Pole Vaulter With Cystic Fibrosis Clears Odds For Survival

BOSTON (CBS) — Clearing the bar and the challenges of life and living with cystic fibrosis far longer than anyone thought he would, Jerry Cahill says exercise has made all the difference.  He is in Boston for the premiere of a documentary about his extraordinary life.  This pole vaulter from New York not only has beaten the odds, he’s crushed them. “I’m 60 years old today, yes,” says Cahill smiling. And that’s a remarkable feat.  Jerry was diagnosed with cystic fibrosis when he was a kid. “You build up a bacteria, the mucus gets really thick, and it starts to clog up the airways,” he says. When Jerry was diagnosed the average life expectancy for someone with CF was in the teens.  Today it’s 38. “When I was diagnosed the doctors told my parents, you’ll be lucky if your son makes it to his 16th birthday,” Jerry says. Now remember, Jerry is celebrating his 60th birthday today.  It’s serious, intense exercise that Jerry thinks has made the difference. “When I got out of college I was a pole vaulter, did a lot of running, gymnastics, weight lifting,” he says. A new documentary called “Up For Air” traces Jerry’s life and struggle with CF and shows how his fitness routine is it’s own form of therapy. “I think it’s the best way of airway clearance is through exercise, and the running and the coughing really helps clear o...
Source: WBZ-TV - Breaking News, Weather and Sports for Boston, Worcester and New Hampshire - Category: Consumer Health News Authors: Tags: Health Local News Syndicated Local CBS Boston Dr. Mallika Marshall WBZ Source Type: news

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Publication date: Available online 7 June 2018 Source:The Annals of Thoracic Surgery Author(s): Sarah Cullivan, Karen Redmond, Carole Ridge, Oisin J. O’Connell A 21-year-old patient presented with a short history of fatigue and dyspnea on a background of a double lung transplant for cystic fibrosis and pre-existing chronic superior vena cava obstruction (SVCO). Computed tomography of the chest demonstrated a 3-cm mass occluding the right pulmonary veins, with associated right upper and lower lobe parenchymal pulmonary infiltrates. Two invasive procedures were performed with similar complications in both procedures.
Source: The Annals of Thoracic Surgery - Category: Cardiovascular & Thoracic Surgery Source Type: research
Abstract A 21-year-old patient presented with a short history of fatigue and dyspnea on a background of a double lung transplant for cystic fibrosis and pre-existing chronic superior vena cava obstruction (SVCO). Computed tomography of the chest demonstrated a 3-cm mass occluding the right pulmonary veins, with associated right upper and lower lobe parenchymal pulmonary infiltrates. Two invasive procedures were performed with similar complications in both procedures. PMID: 29885978 [PubMed - as supplied by publisher]
Source: The Annals of Thoracic Surgery - Category: Cardiovascular & Thoracic Surgery Authors: Tags: Ann Thorac Surg Source Type: research
Authors: West NE, Flume PA Abstract INTRODUCTION: Cystic fibrosis (CF) outcomes and survival have improved over the last century primarily due to advancements in antibiotics, nutritional and pulmonary therapies. Reviewed here are the significant unmet needs that exist for individuals with CF. Areas Covered: With the recent development of medications that address the underlying defect in the CF protein, there is hope that there will be continued improvement in CF outcomes. However, there remains a need to prevent or stop progression of CF related complications, as the CF protein is important to several body systems....
Source: Expert Review of Respiratory Medicine - Category: Respiratory Medicine Tags: Expert Rev Respir Med Source Type: research
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Workshops Source Type: research
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Poster Sessions Source Type: research
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Poster Sessions Source Type: research
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: E-Poster Sessions Source Type: research
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Workshops Source Type: research
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Workshops Source Type: research
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Workshops Source Type: research
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