Inpatient Palliative Care Consult: A Marker for High Risk of Readmission or Death in Discharged Oncology Inpatients.
CONCLUSIONS: These data suggest that the need for a palliative care consult identifies inpatients at very high risk for early deterioration and underlines the critical importance of advance care planning/goals-of-care discussions by the oncology and palliative care teams to ensure patients and families understand their disease process and have the opportunity to direct their care decisions. PMID: 31438769 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 24, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Hospice Palliative Care (HPC) and Medical Assistance in Dying (MAiD): Results From a Canada-Wide Survey.
CONCLUSION: The new complexities of MAiD present unique challenges to those working in the health-care field. There needs to be an increased focus on educating/training providers as without proper support, health-care workers will be unable to perform to their full potential/scope of practice while also providing patients with holistic and accessible care. PMID: 31411105 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 15, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Administering Neostigmine as a Subcutaneous Infusion: A Case Report of a Patient Dying With Myasthenia Gravis.
CONCLUSION: Undertreated myasthenia gravis can lead to a rapid deterioration in a patient's clinical condition, and such patients may be mistakenly diagnosed as dying. Undertreated myasthenia gravis should therefore be considered as a potentially reversible cause of acute deterioration, especially in patients with complex comorbidities. The use of neostigmine as a continuous subcutaneous infusion may have a role in the management of such patients, particularly when enteral administration of acetylcholinesterase inhibitors is no longer possible. PMID: 31411109 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 15, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Prognostication Accuracy, Confidence, and Decisional Conflict Across Training Levels of Internal Medicine Providers.
CONCLUSIONS: Provider confidence increases and decisional conflict decreases as one increases their level of training. However, the degree in which the provider is correct in their prognosis does not change as one increases their level of training. These findings have broad implications on patients, providers, and the health-care system. PMID: 31405315 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 14, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Would You Be Surprised if This Patient Died in the Next 12 Months? Using the Surprise Question to Increase Palliative Care Consults From the Emergency Department.
The objectives of this study were to increase awareness of hospice and palliative care medicine (HPM) among emergency medicine (EM) providers and to evaluate whether this heightened awareness increased palliative care consults among participating emergency medicine providers. METHODS: We conducted an anonymous convenience sample survey and two educational interventions about HPM including the surprise question among emergency medicine resident and attending physicians at a large urban public academic quaternary care center from July to November 2018. A report of palliative care consults ordered between August 1, 2017 a...
Source: Journal of Palliative Care - August 11, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Reality, Delays, and Challenges within Pain Prevalence and Treatment in Palliative Care Patients: A Survey of First-Time Patients at the National Cancer Institute in Mexico.
CONCLUSIONS: As most patients in our study presented pain, there is a need of strengthening public policy about opioid treatments. PMID: 31379254 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 7, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Impact of Poetry on Empathy and Professional Burnout of Health-Care Workers: A Systematic Review.
CONCLUSION: There is evidence that poetry as part of a NM intervention may increase empathy and limited evidence that it may reduce professional burnout among health-care workers. PMID: 31354038 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - July 31, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Critical Care Nurses' Perceptions of Parenteral and Enteral Nutrition at the End-of-Life in South Korea.
CONCLUSION: Discussions about making the withdrawal and withholding of artificial nutrition legal should be initiated. Moreover, education regarding evidence about the outcomes of EN and PN during end-of-life care and up-to-date clinical guidelines about it should be provided. PMID: 31315495 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - July 19, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Management of Cancer-Associated Intestinal Obstruction in the Final Year of Life.
We describe the management of cancer-associated IO near the end of life in a population-based cohort with universal health coverage. METHODS: Patients who died of gastric, colorectal, ovarian, and pancreatic cancers from 2002 to 2015 were identified from the Ontario Cancer Registry. Those with ≥1 hospital admission for IO in the final year of life were identified from administrative data. Management of IO at index admission was categorized as surgery, gastrostomy, stent, feeding jejunostomy, and medical management. Trends in management over the study period were assessed by the Cochran-Armitage test. RESULTS: Th...
Source: Journal of Palliative Care - July 18, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Documentation of Advance Directives and Code Status in Electronic Medical Records to Honor Goals of Care.
Authors: Weaver MS, Anderson B, Cole A, Lyon ME Abstract Advance care planning is a process that supports conversations about the values that matter most to patients and their family members. The documentation of advance directives and code status in a patient's electronic health record (EHR) is a critical step to ensure treatment preferences are honored in the medical care received. The current approach to advanced care planning documentation in electronic medical records often remains disparate within and across EHR systems. Without a standardized format for documentation or centralized location for documentation...
Source: Journal of Palliative Care - July 11, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Programmed Death 1 Inhibitor-Induced Hypothyroidism on the Palliative Care Unit: Case Report.
We present a case of pembrolizumab-induced hypothyroidism causing extreme fatigue and persistent hypoglycemia. PMID: 31284835 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - July 11, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Issues Regarding End-of-Life Care in Pakistan: A Review.
Authors: Ali MM, Khokhar MA PMID: 31271103 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - July 5, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Longer Duration of Palliative Care in Patients With COPD Is Associated With Death Outside the Hospital.
CONCLUSION: Few patients with COPD received palliative care, similar to national trends. Initial outpatient palliative contact had the longest duration of care and death in the preferred home environment. The extent of emphysema (DLCO reduction) and more frequent disease exacerbations identified in patients were more likely to receive palliative care. Our study begins to define the benefits of palliative care in advanced COPD and confirms underutilization in the years before death, where a prolonged impact on the quality of life may be realized. PMID: 31262230 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - July 4, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Palliative Use of Nitroglycerin to Improve Microvascular Circulation.
CONCLUSION: Following decision for comfort care measures, management for patient care goes beyond the realm of pain control. Dignified dying is an active process that requires clinicians to navigate care for both patient and patients' families. By reversing the digital ischemia associated with vasopressors, patients' families have the opportunity to give meaningful touch in setting of which it may be needed most. PMID: 31232181 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - June 25, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

