Parental Intervention Program for Preschool children with Rare Diseases – a mixed methods evaluation of parents’ experiences and utility

The purpose of this study was twofold: (i) To assess the parents ’ experiences and perception of participating in a “Parental Intervention Program for Preschool children with Rare Diseases” (PIPP-RDs). (ii) To ...

Source: Orphanet Journal of Rare Diseases - October 17, 2023 Category: Internal Medicine Authors: Gry Velvin, Vigdis Johnsen, Ingeborg Beate Lidal and Ellen Berg Tags: Research Source Type: research