The Powerlessness of Families
J Soc Work End Life Palliat Care. 2021 Feb 21:1-5. doi: 10.1080/15524256.2021.1881691. Online ahead of print.NO ABSTRACTPMID:33612091 | DOI:10.1080/15524256.2021.1881691 (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - February 22, 2021 Category: Palliative Care Authors: Jennifer Hirsch Source Type: research

Reflections on "Our COVID-19 Buddy System".
Reflections on "Our COVID-19 Buddy System". J Soc Work End Life Palliat Care. 2021 Feb 12;:1-5 Authors: Linick L, Smolin E PMID: 33576310 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - February 13, 2021 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Dad's Journey With Parkinson's.
Authors: Roulston A PMID: 33576311 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - February 13, 2021 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

COVID-19: Encountering Never-Before-Known Suffering.
Authors: Rattner M PMID: 33576314 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - February 13, 2021 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Finding Refuge.
Authors: Irby Brackett K PMID: 33576329 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - February 13, 2021 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Emotions in the Pandemic: Perspective of a Palliative Medicine Social Worker.
Authors: Luck CL PMID: 33538659 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - February 6, 2021 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Advance Directives in the Nursing Home Setting: An Initiative to Increase Completion and Reduce Potentially Avoidable Hospitalizations.
Authors: Galambos C, Rantz M, Popejoy L, Ge B, Petroski G Abstract Advance directive (AD) completion can improve transitions between hospitals and skilled nursing facilities (SNF's). One Centers for Medicare and Medicaid Services (CMS) Innovations Demonstration Project, The Missouri Quality Initiative (MOQI), focused on improving AD documentation and use in sixteen SNF's. The intervention included education, training, consultation and improvements to discussion process, policy development, increased AD enactment, and increased community education and awareness activities. An analysis was conducted of data collected...
Source: Journal of Social Work in End-of-Life and Palliative Care - January 27, 2021 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Adding Ritualized Chanting to the Palliative Care of Cancer Patients at the End of Life: A Randomized Controlled Trial.
This study examined the changes in comfort when adding ritualized chanting to the palliative care of cancer patients at the end of life. The method was a randomized control trial (RCT) performed with 60 cancer patients. Comfort was measured using the End of Life Planning Questionnaire (EOLPQ) with 30 participants in each group [ritualized chanting with palliative care (RCPC) and palliative care alone (PCA)] at baseline (T1), at a 3-week (T2) and the 6-week (T3) time frame. Comfort data were analyzed using two (groups) X three (time) repeated measures MANOVA. There were no significant statistical differences between the gro...
Source: Journal of Social Work in End-of-Life and Palliative Care - January 27, 2021 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

An Imprisoned Goodbye.
Authors: Markham LG PMID: 33455546 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - January 20, 2021 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Editor's Introduction.
Authors: Csikai EL PMID: 33317441 [PubMed - in process] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - December 17, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

The Heart of Living and Dying: Upstreaming Advance Care Planning into Community Conversations in the Public Domain in Northern Ireland.
Authors: Mc Kenna D, O'Shea J, Tanner L Abstract This paper provides an evaluation of the Heart of Living and Dying (HLD) Initiative. This initiative is a group process that attempts to bring Advance Care Planning (ACP) into the public domain. It encourages participants to consider what matters to them in their living along with their hopes, preferences, and wishes for their final years and end-of-life care. An inductive, interpretive, and naturalistic approach allowed the researcher to study these phenomena in their natural setting i.e., the community. This qualitative study used 5 focus groups with 17 people and ...
Source: Journal of Social Work in End-of-Life and Palliative Care - December 15, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Strengths and Struggles for Families Involved in Hospice Care During the COVID-19 Pandemic.
Authors: Gergerich E, Mallonee J, Gherardi S, Kale-Cheever M, Duga F Abstract The COVID-19 pandemic presented unique health and social challenges for hospice patients, their families, and care providers. This qualitative study explored the impact of the pandemic on this population through the experiences and perceptions of social workers in hospice care. A survey was distributed through national and local listservs to social work practitioners throughout the United States between May 15 and June 15, 2020. The study was designed to learn the following: (1) Concerns patients experienced as a result of the pandemic, (...
Source: Journal of Social Work in End-of-Life and Palliative Care - November 24, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Poor Psychosocial Well-Being in the First Year-and-a-Half After Losing a Parent to Cancer - A Longitudinal Study Among Young Adults Participating in Support Groups.
Authors: Lundberg T, Forinder U, Olsson M, Fürst CJ, Årestedt K, Alvariza A Abstract The purpose of this study was to investigate variations in psychosocial well-being over time among young adults who participated in a support group after the death of a parent from cancer. Fifty-five young adults, aged 16-28 years, completed questionnaires that measured self-esteem, anxiety, depression, and life satisfaction at three time-points during the first year-and-one-half after the loss. Results indicated overall poor psychosocial well-being with few increases in psychological health over the study period,...
Source: Journal of Social Work in End-of-Life and Palliative Care - October 9, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

