Side Effects I ’ ve Experienced with Talquetamab
This is a list of most of the side effects I’ve had since I started talquetamab. The most surprising and disappointing problem I’ve encountered is the loss of my sense of taste. Xerostomia Dry mouth. This is so bad that at times my teeth stick to the inside of my mouth. It’s not always that …
The post Side Effects I’ve Experienced with Talquetamab appeared first on Beth Morgan Multiple Myeloma Treatment Blog. (Source: beth's myeloma blog)
Source: beth's myeloma blog - July 2, 2021 Category: Cancer & Oncology Authors: Beth Tags: ASCO BiTE Myeloma Treatment Talquetamab Source Type: blogs
Celegene REMS Has An App
It’s been a while since I took Pomalyst or Revlimid. I used to have to make a call to Celgene to take a survey. The purpose of the survey is just to make sure patients are aware of the safety concerns. I just got a call from the cancer center pharmacy that I can pick …
The post Celegene REMS Has An App first appeared on Beth Morgan Multiple Myeloma Treatment Blog. (Source: beth's myeloma blog)
Source: beth's myeloma blog - June 21, 2021 Category: Cancer & Oncology Authors: Beth Tags: Myeloma Treatment pomalidomide Pomalyst celgene Source Type: blogs
Cozy with Toci
This is going to be a pretty boring post. I’m going to do my best to recall the events of my stay in the hospital while my trial drugs were administered according to the protocol. On May 25th I was admitted to the hospital to start the daratumumab, talquetamab, and pomalyst trial. The reason a …
The post Cozy with Toci first appeared on Beth Morgan Multiple Myeloma Treatment Blog. (Source: beth's myeloma blog)
Source: beth's myeloma blog - June 16, 2021 Category: Cancer & Oncology Authors: Beth Tags: BiTE cytokine release syndrome daratumumab Darzalex Dexamethasone Myeloma Treatment Talquetamab Source Type: blogs
Bone Marrow Biopsy
I had a bone marrow biopsy yesterday. It was supposed to be tomorrow, but it got moved up a few days so they can try to get me admitted on the 25th to start the trial. I hung out for a while afterwards to talk to the lab folks, and they answered all of my …
The post Bone Marrow Biopsy first appeared on Beth Morgan Multiple Myeloma Treatment Blog. (Source: beth's myeloma blog)
Source: beth's myeloma blog - May 19, 2021 Category: Cancer & Oncology Authors: Beth Tags: Bone Marrow Biopsy Myeloma Source Type: blogs
Daratumumab, Pomalyst & Talquetamab Trial
I’ve signed consents and started testing for a new trial using daratumumab (dara), pomalyst (pom) & a new drug called talquetamab. The one thing I have left to do is the bone marrow biopsy, which will be done next Thursday. Here’s a link to the info about the trial. https://clinicaltrials.gov/ct2/show/NCT04108195 I’ve had another PET scan …
The post Daratumumab, Pomalyst & Talquetamab Trial first appeared on Beth Morgan Multiple Myeloma Treatment Blog. (Source: beth's myeloma blog)
Source: beth's myeloma blog - May 16, 2021 Category: Cancer & Oncology Authors: Beth Tags: daratumumab Darzalex pomalidomide Pomalyst Talquetamab DARZALEX FASPRO® Darzalex® Source Type: blogs
I ’ m out of the TNB-383B trial
Things have taken an unexpected turn. While my blood tests looked pretty good, my PET scan results were disappointing. The PET scan showed that I’m not okay, and I am no longer eligible for the trial because of disease progression. Here’s what the report said: MUSCULOSKELETAL: Multiple hypermetabolic osseous lesions in the appendicular skeleton, including …
The post I’m out of the TNB-383B trial first appeared on Beth Morgan Multiple Myeloma Treatment Blog. (Source: beth's myeloma blog)
Source: beth's myeloma blog - April 10, 2021 Category: Cancer & Oncology Authors: Beth Tags: BiTE Myeloma TNB-383B BLENREP lesions PET Scan selinexor Source Type: blogs
Still on TNB-383B
Not much is going on. I’m still in the TNB-383B trial. I’ve been receiving the drug since November, 2020. I’ve had no noticeable side effects, which is nice. One thing that it does is knock my IgG abnd IgA way down. I’ve been having monthly IVIG for that reason. for some time now, there’s been …
The post Still on TNB-383B first appeared on Beth Morgan Multiple Myeloma Treatment Blog. (Source: beth's myeloma blog)
Source: beth's myeloma blog - March 12, 2021 Category: Cancer & Oncology Authors: Beth Tags: TNB-383B IgA M-SPIKE Source Type: blogs
