[Coordinated care unit for patients with neural tube anomalies and their families.]

[Coordinated care unit for patients with neural tube anomalies and their families.] Arch Esp Urol. 2017 Jul;70(6):579-602 Authors: Menna LR, Miguélez Lago C Abstract Bifid Spine is a multisystem malformation incurable and transmissible with a lot of important sequelae, some of them with treatment and some other avoidable. They affect and limit not only health but social-work life too. The main objective must be prevention. The primary prevention, meaning not occurrence, could be done by recognizing the possible etiologic factors that affect the population. This is a responsibility of health policies based in scientific evidences and expert's opinions. Secondary prevention would be to make efforts to decrease the consequences and improve newborns with bifid spine lif's quality and life expectancy. Actually, persons born with bifid spine, have a longterm life expectancy with specific necessities during their lives. The first two years of life are very important. During their adolescence and adult life, risk increases if any social-health aspect is abandoned giving up follow and self-care from the pediatrics coordinated assistance team, as it follows its natural evolution. It will cause totally avoidable complications. A patient with bifid spine is basically a person, not a group of diseases. It is essential to have a holistic and total look for each person with bifid spine and not consider the patient like a collection of troubles tre...
Source: Archivos Espanoles de Urologia - Category: Urology & Nephrology Tags: Arch Esp Urol Source Type: research