End of Life During the COVID19 Pandemic - Highlighting the role of a dedicated Palliative care Social worker during this time of crisis.
Authors: Tenorio AC, Johnson C, Grudier S PMID: 33030122 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - October 9, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Finding the Positive Amidst a Pandemic: How the Shift to Remote Interactions Has Increased Access to Services.
Authors: Suntai Z PMID: 32981481 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - September 29, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Practice Considerations for Trauma-Informed Care at End of Life.
This article reviews research on trauma at end of life, provides an overview of trauma-informed principles, and explores possibilities for applying trauma-informed care through an illustrative case study of a patient at end of life. The case discussion applies findings from the literature using Feldman's Stepwise Psychosocial Palliative Care model as a roadmap. As shown in the case study, trauma-related symptoms may complicate care, making it an important subject of clinical attention for interdisciplinary hospice team members. As part of this team, social workers are particularly well suited to provide more targeted inter...
Source: Journal of Social Work in End-of-Life and Palliative Care - September 23, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Editor's Introduction.
Authors: Csikai EL PMID: 32941120 [PubMed - in process] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - September 19, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

743,571.
Authors: Cheung JC PMID: 32921296 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - September 16, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

What Predicts Hospice Use in the Nursing Home?
Authors: Reinhardt JP Abstract The choice to utilize hospice care in the nursing home when residents are experiencing progressive decline can promote positive quality of care and comfort for residents at the end of life. Concurrent hospice and nursing home care can be less aggressive, and improve symptom management and perceived quality by family members. Using a secondary analysis of retrospective data from the electronic medical record, this study identified predictors of hospice use among 300 nursing home decedents using a six-month look back period. Findings showed that having poorer physical status (weight los...
Source: Journal of Social Work in End-of-Life and Palliative Care - September 2, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Problem Solving Therapy for Home-Hospice Caregivers: A Pilot Study.
Authors: Gregory C, Gellis Z Abstract This pilot study examined the effects of Brief Problem-Solving Therapy on caregiver quality of life, depression, and problem-solving in family caregivers of hospice patients. Thirty-seven family caregivers to home-based hospice patients (mean age 62.8 [SD = 12.32]) were randomized to the study group (PST-Hospice), for a 45 minute per week/5 week intervention or comparison group of usual care plus caregiver education (UC + CE). The severity of depressive symptoms, caregiver quality of life and problem-solving functioning were assessed at baseline and follow-...
Source: Journal of Social Work in End-of-Life and Palliative Care - September 2, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Alone, Together: Redefining Connectedness in the Age of COVID.
Authors: Easton K PMID: 32862801 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - August 31, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

An Essay on Having a Terminal Illness.
Authors: Kusmaul N PMID: 32853097 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - August 29, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Death and Dying on the Social Network: An Italian Survey.
Authors: Bovero A, Tosi C, Botto R, Fonti I, Torta R Abstract Death, bereavement, and grief are part of everyone's life experience. In the last few decades, media and social network platforms gradually began to influence people's ways of perceiving and coping with death and dying, and the research on the phenomenon of digital death is growing. Facebook is one of the most known and used social networks, and one of the few that developed specific measures to manage the profile pages of the deceased users. Based on these premises, this survey aimed to investigate how 1281 Italian participants, aged 14-77 years ...
Source: Journal of Social Work in End-of-Life and Palliative Care - August 5, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

