conducted within the Western Cape Province of South Africa. The study explored how family caregivers respond to sexuality issues of their young adults with intellectual disabilities (ID). Indepth interviews and focus group discussions were used as methods of data collection. Twenty-five family caregivers participated in the study. The family caregivers ’ perceptions highlight how the lifelong care relationship and the living arrangements attached to it may become a hindrance to people with ID exercising sexual autonomy. The family caregive...
Source: Sexuality and Disability - September 16, 2019 Category: Disability Source Type: research

Scoping Review of Sexual Health Education Interventions for Adolescents and Young Adults with Intellectual or Developmental Disabilities
AbstractIndividuals with intellectual and developmental disabilities (I/DD) may experience greater risk of sexually transmitted infections, higher rates of sexual abuse, and decreased sexual health knowledge, emphasizing the need for accessible, comprehensive sexual health education. The purpose of this scoping review was to identify the extent and nature of sexual health education interventions among individuals with I/DD ages 15 –24 years. Six studies were included in the review. They investigated sexual health interventions for individuals with autism spectrum disorder and mild I/DD, covered a wide range of t...
Source: Sexuality and Disability - September 12, 2019 Category: Disability Source Type: research

Sexuality and Intimacy Behaviors in the Elderly with Dementia: The Perspective of Healthcare Professionals and Caregivers
AbstractThis paper discusses sexuality and intimacy behaviors of the elderly with dementia living in residential care. The study explores this thematic from the perspectives of healthcare professionals and family caregivers. The methodology used is based on a qualitative method approach. The research was conducted in Portugal, using semi-structured face-to-face in-depth interviews. Thirty-two people participated in this study. The qualitative data was analyzed using thematic analysis to help identify repeated patterns of meaning in the dataset. The following key findings emerged: (1) participants identified the presence of...
Source: Sexuality and Disability - September 5, 2019 Category: Disability Source Type: research

Sexual Education: A Case Study of an Adolescent with a Diagnosis of Pervasive Developmental Disorder-Not Otherwise Specified and Intellectual Disability
AbstractThe transition from adolescence to adulthood may be a challenging period for all young people, yet, for youth with autistic spectrum disorder (ASD) it may present some additional challenges. Developing a more coherent sense of the self, defining one ’s values and having a sexual awakening are all important processes for the passage from youth to an adult life. People with ASD have difficulties in the aforementioned areas and also face additional risks for sexual exploitation or even abuse. Those challenges underline the importance of sexual e ducation for individuals with ASD. The aim of this case study is to...
Source: Sexuality and Disability - August 27, 2019 Category: Disability Source Type: research

Parental Perceptions of the Sexuality of Adolescents with Intellectual Disabilities
AbstractThe sexuality of people with disabilities is often conceptualized as asexual. Furthermore, public discourse regards people with disabilities as highly prone to sexual abuse. The few studies that contemplate on parents ’ of people with intellectual disability (ID) point of view uncover the parents’ perceptions towards their offspring’s sexuality. Therefore, the purpose of this study was to examine the sexuality of adolescents with ID from their parents perceptions. The study was conducted using a phenomenolo gical approach and included 21 in-depth, semi-structured interviews with parents of adolesc...
Source: Sexuality and Disability - August 24, 2019 Category: Disability Source Type: research

Autism and Adult Sex Education: A Literature Review Using the Information –Motivation–Behavioral Skills Framework
We present those insights infused with emerging data and best practices in the field. Overall, it appears clear from the extant literature that providers need to recognize the specific characteristics of autism when developing sexual education curricula. Specifically, the social communication and sensory profile of people on the autism spectrum appears to interact with access to information, motivation to engage in healthy sexual activ ities, and the development of skills needed to engage in healthy sexual behavior. Finally, the voice of adults on the spectrum is essential to guide the emerging understanding of healthy sex...
Source: Sexuality and Disability - August 12, 2019 Category: Disability Source Type: research

Association Between Sexual Dysfunction, Sleep Impairment and Depression in Women with Fibromyalgia
AbstractWe evaluated whether patients who meet the survey criteria for fibromyalgia suffer from a higher rate of sexual dysfunction and sleep disorders compared to those without fibromyalgia. While 54 of the participants were patients diagnosed with fibromyalgia, the remaining 41 made up the healthy control group of the study. The patients were given four different sets of questionnaires: the Pittsburgh Sleep Quality Index (PSQI), Revised Fibromyalgia Impact Questionnaire, Beck Depression Inventory (BDI) and Female Sexual Function Index (FSFI) in order to evaluate sleep function, fibromyalgia disease severity, depression s...
Source: Sexuality and Disability - August 9, 2019 Category: Disability Source Type: research