The Impact of Socioeconomic Status on Place of Death Among Patients Receiving Home Palliative Care in Toronto, Canada: A Retrospective Cohort Study.
Authors: Wales J, Kalia S, Moineddin R, Husain A Abstract BACKGROUND: Socioeconomic disparities in home death have been noted in the literature. Home-based palliative care increases access to home death and has been suggested as a means to decrease these disparities. AIM: Our study examines the association between socioeconomic status and other demographic factors on place of death in a population receiving home palliative care in Toronto, Canada. DESIGN: This is a retrospective chart review of patients who died between August 2013 and August 2015 when admitted to a home-based palliative care service. Multi...
Source: Journal of Palliative Care - June 19, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Anticancer Therapy at the End of Life: Lessons From a Community Cancer Institute.
CONCLUSION: Our findings demonstrate those enrolled in the OCM and those with hematologic malignancies have a higher risk of receiving anticancer therapy in the last 14 days of life. These observations highlight the need for better identifying the needs of high-risk patients and providing good quality care throughout the disease trajectory to better align end-of-life care with patients' wishes. PMID: 31187695 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - June 14, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Stopping the Momentum of Clinical Cascades in the PICU: Intentional Responses to the Limits of Medicine.
Authors: Needle JS, Liaschenko J, Peden-McAlpine C, Boss R PMID: 31142203 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - June 1, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Masculinity and Military Culture in VA Hospice and Palliative Care: A Narrative Review With Clinical Recommendations.
This article examines the intersection between masculinity, military culture, and hospice and palliative care (HPC). The authors conducted a narrative literature review, supplemented with clinical annotations, to identify the impact of masculinity and military culture on the following topics salient to end-of-life care with older male veterans: pain management, mental health, coping, communication, autonomy and respect, and family roles. Findings suggest that traits associated with masculinity and military culture have an influence on the end-of-life process and HPC for older male veterans. Specifically, results suggest th...
Source: Journal of Palliative Care - June 1, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Patterns of Support Service, Emergency Department, and Hospital Utilization in Patients with Advanced Cancer: A Descriptive Study.
Authors: McNaughton CH, Horst M, Gehron E, Sivendran S, Nguyen J, Holliday R, Newport K Abstract CONTEXT: Palliative care in oncology provides multiple benefits, however access to specialty palliative clinicians is limited in community cancer centers. Individual support services are more often available, but little is known on the utilization and impact of these services. OBJECTIVES: To describe the utilization of outpatient support services in the advanced cancer population and the association with ED and hospital use in a community setting. METHODS: A retrospective chart review of 314 patients with advanc...
Source: Journal of Palliative Care - May 29, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