It's Complicated: Having a Family Member Die on Hospice Not-of-COVID-19.
Authors: Kusmaul N PMID: 32744181 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - August 5, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Editor Introduction.
Authors: Csikai EL PMID: 32567538 [PubMed - in process] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - June 24, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Guest Editors' Introduction.
Authors: Cincotte N, Supiano K PMID: 32567539 [PubMed - in process] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - June 24, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Navigating the Transition from Advanced Illness to Bereavement: How Provider Communication Informs Family-related Roles and Needs.
Authors: McGinley JM, Waldrop DP Abstract Person-centered, family-oriented services are integral to palliative and end-of-life care. Effective communication with providers informs the quality of the dying experience for patients and how families fare in bereavement. This paper reports findings from a study exploring how communication and care in the later stages of an advanced illness influence family caregivers' well-being in bereavement. A concurrent triangulation design was used to analyze data collected during semi-structured interviews with 108 recently bereaved caregivers from a single hospice agency in Weste...
Source: Journal of Social Work in End-of-Life and Palliative Care - June 10, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Perceptions of Patient Portal Use for Advance Directive Documentation among Older Adults with Multiple Chronic Conditions.
The objective of this qualitative sub-study was to (1) understand older adults' use of an ACP patient portal section and (2) obtain user-design input on AD documentation features. Although some older adults may be reluctant, participants reported likely to use a portal for ADs with proper portal design and support. PMID: 32482160 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - June 4, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Social Work in a Time of Social Distance.
Authors: Crawford C PMID: 32476611 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - June 3, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Prolonged Grief Disorder and Positive Affect Improved by Chinese Brush Painting Group in Bereaved Parents: A Pilot Study.
Authors: Xiu D, He L, Killikelly C, Maercker A Abstract Traditional Chinese art practices such as brush painting and calligraphy are thought to promote self-development through holistically engaging both physical and mental health. This pilot study investigated the beneficial effects of a community-based self-help group incorporating Chinese art practices as a culturally adapted bereavement intervention. Twenty-six Chinese parents aged over 49 years and who had lost their only child participated in a 20-session Chinese brush painting group over a 6-month period. Ten bereaved parents from the same community w...
Source: Journal of Social Work in End-of-Life and Palliative Care - May 14, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Concreteness in Finitude.
Authors: Frossard AGS PMID: 32366191 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - May 7, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Concreteness in Finitude.
Authors: Frossard AGS PMID: 32312173 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - April 22, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

May We Have More Coaches in the Clinic?
Authors: Kolade VO PMID: 32274978 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - April 12, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Beliefs of Israeli Family Caregivers of People with Dementia toward Advance Care Planning.
Authors: Kermel-Schiffman I, Werner P Abstract Family caregivers of people with dementia often must make crucial medical decisions for them that may increase the burden of care experienced. Although undertaking Advance Care Planning (ACP) might reduce their decision-making burden, completion rates remain very low. The present study aimed to explore the common beliefs of family caregivers of people with dementia about undertaking ACP for themselves. A qualitative study was conducted, using a semi-structured questionnaire based on the Theory of Planned Behavior. Face-to-face interviews were conducted with a convenien...
Source: Journal of Social Work in End-of-Life and Palliative Care - April 8, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Complicated Grief: Risk Factors, Protective Factors, and Interventions.
Authors: Mason TM, Tofthagen CS, Buck HG Abstract Complicated grief (CG) poses significant physical, psychological, and economic risks to bereaved family caregivers. An integrative review of the literature published 2009-2018 on CG associated with caregiving was performed using PubMed, PsychINFO, and Web of Science. The search returned 1428 articles, of which 32 were included in the review. Sixteen studies described risk and protective factors and 16 described interventions for CG. Caregiver-related risk factors included fewer years of education, depression, anxiety, poor physical health, and maladaptive dependency...
Source: Journal of Social Work in End-of-Life and Palliative Care - April 4, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Helpful Approaches for Older Adults Living in a Retirement Community to Move Forward After the Death of a Significant Other.
This study provided insights about the benefits of living in this community such as social networking and a possible drawback such as the frequency of death among residents. Future research should continue to investigate social service resources that older adults find most helpful after a significant other dies and the use of reminiscence groups as a form of bereavement support. PMID: 32233748 [PubMed - as supplied by publisher] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - April 4, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Bibliotherapy and Bereavement: Harnessing the Power of Reading to Enhance Family Coping in Pediatric Palliative Care.
Authors: Rusch R, Greenman J, Scanlon C, Horne K, Jonas DF Abstract Bibliotherapy is a therapeutic intervention that could potentially be utilized by pediatric palliative care social workers to aid in providing individualized support and adaptive coping techniques through end-of-life and bereavement. Multiple modalities of implementing bibliotherapy are considered, including applications in individual and group counseling. An institutionally supported bibliotherapy program that aims to provide therapeutic and recreational texts for patients, families and clinicians is described. Suggested guidelines and book titles...
Source: Journal of Social Work in End-of-Life and Palliative Care - April 4, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Creating and Implementing a Resident Emotional Wellness Initiative in an Acute Care Setting: The Role of the Palliative Care Social Worker.
Authors: Weiner SB Abstract Caring for dying patients is often a new experience for ICU residents. End-of-life and palliative training in medical schools is lacking. Many residents experience troublesome emotions during residency. Literature establishes that residents show lower well-being scores than similar populations. To make emotional wellness a priority for residents, monthly mandatory Palliative Care Rounds (PCR) were established in the ICU. The role of the Palliative Care Social Worker (PCSW) is central in planning and implementing PCR. Social workers have unique skills well-suited to this type of activity ...
Source: Journal of Social Work in End-of-Life and Palliative Care - April 4, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Considerations for Developing Online Bereavement Support Groups.
Authors: Gibson A, Wladkowski SP, Wallace CL, Anderson KA Abstract The loss of a family member or friend can have profound psychological and physical implications, particularly for individuals without bereavement support services. Online support groups can be an effective means of extending services beyond the traditional modes of delivery. This is especially true for populations that include isolated individuals and those with limited support networks, limited transportation, challenging time commitments, or reside in communities with limited services available. The literature over the last 10 years was rev...
Source: Journal of Social Work in End-of-Life and Palliative Care - April 1, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