The Relationship of Marital Adjustment and Sexual Satisfaction with Depressive Symptoms in Women
AbstractThe harmony between the spouses is an important factor that may affect all aspects of a relationship. Marriage-related problems are an important stressor to affecting mental health. The aim of this study is to reveal the relationship between marital adjustment and sexuality with depressive symptoms in women. The study was conducted with 160 participants and the data were collected by the Arizona Sexual Experiences Scale, the General Health Questionnaire and the Marital Adjustment Test. Result of this study it was observed that as the general health status of women was disrupted and their depression risk increased, ...
Source: Sexuality and Disability - August 5, 2019 Category: Disability Source Type: research

From the Editor of Sexuality and Disability : Are We Still Interested? Are We Still Invested?
(Source: Sexuality and Disability)
Source: Sexuality and Disability - August 5, 2019 Category: Disability Source Type: research

Negation of the Right of Women with Disabilities in Palestine to Marry: Cultural Considerations for Disability
AbstractThe right to marriage, family, and parenthood is embodied in Article 23 of the Convention on the Rights of Person ’s with disabilities. The purpose of this study was to explore the access to marriage for women with physical disabilities in Palestine. Seventeen women who acquired their disability before the age of 16 were interviewed. Fourteen participants were not married. Although these unwed participants be lieved they had the physical capacity to marry, and some had suitors, their families prohibited marriage. Participants reported marriage censure was buttressed by strong community attitudes. Three partic...
Source: Sexuality and Disability - July 30, 2019 Category: Disability Source Type: research

Review of Curricular Features of Socio-sexuality Curricula for Individuals with Developmental Disabilities
AbstractThe need for socio-sexuality education for individuals with developmental disabilities (DD) is widely acknowledged. However, there are relatively few socio-sexuality education curricula developed for individuals with DD. Additionally, there are fewer still evaluations of these curriculum. While the content contained in the curriculum is critically important, other features add to the practicality and feasibility of curriculum use by educators, parents, and other service personnel. This review evaluated the quality of curricular features found in comprehensive, commercially available socio-sexuality curriculum for i...
Source: Sexuality and Disability - July 30, 2019 Category: Disability Source Type: research

The Communication Skills and Empathic Tendencies of Nursing and Midwifery Students to Reproductive Pattern Section of the Care Plan
In this study, it was detected that students left the sexuality/reproductive pattern section in the care plan empty, therefore they did not/could not handle a patient’s potential problems related to sexuality/reproduc tive pattern. (Source: Sexuality and Disability)
Source: Sexuality and Disability - July 29, 2019 Category: Disability Source Type: research

Supporting Parents as Sexuality Educators for Individuals with Intellectual Disability: The Development of the Home B.A.S.E Curriculum
This article describes how the Home Based Adolescent Sexuality Education for Intellectual Disabilities (Home B.A.S.E.) curriculum was created to educate parents on their role as the primary sexuality educators for their adolescents with ID. The vision of the Home B.A.S.E. educational workshop is to increase parents ’ comfort and confidence in discussing sexuality and healthy relationship topics with their adolescents with ID. This curriculum has unique features considered in its development including: (1) The belief that sexuality is a human right for individuals with ID; (2) The perspective of individuals w ith disa...
Source: Sexuality and Disability - July 18, 2019 Category: Disability Source Type: research

Reproductive Health Care Experiences of People with Physical Disabilities in Vietnam
AbstractThis qualitative research explored the reproductive health care experiences of people with physical disabilities in Vietnam. Data from 20 participants (10 males and 10 females) was collected from in-depth interviews with the use of drawing and photo elicitation methods. The findings revealed that people with physical disabilities in Vietnam experienced difficulties with their reproductive health care that included: physically inaccessible hospitals; negative attitudes from health care providers; discouraging experiences with reproductive healthcare including assistance with fertility control; and limitations with p...
Source: Sexuality and Disability - July 16, 2019 Category: Disability Source Type: research

Professional Educational Opportunities
(Source: Sexuality and Disability)
Source: Sexuality and Disability - July 16, 2019 Category: Disability Source Type: research

