Experiences of Family Caregivers of Patients with Schizophrenia: A Qualitative Study in India

This study aims to document a holistic perspective of caregiving experiences and uses the framework of life cycle stages to focus on how caregiving influences the developmental tasks of the family members ’ life cycle stage. Through the content analysis of qualitative data of questionnaires administered with twenty-seven caregivers, the psychosocial vulnerabilities of the caregivers and their experiences of caregiving was explored. Results indicate that the caregivers experienced caregiving in a te mporal fashion, and the themes emerged as past, present, and future experiences. The past focused on the changing roles of the patient and the caregiver while in the present, the emphasis was on the emotional, physical, and practical burdens of caregiving, which is heavily influenced by the socio-cu ltural factors such as available support. Schizophrenia was seen by caregivers as an illness that disrupted the family life, and the individual life cycle stage of the person. The study highlights the need to move the therapeutic lens to the family as ‘a unit of care’, thereby focusing on the fe lt needs of the caregiver as well as the individual with schizophrenia.

Source: Journal of Psychosocial Rehabilitation and Mental Health - July 18, 2023 Category: Psychiatry Source Type: research