Shared Perspectives of Patients With Advanced Cancer and Their Informal Caregivers on Essential Aspects of Health Care: A Qualitative Study.
CONCLUSION: This study generates awareness among health care professionals that patients with advanced cancer and their relatives have similar perspectives on essential aspects of care and may increase anticipation to meet health care preferences to optimize care. PMID: 33541221 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - February 6, 2021 Category: Palliative Care Tags: J Palliat Care Source Type: research

Lessons Learned from Countries That Have Introduced Palliative Care Services into Their National Health System: A Narrative Review.
CONCLUSION: It is of the essence to learn from countries demonstrating enhanced PC practices before the implementation of a new PC program in a given country. Such practices could be used as a guide and to address barriers that may hinder the development of PC at a national level. Best practices can be achieved by focusing on educational and policy-based strategies through identifying patients' needs, assessing general public awareness, health care providers' knowledge and training as well as incorporating stakeholders' perspectives. PMID: 33525947 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - February 3, 2021 Category: Palliative Care Tags: J Palliat Care Source Type: research

Optimizing In-Home Care Services to Avoid Residential Aged Care Admission: An Australian Pilot Study.
Authors: Cornell V, Ratcliffe J PMID: 33525969 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - February 3, 2021 Category: Palliative Care Tags: J Palliat Care Source Type: research

Informal Caregiving for People With Life-Limiting Illness: Exploring the Knowledge Gaps.
CONCLUSIONS: This review raises awareness toward ICs regarding the numerous physical, psycho-socio-spiritual, financial, and health system challenges faced during care for people with life-limiting illness. The knowledge gained will inform and advance future practice, policy, and research. Application to interventions (such as caregiver benefits) will assist to improve informal caregiving experiences and outcomes alongside quality of life. Further research is required to understand these unique experiences and the challenges of minority IC populations. PMID: 33467993 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - January 22, 2021 Category: Palliative Care Tags: J Palliat Care Source Type: research

COP2ING With a New Normal: Navigating the Return to Society for Older Adults With Dementia and Their Caregivers.
Authors: Hamilton CK, Paniagua MA, Jones CA Abstract COVID-19 has stressed the healthcare system in ways our society has not seen before. Less visibly, elderly patients and their caregivers have been stressed as well, both by the virus and by the public health measures required to slow its spread. After months of isolating, patients with dementia and their caregivers are worried about reentering a society with different rules and expectations. Although an extremely complex topic, the re-entry of individuals with cognitive impairment back into society is critical for both the wellbeing of the person as well as the c...
Source: Journal of Palliative Care - January 14, 2021 Category: Palliative Care Tags: J Palliat Care Source Type: research

Disparities in Patterns of Conventional Versus Stereotactic Body Radiotherapy in the Treatment of Spine Metastasis in the United States.
CONCLUSIONS: Most patients with spine metastases were treated with cEBRT, usually with 10 fractions. Receipt of SBRT was significantly associated with race, insurance, geography, population, type of treatment facility, and year of diagnosis, even after controlling for other factors. These findings raise questions about disparities in access to and delivery of care that deserve further investigation. PMID: 33356987 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - December 30, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

The Impact of Food on Bioavailability of Oxycodone Myristate: A Case Report.
CONCLUSION: The efficacy of OxyM-ER may be compromised in patients with cancer experiencing anorexia, decreased or inconsistent food intake, or low-fat/low-calorie diets. An interdisciplinary team approach can improve pain control in the setting of "forced" formulary switches to OxyM-ER. PMID: 33327849 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - December 18, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

It's Been Great, But the Time Has Come.
Authors: Swetz KM PMID: 33308054 [PubMed - in process] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - December 15, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

African American Recruitment in Early Heart Failure Palliative Care Trials: Outcomes and Comparison With the ENABLE CHF-PC Randomized Trial.
Authors: Stockdill ML, Dionne-Odom JN, Wells R, Ejem D, Azuero A, Keebler K, Sockwell E, Tims S, Burgio KL, Engler S, Durant R, Pamboukian SV, Tallaj J, Swetz KM, Kvale E, Tucker R, Bakitas M Abstract BACKGROUND: Palliative care trial recruitment of African Americans (AAs) is a formidable research challenge. OBJECTIVES: Examine AA clinical trial recruitment and enrollment in a palliative care randomized controlled trial (RCT) for heart failure (HF) patients and compare patient baseline characteristics to other HF palliative care RCTs. METHODS: This is a descriptive analysis the ENABLE CHF-PC (Educate, Nurtu...
Source: Journal of Palliative Care - December 4, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Systemic Anti-Cancer Therapy Use in Palliative Care Outpatients With Advanced Cancer.
Authors: Wadhwa D, Hausner D, Popovic G, Pope A, Swami N, Maganti M, Zimmermann C Abstract PURPOSE: To evaluate factors associated with continuation of systemic anti-cancer therapy (SACT) after palliative care consultation, and SACT administration in the last 30 days of life, in outpatients with cancer referred to palliative care. Timing of referral was of particular interest. METHODS: Patient, disease, and treatment-related factors associated with SACT before and after palliative care, and in the last 30 days of life, were identified using 3-level multinomial logistic regression. Referral to palliative care wa...
Source: Journal of Palliative Care - November 28, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