A Theoretical Exploration of Live Discharge from Hospice for Caregivers of Adults with Dementia.
This article explores live discharge from hospice for caregivers of adults with dementia through a theoretical lens of Symbolic Interactionism (SI) and Attachment Theory (AT). The theories of SI and AT support and assist in understanding the experience of caregivers who lose hospice support due to ineligibility. In addition, caregivers watch the gradual deterioration and psychological loss of someone with dementia while they remain alive described as an ambiguous loss. Ambiguous loss as a subset of traditional bereavement theories provides a framework for this exploration and provides a relevant illustration of the complex...
Source: Journal of Social Work in End-of-Life and Palliative Care - April 1, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Editor Introduction 16(1).
Authors: Csikai EL PMID: 32153256 [PubMed - in process] (Source: Journal of Social Work in End-of-Life and Palliative Care)
Source: Journal of Social Work in End-of-Life and Palliative Care - March 12, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Advance Care Planning Training for Renal Social Workers.
Authors: Berzoff J, Kitsen J, Klingensmith J, Cohen LM Abstract End Stage Renal Disease (ESRD) is a life-limiting condition for which hospice and palliative care are not routinely provided to patients and families. While the ESRD mortality rate is close to 25%, patients on dialysis are half as likely to receive hospice services than patients with other life-limiting diagnoses. Nephrologists and dialysis social workers receive little training to effectively lead patients with ESRD and their families through the stages of dying and the completion of advance care planning. The lack of professional training, a need for...
Source: Journal of Social Work in End-of-Life and Palliative Care - February 8, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Dying Online: An Analysis of End-of-Life Narratives.
This study utilized publicly available online narratives (vlog postings) written by individuals diagnosed with a terminal illness to explore themes on what dying individuals wished to say about their experiences (n = 39). While the content of the messages varied, universally all postings provided advice for living a good life. The implications of these narratives are still unknown. Questions remain about the role online peer support plays in the dying process and the extent to which sharing one's digital story can affect others online. The act of being introspective at the end of life and the desire for socia...
Source: Journal of Social Work in End-of-Life and Palliative Care - February 7, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Engaging Fathers in Pediatric Palliative Care Research.
Authors: Nicholas D, Beaune L, Belletrutti M, Blumberg J, Ing S, Rapoport A, Barrera M Abstract Fathers are under-represented in pediatric palliative care research despite frequently playing a key role in the lives of their children. The purpose of this study was to identify factors that affected paternal study invitation and participation. A secondary mixed-methods evaluation design guided examination of interview and focus group data as well as field notes from a qualitative study that examined the experiences and support needs of fathers of children with a life-limiting illness. Facilitators of paternal particip...
Source: Journal of Social Work in End-of-Life and Palliative Care - January 19, 2020 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research

Hospice Photography's Effects on Patients, Families, and Social Work Practice.
Authors: Shuber C, Kok A Abstract This qualitative study examined the influence of hospice photography on patients' end-of-life experiences, families' experiences with hospice and grief, and hospice social work practice. Hospice photography was defined in this study as photographs of hospice patients taken by social workers in the service of legacy construction. Six social workers were interviewed about the photographs they had previously taken of patients. The themes revealed were categorized as hospice photography's perceived and potential effects on patients, families, and practice and the role of smartphone tec...
Source: Journal of Social Work in End-of-Life and Palliative Care - December 22, 2019 Category: Palliative Care Tags: J Soc Work End Life Palliat Care Source Type: research