“ Varying Intervals ”
I had my second infusion of TNB-383B yesterday. There were no immediate side effects of the infusion. It was explained to me that some people have a recurrence of cytokine release syndrome (CRS), which could be as bad as the CRS accompanying the first infusion, or less severe. I had none, thank goodness. While mine …
The post "Varying Intervals" first appeared on Beth Morgan Multiple Myeloma Treatment Blog. (Source: beth's myeloma blog)
Source: beth's myeloma blog - December 3, 2020 Category: Cancer & Oncology Authors: Beth Tags: BiTE cytokine release syndrome Myeloma Treatment Research TNB-383B nausea vomiting Source Type: blogs
TNB-383B Phase I Trial
I recently enrolled in a clinical trial at Wake Forest Baptist Health. A phase I trial to test TeneoBio’s TNB-383B. Before this, I spent several months on carfilzomib, dex, and cyclophosphamide. Test results and bone marrow biopsy indicated I was relapsing. TNB-383B is a BCMA x CD3 T-cell engaging bispecifc antibody being studied in relapsed …
The post TNB-383B Phase I Trial first appeared on Beth Morgan Multiple Myeloma Treatment Blog. (Source: beth's myeloma blog)
Source: beth's myeloma blog - November 24, 2020 Category: Cancer & Oncology Authors: Beth Tags: Myeloma Myeloma Treatment CRS cytoxan release syndrome TNB-383B Phase I Trial Wake Forest Baptist Health Source Type: blogs
Free Light Chains July 2020
FREE LIGHT CHAINS W/RATIO from 10/17/2019 6/29/2020 This is the most current result Here are the last 10 results in graphs (Source: beth's myeloma blog)
Source: beth's myeloma blog - July 15, 2020 Category: Cancer & Oncology Authors: Beth Tags: Life Source Type: blogs
Update about treatment – maintenance
Hi – Sorry I haven’t updated the blog in a long time. I did pretty well (number-wise) on the carfilzomib/cyclo/dex protocol. I did feel kind of crummy after treatment, though. By February of 2020, my doctor decided I could do a few more cycles and then go on maintenance. Because of the pandemic, I was … (Source: beth's myeloma blog)
Source: beth's myeloma blog - July 15, 2020 Category: Cancer & Oncology Authors: Beth Tags: carfilzomib Source Type: blogs
First Round of Carfilzomib and Cyclophosphamide Results
Even after all this time, I’m still not sure how to take the free light chains results. I’m not a science-y person. Dr. Rodriguez says that there’s been an improvement. This is the result from last week’s blood draw. Component Your Value Standard Range Free Kappa 3.19 mg/L 3.30 – 19.40 mg/L Free Lambda 163.95 … (Source: beth's myeloma blog)
Source: beth's myeloma blog - September 9, 2019 Category: Cancer & Oncology Authors: Beth Tags: carfilzomib cyclophosphamide Cytoxan Kyprolis Serum Free Light Chain Source Type: blogs
Carfilzomib and Cytoxan
Well, the daratumumab and pomalyst train has left the station without me. My doctor decided that it wasn’t helping me anymore, so I’ve moved on. A few weeks ago I started carfilzomib (Kyprolis) and cyclophosphamide (Cytoxan). I also have 20 mg of dexamethasone every week. I have carfilzomib on Thursdays and Fridays and Cytoxan only … (Source: beth's myeloma blog)
Source: beth's myeloma blog - September 6, 2019 Category: Cancer & Oncology Authors: Beth Tags: cyclophosphamide daratumumab Dexamethasone Pomalyst Source Type: blogs
Darzalex schedule change
I recently had a change in my dara schedule. I had been going once every 4 weeks, prior to this month. My doctor decided to have me go every 2 weeks, starting this month (April, 2019). He wanted to give that a try because of an increase in k/l ratio. I still have a pretty … (Source: beth's myeloma blog)
Source: beth's myeloma blog - April 15, 2019 Category: Cancer & Oncology Authors: Beth Tags: daratumumab FREE LIGHT CHAIN Source Type: blogs
Still on Darzalex
This is just a quick update. I’m still on Darzalex, but am also taking 2 mg of Pomalyst (pom) 21 days a month. I’m not taking dex at the moment. I just get 20 mg of dex with each dara infusion. We’ll see how that goes. For the last 3 or 4 months, I’ve been … (Source: beth's myeloma blog)
Source: beth's myeloma blog - January 10, 2019 Category: Cancer & Oncology Authors: Beth Tags: daratumumab Darzalex Dexamethasone Myeloma pomalidomide Pomalyst Source Type: blogs