The Use of Healthcare Services by Prostate Cancer Patients in the Last 12 Months of Life: How Do We Improve the Quality of Care During This Period?
Authors: Tien T, Gkougkousis E, Allchorne P, Green JSA Abstract INTRODUCTION: Current research on prostate cancer is heavily focused on early detection and new treatments. There is a lack of research on the overall morbidity prostate cancer survivors face and the amount of healthcare treatment they receive toward the end of their lives. Identifying these care needs will allow appropriate healthcare modeling, resource allocation and service re-design to ensure higher quality care toward the end of life. The aim of this study is to quantify and analyze the use of healthcare services by patients dying with but not nec...
Source: Journal of Palliative Care - November 28, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Impact of Massage Therapy on the Quality of Life of Hospice Patients and Their Caregivers: A Pilot Study.
Authors: Havyer RD, Lapid MI, Dockter TJ, McCue SA, Stelpflug AJ, Bigelow ML, Robsahm MM, Elwood T, Strand JJ, Bauer BA, Cutshall SM, Sloan JA, Walton MP, Whitford KJ Abstract Evidence for massage therapy (MT) in hospice patients remains limited. We conducted a prospective pilot study on MTs impact on quality of life of hospice patients and caregivers. Patient-caregiver dyads were enrolled if patients scored ≥5 on pain, depression, anxiety, or well-being using the revised Edmonton Symptom Assessment System Revised (ESAS-r). The patient received MT weekly for up to 3 massages with assessments completed at baselin...
Source: Journal of Palliative Care - November 21, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Enabling Advance Care Planning in Dementia Care: A Primary Care Approach.
CONCLUSION: PLWD and SDM value the opportunity for ACP, and although health professionals identified some concerns with framework administration, they acknowledge the value and importance of ACP. Continuing efforts to refine ACP processes are justified. PMID: 33176583 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - November 14, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Music Therapy Interventions in Palliative Care: A Systematic Review.
CONCLUSIONS: There has been notable improvement in the specification of musical interventions during music therapy sessions in palliative care. However, articles in this field need to describe how these techniques are carried out and any new developments. All this without forgetting that the patient's musical preferences are a fundamental aspect when performing music therapy sessions. PMID: 32928042 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - September 18, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

A Qualitative Study Exploring Patient, Family Carer and Healthcare Professionals' Direct Experiences and Barriers to Providing and Integrating Palliative Care for Advanced Head and Neck Cancer.
CONCLUSIONS: Head and neck cancer has a less predictable disease trajectory, where complex decisions are made and treatment outcomes are less certain. Specific focus is needed to define the optimal way to initiate Specialist Palliative Care referrals which may differ from those used for the wider cancer population. Clearer ways to effectively communicate goals of care are required potentially involving collaboration between Specialist Palliative Care and the wider head and neck cancer team. PMID: 32928058 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - September 18, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Care Considerations in a Patient- and Family-Centered Medical Assistance in Dying Program.
CONCLUSION: Fundamental to a PFCC MAID program, practitioners must be afforded time to provide holistic care. Program-related suggestions include incorporating interdisciplinary care early, and throughout the illness trajectory, consistency in care providers, appropriate anticipatory guidance, and bereavement supports for family, and dedicate space for MAID provisions. Patients and families must be included in the ongoing development and re-evaluation of MAID programs to ensure continued focus on quality end-of-life care. PMID: 32854581 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 30, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

"Guidebook on Doctors' Behaviors for Death Diagnosis Created by Community Healthcare Providers" Changed Residents' Mind for Death Diagnosis.
CONCLUSIONS: Few of the residents felt that they had received education regarding death diagnoses; they reported difficulties with diagnosing death and responding to patients' families. After the lecture using our guidebook, residents' mind changed significantly for death diagnosis, suggesting that the guidebook at the time of death diagnosis may be useful. PMID: 32838659 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 27, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