How Clinician-Family Interactions Potentially Impact Clinicians' Conceptualization and Discussions Regarding Prognostic Uncertainties.
CONCLUSIONS: Clinician-family interactions influence how clinicians perceive prognostic uncertainty in their communications with patients or families. We discuss ethical and clinical implications of our findings. PMID: 31039670 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - May 3, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

The Physician's Role in Responding to Existential Suffering: What Does It Mean to Comfort Always?
Authors: Amonoo HL, Harris JH, Murphy WS, Abrahm JL, Peteet JR Abstract Existential suffering is commonly experienced by patients with serious medical illnesses despite the advances in the treatment of physical and psychological symptoms that often accompany incurable diseases. Palliative care (PC) clinicians wishing to help these patients are faced with many barriers including the inability to identify existential suffering, lack of training in how to address it, and time constraints. Although mental health and spiritual care providers play an instrumental role in addressing the existential needs of patients, PC c...
Source: Journal of Palliative Care - April 12, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Attending to Total Pain in Juvenile Huntington Disease: A Case Report Informed by Narrative Review of the Literature.
Authors: Kendrick LM, Hudgell D, Hellman A, Weaver MS Abstract OBJECTIVES:: To consider the impact of juvenile Huntington disease (JHD) from a biomedical, symptom burden, and total pain palliative care perspective. METHODS:: This case report was informed by a narrative review of the literature with inclusion of expert opinion from pediatric palliative care, an adult and pediatric neurologist, and a child psychiatrist. Audio-recorded qualitative interview and coauthorship with the pediatric patient's primary caregiver (his mother). RESULTS:: The JHD impacts all domains of child and family function. SIGNI...
Source: Journal of Palliative Care - April 6, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Symptom Assessment and Early Access to Supportive and Palliative Care for Patients With Advanced Solid Tumors in Mexico.
CONCLUSION:: Palliative and supportive care services were widely underutilized, which may be related to a lack of standardized symptom assessments and poor end-of-life communication. Novel strategies are needed to improve the implementation of tools for systematic symptom assessment and to optimize the integration of supportive care interventions into oncology care in developing countries. PMID: 30907241 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - March 27, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Conformity in Prescription and Administration of Respiratory Distress Protocols in a Tertiary Care Hospital in the Province of Quebec: RELIEVE Study.
CONCLUSION:: This study highlights important gaps in the use of RDPs in our institution. Health-care provider training appears necessary in order to ensure adequate conformity and allow for further evaluation of RDP effectiveness. PMID: 30898064 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - March 23, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

