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Investigating the experience of professional carers supporting individuals with intellectual disability who were at risk of admission – a qualitative study
This study aims to understand the experiences of professional paid carers providing community support to people with intellectual disability “at risk of admission”. This study explores factors that were helpful or lacking in terms of the support the carers received from NHS health services during this time.This study conducted semi-structured interview with eight participants. Thematic analysis was used to analyse the data.Three main themes and ten subthemes were identified. The first main theme was “support systems” that were available or lacking for the client and their carers. The second main theme was “traini...
Source: Advances in Mental Health and Intellectual Disabilities - January 17, 2023 Category: Disability Authors: Mizla Manandhar-Richardson Ceri Woodrow Georgia Cooper-Taylor Source Type: research

Co-design and development of a multi-component anxiety management programme for people with an intellectual disability
Daniel James Acton, Robert Waites, Sujeet Jaydeokar, Steven Jones Advances in Mental Health and Intellectual Disabilities, Vol. ahead-of-print, No. ahead-of-print, pp.- This paper aims to understand the lived experience of people with intellectual disability of their anxiety and of being co-design partners in developing a multi-component approach to the management of anxiety.The development of an anxiety manual and programme was part of a service development which allowed existing and established psychological therapies to be adapted for people with intellectual disability. A qualitative approach was used to better unders...
Source: Advances in Mental Health and Intellectual Disabilities - January 11, 2023 Category: Disability Authors: Daniel James Acton Robert Waites Sujeet Jaydeokar Steven Jones Source Type: research

Screening and diagnosing dementia in people with Down ’s syndrome: implications of using the DLD questionnaire
Screening and diagnosing dementia in people with Down’s syndrome: implications of using the DLD questionnaire Bhathika Perera, Lukasz Kamieniarz, Mashal Iftikhar, Solomis Solomou Advances in Mental Health and Intellectual Disabilities, Vol. ahead-of-print, No. ahead-of-print, pp.- The Dementia Questionnaire for People with Learning Disabilities (DLD) is one of the main screening and monitoring tools for dementia in people with Down’s syndrome (DS). As part of a quality improvement project to improve the care for people with DS and dementia in an intellectual disability service, the authors s...
Source: Advances in Mental Health and Intellectual Disabilities - October 8, 2022 Category: Disability Authors: Bhathika Perera Lukasz Kamieniarz Mashal Iftikhar Solomis Solomou Source Type: research

Community services during the COVID-19 pandemic in a Norwegian county: impact on users with multiple, complex needs and their service providers – a qualitative study
This study may add to this knowledge. (Source: Advances in Mental Health and Intellectual Disabilities)
Source: Advances in Mental Health and Intellectual Disabilities - September 7, 2022 Category: Disability Authors: Linda Kristin H ørsrud Trine Lise Bakken Source Type: research

An investigation into the factors which influence attendance rates for psychology appointments in an adult intellectual disability service
This study aims to investigate whether factors previously shown to influence attendance rates for appointments in general practice and general mental health services also influence attendance rates in services for people with intellectual disabilities (ID). Post hoc data from 452 psychology appointments, ID diagnostic and initial screening (triage) appointments were collected from the health-care files of a community adult ID psychology service. Demographic factors (age, sex) and clinical factors (waiting time, time between appointment invitation being sent and appointment being held, presence of prior telephone call ...
Source: Advances in Mental Health and Intellectual Disabilities - August 29, 2022 Category: Disability Authors: Luke Yates Louise Brittleton Nigel Beail Source Type: research

Do demographic, and clinical characteristics influence meeting NICE quality standards for young people transitioning to adult intellectual disability services?
This study aims to evaluate the quality of transition from child and adolescent services to adult intellectual disability services, using the relevant National Institute for Health and Care Excellence (NICE) standard (QS140). In addition, this study also identifies any differences in transition quality between those young people with intellectual disability with and without autism. Using routinely collected clinical data, this study identifies demographic and clinical characteristics of, and contextual complexities experienced by, young people in transition between 2017 and 2020. Compliance with the quality standard w...
Source: Advances in Mental Health and Intellectual Disabilities - August 17, 2022 Category: Disability Authors: Paul Soper Alex G. Stewart Rajan Nathan Sharleen Nall-Evans Rachel Mills Felix Michelet Sujeet Jaydeokar Source Type: research

Systematic review of systematic reviews on psychological therapies for people who have intellectual disabilities: 1. Quality appraisal
Charlotte Clarke, Stephen Kellett, Nigel Beail Advances in Mental Health and Intellectual Disabilities, Vol. ahead-of-print, No. ahead-of-print, pp.- This paper aims to assess the quality of systematic reviews on the effectiveness of psychological therapy for adults with intellectual disabilities (ID) and mental health difficulties. Four electronic databases were used: Cochrane, PsycINFO, PubMed and Scopus. Studies were included if they were a systematic review focused primarily on psychological therapy for adults with ID and mental health difficulties. Systematic reviews focused on anger ...
Source: Advances in Mental Health and Intellectual Disabilities - August 3, 2022 Category: Disability Authors: Charlotte Clarke Stephen Kellett Nigel Beail Source Type: research

Psychiatric symptoms influence the performance on the Screener Intelligence and Learning Disabilities in general mental health care in The Netherlands
This study aims to examine if the outcomes of the Screener for Intelligence and Learning Disabilities (SCIL) were affected by the severity of psychiatric symptoms during admission. The authors administered the SCIL and the Kennedy Axis V (domain psychological impairment) at two moments when patients were sufficiently stabilised and just before discharge. A total of 86% of the respondents had the same outcome regardless of the time of administration. The Kennedy score correlated modestly with changes in the SCIL scores, suggesting that the severity of psychiatric symptoms just modestly affected the performance. ...
Source: Advances in Mental Health and Intellectual Disabilities - June 14, 2022 Category: Disability Authors: Jeanet Nieuwenhuis Eric Noorthoorn Peter Lepping Niels Mulder Henk Nijman Source Type: research

