Meniere’s Disease – A poem on Participatory Medicine

Meniere’s Disease, is that what you said? Does it effect my whole body or just my head? Will I always have this dizzy feel? Where the room spins around and makes me reel?   And what about the ringing in my ear? Or the fullness that comes and makes me not hear? And Doctor, tell me, how can this be? Is it just something that developed in me?   How long will it last? Does it go on and on? What can I do? Is my normal life gone? And what about as I grow older? Will this disease become much bolder?   What if it happens when I decide to drive? Can you guarantee I’ll make it home alive? What about surgeries, meds and such? Is there a cure? Am I asking too much?   And what about studies, what can they tell? Will it get any better or will it be hell? Tell me doc, are there others like me? Am I alone, or is there a “we”?   I don’t understand…How can you not know? How this could happen or how it will go? I guess I must accept what you say, And live with this, come what may…. years later and still here I sit, Yes, I’m still here, trying to deal with it.   But guess what happened? Guess what I learned? I’ve found out some answers to questions I yearned. Oh, not all are answered, not just yet. But I made this discovery on the Internet.   I’ve found there are others diagnosed with this curse, Some are OK, but some are much worse. And with this knowledge of others like me, It’s not as bad, now...
Source: Society for Participatory Medicine - Category: Journals (General) Authors: Tags: Member Updates Newsletter Meniere's Disease menieres participatory medicine poem Source Type: news