Defining key outcomes to evaluate performance of newborn screening programmes for cystic fibrosis

The European Cystic Fibrosis Society (ECFS) Neonatal Screening Working Group (NSWG) aims to monitor the performance of newborn bloodspot screening (NBS) for cystic fibrosis (CF) and compare protocols to optimize effectiveness, whilst reducing negative impact in agreement with published international guidelines. 1 The NSWG has supported numerous European countries and regions to establish NBS for CF. Collecting data on the performance of programmes across Europe has been a key element in evaluating and improving quality.

Source: Journal of Cystic Fibrosis - February 23, 2021 Category: Respiratory Medicine Authors: Anne Munck, Kevin W Southern, Carlo Castellani, Karin M de Winter-de Groot, Silvia Gartner, Nataliya Kashirskaya, Barry Linnane, Sarah J Mayell, Marijke Proesmans, Dorota Sands, Olaf Sommerburg, J ürg Barben, For the European CF Society Neonatal Screenin Tags: Short Communication Source Type: research