Navigating the U.S. health insurance landscape for children with rare diseases: a qualitative study of parents ’ experiences
Parents of children with rare diseases often face uncertainty about diagnosis, treatment, and costs associated with healthcare for their child. Health insurance status impacts each of these areas, but no U.S. ...
Source: Orphanet Journal of Rare Diseases - Category: Internal Medicine Authors: Tai L. S. Pasquini, Sarah L. Goff and Jennifer M. Whitehill Tags: Research Source Type: research