The Path of Cicely Saunders: The "Peculiar Beauty" of Palliative Care.
The Path of Cicely Saunders: The "Peculiar Beauty" of Palliative Care. J Palliat Care. 2019 Mar 14;:825859719833659 Authors: Miccinesi G, Caraceni A, Garetto F, Zaninetta G, Bertè R, Broglia CM, Farci B, Aprile PL, Luzzani M, Marzi AM, Mercadante S, Montanari L, Moroni M, Piazza E, Pittureri C, Tassinari D, Trentin L, Turriziani A, Zagonel V, Maltoni M Abstract This paper is aimed at focusing on the writings and the experience of the Hospice movemente Founder, Dame Cicely Saunders. The in-depth analysis carried out had the objective of verifying if "the way" of Cicely to unde...
Source: Journal of Palliative Care - March 17, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Deaths in the Neonatal ICU: A vignette.
Authors: Fleishman R Abstract A narrative account of several deaths in the neonatal intensive care unit, detailing the author's journey in leading others through this process. PMID: 30845876 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - March 10, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Prevalence of Having Advance Directives and a Signed Power of Attorney in Nova Scotia.
CONCLUSION:: These results may be used to better target and tailor future efforts to promote use of AD and SPoA. PMID: 30808249 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - February 28, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Health-Care Providers' Perspectives on Decision-Making Among Seriously Ill Patients of South Asian Origin in the United States.
CONCLUSIONS:: A rich cultural context influences health-care decision-making among seriously ill SAs. An understanding of this context will enhance providers' cultural competence and likely improve services to this growing population. PMID: 30808268 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - February 28, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Compassion and Community in Perinatal Palliative Care: Understanding the Necessity of the Patient Perspective Through Narrative Illustration.
Authors: Kuchemba-Hunter J Abstract Advancing technology in reproductive medicine has led to more frequent perinatal diagnoses of fatal or life-limiting anomaly. For those parents who choose to continue pregnancies while facing such a diagnosis, compassionate and communal perinatal palliative care provides beneficial physical and psycho-socio-emotional support for these families, so that they may preserve and acknowledge the relationship with their child, no matter how brief his/her life. PMID: 30776963 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - February 21, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Comparing Educational Outcomes of Online Module-Based Technology with and without Simulation on Attitudes Toward Care of the Dying in Second Semester BSN Students.
CONCLUSIONS:: Innovative education modalities described in the study may assist in preparing the future workforce for the myriad of demands related to health, life, and death. PMID: 30767633 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - February 17, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Trends in the Utilization of Life-Sustaining Procedures and Palliative Care Consultation Among Dying Patients With Advanced Chronic Pancreas Illnesses in US Hospitals: 2005 to 2014.
Authors: Liu X, Shen JJ, Kim P, Kim SJ, Ukken J, Choi Y, Hwang IC, Lee JH, Chun SY, Hwang J, Choi H, Yeom H, Lee YJ, Yoo JW Abstract AIM:: Pancreas cancer continues to carry a poor prognosis. Hospitalized patients with advanced chronic pancreatic illnesses increasingly receive palliative care due to its perceived clinical benefits. Meanwhile, a growing proportion of elderly patients are reportedly receiving life-sustaining procedures. Temporal trends in the utilization of life-sustaining procedures and palliative care consultation among dying patients with advanced chronic pancreatic illnesses in US hospitals were ...
Source: Journal of Palliative Care - February 17, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Delivery of End-of-Life Care in Patients Requesting Withdrawal of a Left Ventricular Assist Device Using Intranasal Opioids and Benzodiazepines.
Authors: Wiens EJ, Pilkey J, Wong JK Abstract With the increasing prevalence of the left ventricular assist device (LVAD) in patients with end-stage cardiomyopathies, an increasing number of these patients are dying of noncardiac conditions. It is likely that the palliative care clinician will have an ever-increasing role in managing end of life for patients with LVADs, including discontinuation of LVAD support. There exists a paucity of literature describing strategies for effective delivery of palliative care in patients requesting discontinuation of LVAD therapy. Here, we present a case of a patient with metasta...
Source: Journal of Palliative Care - February 14, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