"I Lost My Best Buddy Yesterday".
"I Lost My Best Buddy Yesterday". J Palliat Care. 2020 Aug 24;:825859720951359 Authors: Meyerson JL PMID: 32830590 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 26, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Working at the Intersection of Palliative End-of-Life and Mental Health Care: Provider Perspectives.
Authors: Park T, Hegadoren K, Workun B Abstract OBJECTIVE: Palliative, end-of-life care (PEOLC) providers are poorly resourced in addressing the needs of patients with mental health challenges, and the dying experiences of this cohort-particularly those with a comorbid, chronic and persistent mental illness (CPMI)-are poorly documented. We sought to explore the experiences of PEOLC providers with regard to caring for patients with mental health challenges, and gather insights into ways of improving accessibility and quality of PEOLC for these patients. METHOD: Twenty providers of PEOLC, from different disciplin...
Source: Journal of Palliative Care - August 20, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

An Active In-Home Physician Model of Palliative Care and Its Resulting Performance Indicators Related to Home Deaths, Unplanned Emergency Department Visits and Unplanned Hospital Admissions.
CONCLUSION: The London Home Palliative Care (LHPC) Team model appears to favorably impact community death rate, ER visits and unplanned hospital admissions, as compared to accepted provincial data. Studies to determine if this model is reproducible could support palliative care teams achieving similar results. PMID: 32808567 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 20, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Interactions Between Intensive Care and Palliative Care Are Influenced by Training, Professionals' Perceptions and Institutional Barriers.
CONCLUSIONS: PC-ICU interactions are influenced by training, a positive perception of PC and less perceived institutional barriers. An integrated ICU-PC model that strengthens the PC training of those who work in ICU and provides clearer guidelines for interaction practices, may help overcome perceived barriers and improve the perception of the potential impact of PC. PMID: 32812496 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 20, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Potential Measurement Properties of a Questionnaire for Eating-Related Distress Among Advanced Cancer Patients With Cachexia: Preliminary Findings of Reliability and Validity Analysis.
Authors: Amano K, Morita T, Miyashita M Abstract BACKGROUND: There are no validated tools for measuring eating-related distress among patients with advanced cancer. The aim of the study was to investigate the potential measurement properties of a questionnaire for eating-related distress. METHODS: This is a secondary analysis. We performed an exploratory factor analysis for factorial validity and calculated Cronbach's α for internal consistency. Patients were classified into the 2 groups categorized using the international cachexia criteria. The total scores of each factor and all items were calculated, a...
Source: Journal of Palliative Care - August 19, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Symptom Burden and Unmet Needs in MPM: Exploratory Analyses From the RESPECT-Meso Study.
Authors: Hoon SN, Lawrie I, Qi C, Rahman N, Maskell N, Forbes K, Gerry S, Monterosso L, Chauhan A, Brims FJH Abstract OBJECTIVE: Malignant Pleural Mesothelioma (MPM) has a poor prognosis and high symptom burden. RESPECT-Meso was a multicenter randomized study examining the role of early specialist palliative care (SPC) on quality of life (QoL) with MPM. This is a post-hoc exploratory analysis of the symptom burden and unmet needs identified from RESPECT-Meso participants. METHODS: Exploratory analysis from 174 participants using the General Health Status (GHS) measure (from the EORTC QLQ-C30 QoL questionnaire) ...
Source: Journal of Palliative Care - August 16, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Hope in Palliative Care: A Thematic Analysis.
CONCLUSION: Hope is an ever-present source of energy that gives people strength to carry on even in the most adverse situations. Understanding hope from the palliative care perspective may allow healthcare providers to develop strategies to better foster hope in the terminally ill. PMID: 32791956 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 16, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Development of Voluntary Assisted Dying Training in Victoria, Australia: A Model for Consideration.
CONCLUSION: The Victorian legislatively-mandated voluntary assisted dying training provides standardized baseline knowledge to enhance the quality and consistency of decision-making by doctors. While further evaluation of this training is needed, it may provide a model for other jurisdictions considering making voluntary assisted dying lawful. PMID: 32752924 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 13, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

A Lack of Palliative Therapy Use in Patients With Advanced Penile Cancer.
Authors: Davaro FM, Weinstein D, Siddiqui SA, Hamilton ZA Abstract OBJECTIVES: Advanced penile cancer is associated with a poor prognosis; therefore, providing patients with realistic expectations, addressing goals of care and offering palliative therapy when appropriate is critical. Our goal was to investigate the National Cancer Database (NCDB) and analyze the role and trends in use of palliative therapy in patients with advanced penile cancer. METHODS: The NCDB 2004-2015 penile cancer data set was queried for patients with locally advanced, defined as cT4NanyM0 and cTanyN3M0, or metastatic disease regardless...
Source: Journal of Palliative Care - August 13, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