Capacity to Consent: Policies and Practices that Limit Sexual Consent for People with Intellectual/Developmental Disabilities
AbstractConsent determination is a common practice that has been championed as a logical approach (Lyden in Sex Disabil 25(1):3 –20,2007) to the sexual activity of individuals with intellectual and/or developmental disabilities. These practices are paternalistic and ineffectual, and need to be replaced with viable alternatives, such as sex-education provision. In this piece, I deconstruct the logic of this practice utilizing the case of Ashley X, contemporary research findings, an analysis provided by Perlin and Lynch (Sexuality, disability, and the law: beyond the last frontier?, Palgrave Macmillan, London,2016) and...
Source: Sexuality and Disability - July 1, 2019 Category: Disability Source Type: research

The Effect of Modified Cardiac Rehabilitation on Erectile Dysfunction and Coping with Stress in Men Undergoing Coronary Artery Bypass Graft (CABG): A Clinical Trial
AbstractErectile dysfunction and stress are among common post-CABG surgery complications. The present study was conducted to assess the effect of modified cardiac rehabilitation on “erectile dysfunction” and “coping with stress”. In the present clinical trial study, 126 male patients undergoing CABG surgery were randomly assigned to treatment (63 patients) and control (63 patients) groups. Control group received conventional cardiac rehabilitation program over 26 sessi ons. Treatment group received modified cardiac rehabilitation program, including Kegel exercise and training on stress coping strate...
Source: Sexuality and Disability - June 15, 2019 Category: Disability Source Type: research

Changes in Sexual Function of Patients with Cancer in Turkey
This study was carried out to determine the changes in sexual functioning of patients with cancer. We identified the frequency and causes of changes in sexual functioning among patients with cancer, and determined whether this change differed according to age, type of cancer, type of treatment, side effects of drugs, anxiety, depression, and perceived social support. The study was conducted with 192 patients with cancer. Data were collected using the data collection form which included questions about socio-demographic, disease-related characteristics as well as those related to changes in sexual functioning. In addition, ...
Source: Sexuality and Disability - June 14, 2019 Category: Disability Source Type: research

Talking About Sexuality in the Context of Rehabilitation Following Traumatic Brain Injury: An Integrative Review of Operational Aspects
AbstractAn integrative review of the literature reporting operational aspects (how, when, who, with what) of rehabilitation professionals ’ discussion of sexuality with individuals with mild to severe traumatic brain injury (TBI) was conducted. Searches were carried out in seven databases. Records published from 2000 to 2017 were screened and selected (n = 504). The methodological quality of empirical studies was evaluated using the Mixed Methods Appraisal Tool. Seventeen full-text articles, book chapters, books, and essays were included and analysed in this integrative review. Prerequisites for di...
Source: Sexuality and Disability - June 3, 2019 Category: Disability Source Type: research

Autism and Intellectual Disability: A Systematic Review of Sexuality and Relationship Education
AbstractIndividuals with neurodevelopmental disorders, including Autism (ASD)  and intellectual disability (ID), have a right and need for appropriate sexuality and relationship education (SRE). These individuals often have the same desires as typically-developing people to express their sexuality and form intimate relationships; and may have an increased risk of sexual exp loitation and abuse. While there are various materials recommended for teaching SRE to these groups, there is a lack of empirical evaluation of such. A systematic review was carried out on peer-reviewed articles published in English between 19...
Source: Sexuality and Disability - May 31, 2019 Category: Disability Source Type: research

Correction to: Nursing Students ’ Experiences on Assessing the Sexuality of Patients: Mixed Method Study
The original version of the article was published with incorrect tables. The correct version of the tables is presented in this erratum. (Source: Sexuality and Disability)
Source: Sexuality and Disability - May 27, 2019 Category: Disability Source Type: research

Sexuality Among Adults with Congenital Deafblindness: A Cross-Sectional Survey Study Among Primary Carers
AbstractResearch investigating the sexuality of individuals with physical or intellectual disabilities is increasing. However, little is known about the sexuality of people with congenital deafblindness (CDB). The aim of the current study was to create a profile of the sexuality of adults with CDB in Denmark. Data was collected from the primary carers of 95 adults with CDB by use of a survey with questions about sexual behavior, the object of sexual behavior, level of sexual frustration, and pedagogical support for sexual satisfaction. The data were analyzed with regard to gender, age, severity of deafblindness, communicat...
Source: Sexuality and Disability - May 24, 2019 Category: Disability Source Type: research