The Use of Palliative Sedation to Treat Existential Suffering: A Scoping Review on Practices, Ethical Considerations, and Guidelines.
CONCLUSION:: Palliative sedation to treat existential refractory symptoms was labelled a controversial practice. A shortage of evidence-based resources limits the current literature's ability to inform policy and clinical practice. There is a need for both qualitative and quantitative multi-center research so health care professionals and regional-level institutions have firm roots to establish proper policy and practice. PMID: 30757945 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - February 14, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Patient's Decisional Control Preferences of a Cohort of Patients With Advanced Cancer Receiving Palliative Care in India.
CONCLUSIONS:: There are significant differences in DCP with KPS. Patients report a high level of satisfaction with their treatment decision-making process, though they have a poor understanding of their prognosis and goals of care and understand their treatment to be of curative intent. Individualized understanding of DCP and focus on illness understanding may be important for quality care and patient satisfaction outcomes. PMID: 30757949 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - February 14, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Changes in Symptom Burden in Dialysis Patients Assessed Using a Symptom-Reporting Questionnaire in Clinic.
CONCLUSIONS:: Use of the POS-renal questionnaire identified a high symptom burden. The presence and severity of symptoms changed dramatically over a short follow-up period, highlighting the need for regular surveillance of symptoms in the dialysis population. Routine use of a symptom questionnaire in clinic may be useful for the identification and management of symptoms in dialysis patients. PMID: 30757953 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - February 14, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Burnout in Home Palliative Care: What Is the Role of Coping Strategies?
CONCLUSIONS:: Findings suggest the need to provide professionals training programs about coping and communication skills tailored to fit the professionals' needs according to their work experience in palliative care and aimed at improving the approach to patients and relatives. PMID: 30727827 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - February 9, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Factors Associated With Knowledge and Comfort Providing Palliative Care: A Survey of Pediatricians in Mexico.
Authors: Zuniga-Villanueva G, Ramirez-GarciaLuna JL, Weingarten K Abstract BACKGROUND:: Lack of education and training in palliative care has been described to be one of the most important barriers to pediatric palliative care implementation. OBJECTIVE:: To examine what factors determine the degree of knowledge and level of comfort Mexican pediatricians have providing pediatric palliative care. METHODS:: A questionnaire that assessed palliative care concepts was developed and applied online to Mexican pediatricians, both generalists and specialists. RESULTS:: A total of 242 pediatricians responded. The ...
Source: Journal of Palliative Care - February 6, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

A Pilot Randomized Sham-Controlled Trial of MC5-A Scrambler Therapy in the Treatment of Chronic Chemotherapy-Induced Peripheral Neuropathy (CIPN).
DISCUSSION:: We observed no difference between sham and real ST CIPN treatment. Potential reasons include at least the following: ST does not work; the sham treatment had some effect; small sample size with heterogeneous patients; misplaced electrodes on an area of nonpainful but damaged nerves; or a combination of these factors. PMID: 30714486 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - February 6, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Observational Pain Assessment Instruments for Use With Nonverbal Patients at the End-of-life: A Systematic Review.
CONCLUSIONS:: At this point, it is impossible to recommend any of the tools evaluated given the low number and quality of the studies. Other analyses and studies need to be conducted to develop, adapt, or further validate observational pain instruments for the end-of-life population, regardless of the disease. PMID: 30638134 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - January 15, 2019 Category: Palliative Care Tags: J Palliat Care Source Type: research

Incidence, Trends, and Predictors of Palliative Care Consultation After Aortic Valve Replacement in the United States.
CONCLUSIONS:: There was an increase in trends for utilization of PC service in SAVR admissions while it remained unchanged in TAVR cohort, but the overall PC referral rate was low in AVR recipients during the index hospitalization. PMID: 30587081 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - December 29, 2018 Category: Palliative Care Tags: J Palliat Care Source Type: research

Promoting Primary Palliative Care in Severe Chronic Obstructive Pulmonary Disease: Symptom Management and Preparedness Planning.
Authors: Ansari AA, Pomerantz DH, Jayes RL, Aguirre EA, Havyer RD Abstract Chronic obstructive pulmonary disease (COPD) poses challenges not only in symptom management but also in prognostication. Managing COPD requires clinicians to be proficient in the primary palliative care skills of symptom management and communication focused on eliciting goals and preferences. Dyspnea should initially be managed with the combination of long-acting muscarinic antagonists and long-acting β-agonist inhalers, adding inhaled corticosteroids if symptoms persist. Opioids for the relief of dyspnea are safe when used at appropri...
Source: Journal of Palliative Care - December 29, 2018 Category: Palliative Care Tags: J Palliat Care Source Type: research

Excellent Patient Care Must Be Our Priority Always, No Matter What Is Said in the Media.
Authors: Swetz KM PMID: 30522395 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - December 15, 2018 Category: Palliative Care Tags: J Palliat Care Source Type: research

Engaging the African American Church to Improve Communication About Palliative Care and Hospice: Lessons From a Multilevel Approach.
CONCLUSIONS:: We demonstrated the feasibility of engaging the African American church in a comprehensive, multilevel process designed to improve communication about palliative care and hospice (PCH). Our success demonstrates the potential of the African American church as a community resource for lay education about PCH. PMID: 30539676 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - December 13, 2018 Category: Palliative Care Tags: J Palliat Care Source Type: research

