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Patient experience of centralized acute stroke care pathways
Health Expectations, EarlyView.
Source: Health Expectations - March 31, 2018 Category: Health Management Source Type: research

Patient, carer and public involvement in major system change in acute stroke services: The construction of value
DiscussionInvolvement was seen to have strategic and intrinsic value. Its strategic value lay in facilitating the implementation of a model of care that aimed to deliver evidence‐based care to all; its intrinsic value was in the idea of citizen participation in change processes as an end in its own right. The concept of value, rather than impact, may provide greater traction in analyses of contemporary involvement practices.
Source: Health Expectations - January 18, 2018 Category: Health Management Authors: Christopher McKevitt, Angus I.G. Ramsay, Catherine Perry, Simon J. Turner, Ruth Boaden, Charles D.A. Wolfe, Naomi J. Fulop Tags: ORIGINAL RESEARCH PAPER Source Type: research

Regenerative medicine: Stroke survivor and carer views and motivations towards a proposed stem cell clinical trial using placebo neurosurgery
ConclusionStroke survivor views and motivations reflect anticipation of the personal and future benefits of regenerative medicine. Partners/carers sought to balance the value of stroke survivor hope with carrying the weight of hope as carer, a conflict burden adding to known caregiver burden. All participants expressed the need for during and post‐trial psychological support. This study provides a rare opportunity to explore the prospective views and motivations of stroke survivors and their partners/carers towards a proposed Phase III 2‐arm RCT. This adds weight to qualitative evidence exploring capacity, consent, dec...
Source: Health Expectations - October 1, 2017 Category: Health Management Authors: Nicola A. Cunningham, Purva Abhyankar, Julie Cowie, Jayne Galinsky, Karen Methven Tags: ORIGINAL RESEARCH PAPER Source Type: research

Development of a patient‐centred, patient‐reported outcome measure (PROM) for post‐stroke cognitive rehabilitation: qualitative interviews with stroke survivors to inform design and content
ConclusionsThe results support the development of a PROM specifically designed to address the impact of cognitive problems. It should: include items addressing a comprehensive range of cognitive skills; ask questions about mood, self‐identity and social participation; use accessible wording that respondents understand and endorse; measure impact rather than frequency; and explore perceived impact on carers.
Source: Health Expectations - December 5, 2014 Category: Health Management Authors: Emma L. Patchick, Maria Horne, Kate Woodward‐Nutt, Andy Vail, Audrey Bowen Tags: Original Article Source Type: research

Patient engagement with research: European population register study
ConclusionsAcross Europe, stroke survivors already participating in research appear ill informed about stroke research. Researchers, healthcare professionals and patient associations need to improve how research results are communicated to patient populations and research participants, and to raise awareness of the relationship between research evidence and increased quality of care.
Source: Health Expectations - December 1, 2014 Category: Health Management Authors: Christopher McKevitt, Nina Fudge, Siobhan Crichton, Yannick Bejot, Benot Daubail, Antonio Di Carlo, Patricia Fearon, Peter Kolominsky‐Rabas, Anita Sheldenkar, Sophie Newbound, Charles DA Wolfe, Tags: Original Research Paper Source Type: research

‘It was like he was in the room with us’: patients’ and carers’ perspectives of telemedicine in acute stroke
ConclusionAlthough telemedicine was well accepted by many participants, its use added an additional layer of complexity to the acute stroke consultation. The ‘remote’ nature of the consultation posed challenges for some patients. These issues may be ameliorated by clear information for patients and carers, staff interpersonal skills, and teamworking.
Source: Health Expectations - December 1, 2014 Category: Health Management Authors: Josephine Gibson, Elizabeth Lightbody, Alison McLoughlin, Joanna McAdam, Alison Gibson, Elaine Dey, Jane Fitzgerald, Carl May, Chris Price, Hedley Emsley, Gary Ford, Caroline Watkins Tags: Original Research Paper Source Type: research

Involving patients in clinical research: the Telescot Patient Panel
ConclusionsThe Telescot Patient Panel was beneficial in supporting the development of the feasibility trial. The Panel approach was considered transferable to other clinical research contexts.
Source: Health Expectations - September 30, 2013 Category: Health Management Authors: Peter Fairbrother, Lucy McCloughan, Geraldine Adam, Richard Brand, Cecil Brown, Mary Watson, Nicola Cotter, Juliet Mackellaig, Brian McKinstry Tags: Original Article Source Type: research

What aspects of rehabilitation provision contribute to self‐reported met needs for rehabilitation one year after stroke – amount, place, operator or timing?
ConclusionFor people with moderate/severe stroke, continuity in rehabilitation (preferably physiotherapy) during the first year after stroke seems to be associated with self‐reported met needs for rehabilitation.
Source: Health Expectations - June 25, 2013 Category: Health Management Authors: Malin Tistad, Lena Koch, Christina Sjöstrand, Kerstin Tham, Charlotte Ytterberg Tags: Original Article Source Type: research