A discrete choice experiment to quantify the influence of trial features on the decision to participate in cystic fibrosis trials

Patient-centred research is a priority of major research organisations [1,2]. Patient involvement in trial design improves participant satisfaction [3], increases recruitment of more representative patients [4,5] and improves retention to trials [6,7], with a positive impact on improved time and cost efficiency [1,6]. Before the 1990s there were few efforts to understand trial participation from a patient perspective [8]. Recently, interest in this area has increased. Such explorations include qualitatively eliciting patient perceptions of specific aspects of patient involvement [9] and registry analysis to assess which demographic factors correlate with enrolment [10,11].

Source: Journal of Cystic Fibrosis - December 1, 2023 Category: Respiratory Medicine Authors: Rebecca Dobra, Jane Davies, Stuart Elborn, Frank Kee, Susan Madge, Marco Boeri Tags: Original Article Source Type: research