Guidance to develop a multidisciplinary, international, pediatric registry: a systematic review

The European Reference Network for craniofacial anomalies and ear, nose and throat disorders (ERN-CRANIO) aims to improve craniofacial care on a European scale. Within ERN-CRANIO, the cleft lip and palate (CL/...

Source: Orphanet Journal of Rare Diseases - September 21, 2023 Category: Internal Medicine Authors: S. Ombashi, P. A. J. van der Goes, S. L. Versnel, R. H. Khonsari and A. E. Mink van der Molen Tags: Review Source Type: research