Sexual Function, Social Isolation, Loneliness and Self-Esteem in Patients Undergoing Hemodialysis
This study investigated the relationship among sexual dysfunction, loneliness, social isolation, and self-esteem. In this cross-sectional correlational study, 132 patients undergoing hemodialysis with inclusion criteria were selected through census sampling from hemodialysis centers in Kerman, Iran. Demographic questionnaire, Rosenberg self-esteem scale, young schema questionnaire-short form, revised UCLA loneliness scale, the female sexual function index, and the international index of erectile function were used to collect data, which were analyzed with SPSS18 using descriptive and analytical tests. The mean total score ...
Source: Sexuality and Disability - May 23, 2019 Category: Disability Source Type: research

Sexual Function in Patients with Stoma and its Consideration Among Their Caregivers: A Cross-Sectional Study
This study aimed to investigate the difference between patient expectations and the consideration of patients sexual function by caregivers. This multicentric study consisted of two surveys addressed to patients with stoma and to stomatherapists, between March 1st and May 31st 2012. The surveys were distributed among all Italian Regions. A total of 457 valid surveys from patients with stoma were included. The 40% of patients had a definitive colostomy. The 85% of cases referred a good health status and 71% was autonomous in the ostomy management. Sexual activity was defined “important” in 80% and 68% patients b...
Source: Sexuality and Disability - May 20, 2019 Category: Disability Source Type: research

Differences in Romantic Relationship Experiences for Individuals with an Autism Spectrum Disorder
AbstractIndividuals with an autism spectrum disorder (ASD) experience varying difficulties, for many this includes romantic relationships. Existing research in this area is mixed and suggests that compared to typically developing (TD) individuals, those with ASD have a similar level of romantic interest, but less relationship success and lower satisfaction with romantic connections. We aimed to explore one of the many pathways to positive relationship experience, and how these may differ for individuals with an ASD. We recruited 459 individuals (232 diagnosed with ASD) internationally, with 64% being female, a result of th...
Source: Sexuality and Disability - May 20, 2019 Category: Disability Source Type: research

From the Editor of Sexuality and Disability: Knowledge is Based upon Diversity of Thought and Perspective
(Source: Sexuality and Disability)
Source: Sexuality and Disability - May 20, 2019 Category: Disability Source Type: research

Professional Educational Opportunities
(Source: Sexuality and Disability)
Source: Sexuality and Disability - May 14, 2019 Category: Disability Source Type: research

Nursing Students ’ Experiences on Assessing the Sexuality of Patients: Mixed Method Study
This study aims to examine nursing students ’ experiences on assessing the sexuality of patients. This research is a mixed method study consisting of two stages as qualitative and quantitative. The first stage was carried out with 104 students using a socio-demographical data form and the sexual attitude and belief scale (SABS) to collect d ata. In this stage, most students stated that they could collected data about patients’ sexuality in clinical practice; however, they could not make a nursing diagnosis and give care regarding sexuality. It was determined that this was due to the age, gender and education le...
Source: Sexuality and Disability - April 24, 2019 Category: Disability Source Type: research

Applying an Occupational Lens to Thinking About and Addressing Sexuality
This study, explored occupational therapists’ reasoning and practice in relation to the work they do (or do not do) with clients for whom sexual expression has become problematic. The lens used to explore reasoning and practice was a key conceptual framework adopted by occupational therapists, the occupational perspective of health, which considers humans need to do, be, become and belong. Using a qualitative, phenomenographic approach, 16 occupational therapists from across Australia were interviewed to understand the qualitatively variable ways in which they reasoned about practice in relation to the sexual needs o...
Source: Sexuality and Disability - April 11, 2019 Category: Disability Source Type: research

Dating and Courtship Behaviors Among Those with Autism Spectrum Disorder
This study sought to describe the romantic experiences of a small sample of individuals with ASD and explore any inappropriate courtship behaviors while pursuing a romantic interest. (Source: Sexuality and Disability)
Source: Sexuality and Disability - April 11, 2019 Category: Disability Source Type: research

Swedish Social Work Students ’ Attitudes Toward Addressing Sexual Health Issues in Their Future Profession
AbstractSexual health is an important area for social work. Social workers ’ failure to address sexual health issues in social work practice, due to experienced discomfort, may create barriers toward clients, and lead to their decreased health. Investigating social work students’ attitudes toward sexual health, and their perceived competence in this area is crucial for developing social work education on sexual health issues. The aim of the present study was to explore Swedish social work students’ attitudes and perceived competence and educational needs regarding communicating about sexual health in thei...
Source: Sexuality and Disability - April 4, 2019 Category: Disability Source Type: research

