Gaining insight into the views of outpatients with Huntington ’s disease regarding their future and the way they deal with their poor prognosis: a qualitative study

Huntington ’s disease (HD) has a poor prognosis. Decision-making capacity and communication ability may become lost as the disease progresses. Therefore, HD patients are encouraged to engage in advance care pla...

Source: BMC Palliative Care - January 12, 2021 Category: Palliative Care Authors: Marina R. Ekkel, Marja F. I. A. Depla, Els M. L. Verschuur, Ruth B. Veenhuizen, Cees M. P. M. Hertogh and Bregje D. Onwuteaka-Philipsen Tags: Research article Source Type: research