Communication Challenges at the Crossroads of Oncology and Palliative Care: Finding a Way Forward When Clinicians Differ on Prognosis.
Authors: Collins ME, Abrahm JL Abstract In this article, we present a dialogue between a junior and a seasoned palliative care attending on approaching situations in which clinicians have differing opinions about patients' prognoses. In such situations, we may find a way forward by identifying common ground and exploring patients' and clinicians' values. Specifically, we can ask what constitutes a reasonable quality of life for our patients, and we can explore our colleagues' hopes, worries, and values using familiar communication techniques. Ultimately, we can support and align with both our patients and colleague...
Source: Journal of Palliative Care - December 1, 2018 Category: Palliative Care Tags: J Palliat Care Source Type: research

Where Patients With Cancer Die: A Population-Based Study, 1990 to 2012.
CONCLUSIONS:: Compared to most other countries, the proportion of cancer deaths at home was low, and many patients would not have died at their preferred place. The trend for more cancer deaths to occur in nursing homes is likely to continue, but nursing homes generally lack the resources and skilled staff to provide quality palliative care. Models of palliative care delivery should take account of patient preferences, the growth of terminal cancer care in nursing homes, and apparent inequities. PMID: 30484376 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - December 1, 2018 Category: Palliative Care Tags: J Palliat Care Source Type: research

Impact of a Massage Therapy Intervention for Pediatric Palliative Care Patients and Their Family Caregivers.
Authors: Weekly T, Riley B, Wichman C, Tibbits M, Weaver M Abstract CONTEXT:: All inpatient children receiving pediatric palliative care consults at a free-standing children's hospital. OBJECTIVES:: To explore the impact of massage therapy on pediatric palliative care patients' symptom burden and medication use pattern, to describe the impact of massage therapy on family caregiver distress, and to report on bedside nursing staff perception of massage therapy for children and their families. METHODS:: A 1-time point, single-center exploratory study offering 10-minute bedside massage to children receiving pal...
Source: Journal of Palliative Care - November 24, 2018 Category: Palliative Care Tags: J Palliat Care Source Type: research

Quality of Life of Family Caregivers of Patients With Cancer in Kor ├že, Albania.
CONCLUSIONS:: This study examines the impact that the paucity of palliative services has on the QOL of Albanian cancer FCGs. Although there were no domains of QOL or demographic groups identified in our study that were faring significantly worse than others, the poor overall QOL provides further evidence to support the continued development of palliative services for both patients and family members in Albania. PMID: 30465470 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - November 24, 2018 Category: Palliative Care Tags: J Palliat Care Source Type: research

Advanced Care Planning for Persons With Dementia in Primary Care: Attitudes and Barriers Among Health-Care Professionals.
CONCLUSION:: There was a striking disconnect between perceptions of the importance of completing ACP for persons with dementia and actual ACP completion rates. Primary Care Collaborative Memory Clinics may be in an ideal position to support ACP discussions; however, there is a need to improve health-care professionals' knowledge and attitudes toward ACP. PMID: 30465471 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - November 24, 2018 Category: Palliative Care Tags: J Palliat Care Source Type: research

A Canadian Academic Hospital's Initial MAID Experience: A Health-Care Systems Review.
CONCLUSION:: Our MAID processes, including our committee structure, referral triage process, and physical site have all undergone extensive review and improvement cycles throughout these first 2 years with the aim of ensuring that this procedure is managed in a respectful, confidential, safe, efficient, and patient-centered manner. PMID: 30458670 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - November 22, 2018 Category: Palliative Care Tags: J Palliat Care Source Type: research

Death, Dying, and End-of-Life Experiences Among Refugees: A Scoping Review.
This study raises awareness of the need for empirical data on end-of-life challenges and palliative care among refugees, thus equipping humanitarian agencies with a more explicit and culturally sensitive lens targeting those with life-limiting conditions. PMID: 30458699 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - November 22, 2018 Category: Palliative Care Tags: J Palliat Care Source Type: research