Improving Access to Psychological Therapies (IAPT): the impact of service changes due to COVID-19 on people with learning disabilities
Caroline Rodhouse, Dave Dagnan, Richard Thwaites, Chris Hatton Advances in Mental Health and Intellectual Disabilities, Vol. ahead-of-print, No. ahead-of-print, pp.- Primary care psychological interventions for people with common mental health problems in England are primarily delivered through Improving Access to Psychological Therapies (IAPT) services. People with learning disabilities within IAPT have poorer key clinical outcomes than people who do not identify as having a learning disability. During the global COVID-19 pandemic remote consultations have accounted for nearly 90% of all conta...
Source: Advances in Mental Health and Intellectual Disabilities - June 7, 2022 Category: Disability Authors: Caroline Rodhouse Dave Dagnan Richard Thwaites Chris Hatton Source Type: research

Impact of COVID-19 on people with Down syndrome in Japan based on regional differences frequency of emergency declarations
This study clarified the psychosomatic effects of COVID-19 in people with DS in adulthood, which has not yet been fully clarified in the world. To the best of the authors’ knowledge, this is the first study in Japan to clarify the physical and mental effects of COVID-19 on people with DS and the status of new normal initiatives. (Source: Advances in Mental Health and Intellectual Disabilities)
Source: Advances in Mental Health and Intellectual Disabilities - May 20, 2022 Category: Disability Authors: Michio Kojima Source Type: research

The space between the rock and the hard place: personality disorder diagnosis in people with intellectual disabilities
Claire Marie Downs, Kelly Rayner-Smith Advances in Mental Health and Intellectual Disabilities, Vol. ahead-of-print, No. ahead-of-print, pp.- The assessment for and diagnosis of personality disorder (PD) continue to be contentious, with many prominent practitioner psychologists arguing against this specific label and providing a credible alternative framework to psychiatric diagnosis more generally. This paper aims to summarise the literature and support practitioners identifying PD in people with intellectual disabilities (ID). Relevant National Institute for Health and Care Excellence (N...
Source: Advances in Mental Health and Intellectual Disabilities - May 2, 2022 Category: Disability Authors: Claire Marie Downs Kelly Rayner-Smith Source Type: research

Compassion ‐focused therapy group for men with intellectual disabilities who had maladaptive conceptualisations of masculinity
Compassion‐focused therapy group for men with intellectual disabilities who had maladaptive conceptualisations of masculinity Robert John Searle, Ianiv Borseti, Katy-May Price Advances in Mental Health and Intellectual Disabilities, Vol. ahead-of-print, No. ahead-of-print, pp.- The purpose of this paper is to determine the effectiveness of an adapted compassion-focused therapy (CFT) group treatment programme for individuals with an intellectual disability (ID), specifically aimed to help address maladaptive conceptualisations of masculinity. Outcome measurements were competed at pre- and ...
Source: Advances in Mental Health and Intellectual Disabilities - April 29, 2022 Category: Disability Authors: Robert John Searle Ianiv Borseti Katy-May Price Source Type: research

What outcome measures are most useful in measuring the effectiveness of anti-dementia medication in people with intellectual disabilities and dementia?
Marjan Ghazirad, Olivia Hewitt, Sarah Walden Advances in Mental Health and Intellectual Disabilities, Vol. ahead-of-print, No. ahead-of-print, pp.- The use of anti-dementia medication in people with intellectual disabilities has been controversial and requires additional research to assess the efficacy of such medications. An essential part of this treatment (both in terms of research and clinical practice) is having robust outcome measures to assess the efficacy of these medications for individuals. Currently there is no consensus in the UK regarding which outcome measures, in conjunction with...
Source: Advances in Mental Health and Intellectual Disabilities - April 28, 2022 Category: Disability Authors: Marjan Ghazirad Olivia Hewitt Sarah Walden Source Type: research

Beyond the psychometrics: harnessing clinical psychology to improve the well-being of inpatient intellectual disability teams
Elysia Megan Walker, Yasmine Olabi, Kelly Rayner-Smith Advances in Mental Health and Intellectual Disabilities, Vol. ahead-of-print, No. ahead-of-print, pp.- Nursing teams supporting people with intellectual disabilities in inpatient settings are known to be vulnerable to burnout, compassion fatigue and vicarious trauma. Aspects such as resourcing, support, training and the fundamental challenges of supporting this patient group are known risk factors for these difficulties. The aim of this paper is to synthesise the literature on these issues and provide suggestions for operationalising soluti...
Source: Advances in Mental Health and Intellectual Disabilities - April 26, 2022 Category: Disability Authors: Elysia Megan Walker Yasmine Olabi Kelly Rayner-Smith Source Type: research

Co-production of post-diagnostic psychosocial intervention with carers of people with intellectual disability and dementia
Daniel Acton, Caroline Duncan, Sujeet Jaydeokar Advances in Mental Health and Intellectual Disabilities, Vol. ahead-of-print, No. ahead-of-print, pp.- This paper aims to underline the importance of using a collaborative approach when designing and adapting a post diagnostic psychosocial intervention of cognitive stimulation therapy (CST) for people with intellectual disability and dementia. As part of a service improvement, a manual of CST was adapted, for delivery in clinical practice. A qualitative co-production method allowed participants with a lived experience to provide regular feedb...
Source: Advances in Mental Health and Intellectual Disabilities - April 19, 2022 Category: Disability Authors: Daniel Acton Caroline Duncan Sujeet Jaydeokar Source Type: research