Maternal Healthcare Experiences of and Challenges for Women with Physical Disabilities in Low and Middle-Income Countries: A Review of Qualitative Evidence
This article reports on the outcomes of a comprehensive review of qualitative research using the Joanna Briggs Institute (JBI) guidelines to guide a systematic approach addressing women with physical disabilities (WWPD) ’s access to and utilization of maternal health care services in low and middle-income countries. The article specifically examines existing literature on the experiences and challenges facing WWPD in accessing and utilization of these services during pregnancy, childbirth and the post-natal perio d. Fifteen studies that met inclusion criteria were identified. Findings from the review highlight that p...
Source: Sexuality and Disability - April 1, 2019 Category: Disability Source Type: research

From the Editor of Sexuality and Disability : The More We Listen to What is Being Said, the More We Can Learn
(Source: Sexuality and Disability)
Source: Sexuality and Disability - March 9, 2019 Category: Disability Source Type: research

Professional Educational Opportunities
(Source: Sexuality and Disability)
Source: Sexuality and Disability - February 26, 2019 Category: Disability Source Type: research

Fertility Problem Characteristics Experienced by Women with Physical Disability and Distressing Factors
AbstractThis research was conducted to determine fertility characteristics problems experienced by women with physical disability and distressing factors. A total of 226 women aged between 15 and 49 with physical disabilities (orthopedic, visual, hearing, language and speech impairment) who were registered in the Department of Disability Services in Municipality of Sanliurfa, and in two associations of people with disability in Diyarbakir constituted the target population of this descriptive study. The aim was to reach all of the target population in the sample, but a total of 181 people were reached. Data were collected f...
Source: Sexuality and Disability - February 25, 2019 Category: Disability Source Type: research

Assessment of Sexual Reproductive Health Knowledge Amongst Patients with Cystic Fibrosis
This study is concerned with evaluating cystic fibrosis (CF) annual review practice. More precisely, we wanted to know if we are utilizing genetic counseling services and identifying poor knowledge of sexual reproductive health at annual review. We conducted short interviews with 21 CF patients at annual review regarding genetic counseling knowledge and perception. Patient responses were documented, analyzed and coded using a simple thematic analysis to pr écis the content. Immediately post-interview, patients were asked to complete a CF questionnaire comprised of nine questions, testing knowledge of the science of ...
Source: Sexuality and Disability - January 22, 2019 Category: Disability Source Type: research

Professionals, Parents and the General Public: Attitudes Towards the Sexuality of Persons with Intellectual Disability
AbstractPrejudices still surround the issue of sexuality of persons with intellectual disability (ID), both in families and in the professional community. To assess attitudes of parents, professionals and the general population towards the sexuality of persons with ID, so that appropriate sexual education could be introduced and implemented with persons with ID. We used Attitudes to Sexuality Questionnaire —Individuals with an Intellectual Disability, with a questionnaire on general demographic data. Attitudes of professionals on the sexuality of persons with ID mainly show conservative viewpoints; parents feel unpre...
Source: Sexuality and Disability - January 1, 2019 Category: Disability Source Type: research

Sexual Experiences of People with Physical Disabilities in Vietnam
AbstractThis paper discusses the sexual experiences of people with physical disabilities in Vietnam. The research on which this paper is based adopted a qualitative research with in-depth interviewing in combination with the photo elicitation method. Twenty Participants with physical disabilities participated in this study. During the interviews, participants were offered the options of drawing a picture or selecting some images from a small photo library that expressed their thoughts if they found questions difficult to answer. The findings revealed sexual experiences of people with physical disabilities regarding premari...
Source: Sexuality and Disability - January 1, 2019 Category: Disability Source Type: research

The Unintended Invisible Hand: A Conceptual Framework for the Analysis of the Sexual Lives of People with Intellectual Disabilities
In this study, a review of the literature was performed to (a) examine the opinions reported in the peer-reviewed literature regarding the sexual experiences of PID and (b) identify factors that contribute to the promotion or restriction of sexual expression by PID. Sixteen qualitative articles were identified from electronic databases and reviewed. People with PID were found to exhibit the same spectrum of sexual life as the general population, and three major themes were identified: abstinence, regulation, and autonomy. Some PID preferred to abstain from sex, whereas others considered engagement in sexual activity to hav...
Source: Sexuality and Disability - January 1, 2019 Category: Disability Source Type: research