Reconciling the theory and reality of shared decision ‐making: A “matching” approach to practitioner leadership
AbstractShared decision making (SDM) evolved to resolve tension between patients ’ entitlement to make health‐care decisions and practitioners’ responsibility to protect patients’ interests. Implicitly assuming that patients are willing and able to make “good” decisions, SDM proponents suggest that patients and practitioners negotiate decisions. In practice, patients often do not wish to participate in decisions, or cannot make good decisions. Consequently, practitioners sometimes lead decision making, but doing so risks the paternalism that SDM is intended to avoid. We argue that practitioners should take lead...
Source: Health Expectations - November 26, 2018 Category: Health Management Authors: Stephen L. Brown, Peter Salmon Tags: REVIEW ARTICLE Source Type: research

Respect, trust and continuity: A qualitative study exploring service users ’ experience of involvement at a Healthy Life Centre in Norway
ConclusionsThe findings imply that the professionals need to assess each service user's desires for involvement and consider how these can be met. Thus, user involvement cannot be understood without considering the particular setting and each individual service user's preferences for involvement. Relational continuity is needed to maintain the service users ’ challenges and goals throughout the services and to promote health behaviour changes. (Source: Health Expectations)
Source: Health Expectations - November 24, 2018 Category: Health Management Authors: Espen Sagsveen, Marit B. Rise, Kjersti Gr ønning, Heidi Westerlund, Ola Bratås Tags: ORIGINAL RESEARCH PAPER Source Type: research

Cover Image, Volume 21, Issue 6
The cover image is based on the Original Research PaperBarriers and facilitators to implementing a process to enable parent escalation of care for the deteriorating child in hospital, by Fenella J. Gill PhD, RN, FACCCN et al., DOI10.1111/hex.12806. (Source: Health Expectations)
Source: Health Expectations - November 22, 2018 Category: Health Management Authors: Fenella J. Gill, Gavin D. Leslie, Andrea P. Marshall Tags: COVER IMAGE Source Type: research

Issue Information
Health Expectations, Volume 21, Issue 6, Page ii-iv, December 2018. (Source: Health Expectations)
Source: Health Expectations - November 22, 2018 Category: Health Management Tags: ISSUE INFORMATION Source Type: research

Sustaining patient and public involvement and engagement in research
Health Expectations, Volume 21, Issue 6, Page 937-938, December 2018. (Source: Health Expectations)
Source: Health Expectations - November 22, 2018 Category: Health Management Authors: Carolyn A. Chew ‐Graham Tags: EDITORIAL BRIEFING Source Type: research

“I kind of gave up on it after a while, became too hard, closed my eyes, didn't want to know about it”—adults with type 1 diabetes mellitus describe defeat in the context of low social support
ConclusionPatterns of poor glycaemic control viewed in the health ‐care encounter without an understanding of the context or life circumstances in which they are occurring can lead to an inability to engage with health‐care services. Disengagement from services and the absence of specialist care further isolates people, leaving them managing their diabetes alo ne with limited success. (Source: Health Expectations)
Source: Health Expectations - November 22, 2018 Category: Health Management Authors: Kathleen Hill, Paul Ward, Jonathan Gleadle Tags: ORIGINAL RESEARCH PAPER Source Type: research

Barrett's oesophagus: A qualitative study of patient burden, care delivery experience and follow ‐up needs
ConclusionsThis qualitative research provides an in ‐depth account of the patients’ perspective of BO, the effectiveness of follow‐up care and patient opinion on new follow‐up systems. (Source: Health Expectations)
Source: Health Expectations - November 14, 2018 Category: Health Management Authors: James Britton, Shaheen Hamdy, John McLaughlin, Maria Horne, Yeng Ang Tags: ORIGINAL RESEARCH PAPER Source Type: research

Developing quality criteria for patient ‐directed knowledge tools related to clinical practice guidelines. A development and consensus study
DiscussionWe successfully collaborated with all stakeholders and achieved formal support from national stakeholders on a set of minimum criteria for the development process, content and governance of patient ‐directed knowledge tools. (Source: Health Expectations)
Source: Health Expectations - November 11, 2018 Category: Health Management Authors: Trudy van der Weijden, Dunja Dreesens, Marjan J. Faber, Nanne Bos, Ton Drenthen, Ingrid Maas, Sonja Kersten, Uri ëll Malanda, Sander van der Scheur, Heleen Post, Anouk Knops Tags: ORIGINAL RESEARCH PAPER Source Type: research

How oncology teams can be patient ‐centred? opportunities for theoretical improvement through an empirical examination
ConclusionThis study emphasizes the importance of exploring the utility of theoretical frameworks and refining them in order to broaden our understanding of IPPC practice. (Source: Health Expectations)
Source: Health Expectations - November 8, 2018 Category: Health Management Authors: Karine Bilodeau, Dominique Tremblay Tags: ORIGINAL RESEARCH PAPER Source Type: research

Online accounts of gene expression profiling in early ‐stage breast cancer: Interpreting genomic testing for chemotherapy decision making
Health Expectations, EarlyView. (Source: Health Expectations)
Source: Health Expectations - November 2, 2018 Category: Health Management Authors: Emily Ross, Julia Swallow, Anne Kerr, Sarah Cunningham ‐Burley Source Type: research

Current trends in patient and public involvement in cancer research: A systematic review
Health Expectations, EarlyView. (Source: Health Expectations)
Source: Health Expectations - October 31, 2018 Category: Health Management Authors: Kathrine Hoffmann Pii, Lone Helle Schou, Karin Piil, Mary Jarden Source Type: research

Evaluation of a project to engage patients in the development of a patient ‐reported measure for HIV care (the I‐Score Study)
Health Expectations, EarlyView. (Source: Health Expectations)
Source: Health Expectations - October 30, 2018 Category: Health Management Authors: David Lessard, Kim Engler, Isabelle Toupin, I ‐Score Consulting Team, Jean‐Pierre Routy, Bertrand Lebouché Source Type: research

“Change is what can actually make the tough times better”: A patient‐centred patient safety intervention delivered in collaboration with hospital volunteers
Health Expectations, EarlyView. (Source: Health Expectations)
Source: Health Expectations - October 22, 2018 Category: Health Management Authors: Gemma Louch, Mohammed A. Mohammed, Lesley Hughes, Jane O'Hara Source Type: research

Potential harms associated with routine collection of patient sociodemographic information: A rapid review
Health Expectations, EarlyView. (Source: Health Expectations)
Source: Health Expectations - October 20, 2018 Category: Health Management Authors: Jennifer Petkovic, Stephanie L. Duench, Vivian Welch, Tamara Rader, Alison Jennings, Alan J. Forster, Peter Tugwell Source Type: research

Translation, transcultural adaptation, and validation of two questionnaires on shared decision making
Health Expectations, EarlyView. (Source: Health Expectations)
Source: Health Expectations - October 18, 2018 Category: Health Management Authors: Mar ía Victoria Ruiz Yanzi, Mariela Silvia Barani, Juan Victor Ariel Franco, Fernando Ramón Vazquez Peña, Sergio Adrian Terrasa, Karin Silvana Kopitowski Source Type: research