New Series on THCB — The Health Data Goldilocks Dilemma: Privacy? Sharing? Both?

Once upon a time, there lived a little girl whose name was Goldilocks. She was a wise girl who was aware that there was great value in health data. One day she decided to go for a walk in the forest of the U.S. healthcare system.
Goldilocks learned that there are risks of TOO LITTLE health data being shared:

That she and her care providers would not have the best information for clinical decision making
That clinical researchers would be stifled from conducting groundbreaking analyses and studies
That next generation technologies, which rely on vast quantities of data (e.g., AI and machine learning) could be suffocated
That the promises of personalized medicine would be repressed

She also learned that there are risks of TOO MUCH health data being shared:

That her privacy and personal safety could be violated
That trust in care providers and the healthcare system would be eroded
That the value created by health care data would be captured by third parties, e.g., large technology companies

The Goldilocks Dilemma has U.S. policymakers driving toward two seemingly conflicting goals:

Broader data interoperability and data sharing, and
Enhanced data privacy and data protection.

On The Health Care Blog, my colleague Deven McGraw and I are hosting a new ongoing series to explore the Health Data Goldilocks Dilemma.

On the Roadmap Page to the series you’ll find:

The Scope of the Series
A list of Posts Published and Pending
An Invitation to Guest Authors
Brief Bios o...

Source: e-CareManagement - July 29, 2019 Category: Information Technology Authors: Vince Kuraitis Tags: Health Policy/Reform Information & Communication Technologies (ICT) data sharing Health Data Goldilocks Dilemma health IT interoperability privacy privacy legislation Source Type: blogs