At the Intersection of Palliative Care, Psychedelic Medicine, and Healthcare Reform: A Call for a New Hospice and Palliative Care Movement.
Authors: Bernstein I PMID: 32752931 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 13, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Chemotherapy at the End of Life.
DISCUSSION AND IMPLICATIONS: There are many patients who received chemotherapy in the last 3 months of their life and the rates of chemotherapy initiation during this period are well above ideal rates. Whether such care has positive effects on survival or quality of life is questionable and deserves additional investigation. PMID: 32762320 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 13, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Assessing the Palliative and End-of-Life Care Education-Practice-Competence Triad in Intensive Care Units: Content Validity, Feasibility, and Reliability of a New Tool.
CONCLUSIONS: The PEOL Care Index is a comprehensive, comprehensible, content valid, and reliable instrument to assess the PEOL care education-practice-competence triad among ICU nurses. Construct and criterion validities need to be confirmed in future studies. Applicability of the PEOL Care Index in different settings and cultures needs to be examined. PMID: 32779529 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - August 13, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Knowledge, Attitudes, and Practices Regarding Palliative Care: A Mixed-Methods Study from Bihar, India.
Authors: Nair M, Kumar P, Mahajan R, Harshana A, Kurup KK, Moreto-Planas L, Burza S PMID: 32727299 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - July 31, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Relationship Between Newly Established Perioperative DNR Status and Perioperative Outcomes in the Elderly Population: A NSQIP Database Analysis.
CONCLUSIONS: The initiation of a new DNR status during hospitalization is associated with a significantly higher burden of both morbidity and mortality. This contrasts with prior studies that did not show an increased rate of adverse outcomes and suggests that a new DNR status in postoperative patients may reflect a consequence of adverse postoperative events. The informed consent process in older patients at risk for adverse outcomes after surgery should include discussions regarding goals of care and acceptable risk. PMID: 32718256 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - July 30, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

A Novel Use of Topical Ketamine for the Treatment of Oral Pemphigus: A Case Report.
CONCLUSION: Painful stomatitis from PNP may be refractory to standard treatment. We found that the application of topical ketamine was very effective in this patient with hemorrhagic stomatitis from PNP. PMID: 32713289 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - July 28, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Nobody Should Die Alone: A Father's Message to a Physician Daughter.
Authors: Hussain NA PMID: 32664790 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - July 17, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

What Is Good Advance Care Planning According to Hospitalized Palliative Patients and Their Families? An Explorative Study.
CONCLUSION: This study can contribute to advance care planning implementation in hospital practice because it gives in insight into which elements in advance care planning patients and families experience as necessary and when advance care planning is necessary to them. PMID: 32635800 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - July 10, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Choosing Educational Resources to Build Interprofessional, Palliative Care Competency: A Replicable Review Methodology.
CONCLUSION: This review process provided information which can inform a provincial interprofessional palliative education plan. The methodology may be used by others to assess and choose between competency-based education resources with a palliative population focus and other patient population foci. PMID: 32611258 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - July 4, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Are You Prepared for End-of-Life Care? A Content Review of Canadian End-of-Life Care Standards and Competencies for Saskatchewan.
CONCLUSIONS: Health professional associations need to ensure end-of-life care standards and competencies are in place for the provision of appropriate and holistic care. Aligning standards and competencies across professions improves the preparedness of health professionals to provide interprofessional end-of-life care. PMID: 32571155 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - June 24, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Attitude and Barriers in Palliative Care and Advance Care Planning in Nonmalignant Chronic Lung Disease: Results From a Danish National Survey.
CONCLUSION: The attitude toward PC and ACP conversations was positive and implementation was regarded as important, but only a minority performed these conversations in practice. Main barriers were lack of time and staff. Palliative care guidelines were known but only scarcely used. Structural changes at the organizational level to improve access to palliation for patients with nonmalignant chronic lung diseases are needed. PMID: 32573354 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - June 24, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Translating Pediatric Hospital Interpreters' Feedback From Difficult Conversations into Improved Communication.
CONCLUSIONS: As experts in cultural dynamics and message transmission, the insights of medical interpreters can improve communication with families. PMID: 32527189 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - June 14, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Hearing and Heeding the Voices of those With Advanced Illnesses.
CONCLUSION: The results suggest that the primary participants who completed the study benefited by significantly increasing their QOL, SWB, EWB, and SC. PMID: 32466734 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - May 31, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Canada's Evolving Medicare: End-of-Life Care.
Authors: MacPherson N, Montague T, Aylen J, Martin L, Gogovor A, Baxter S, Nemis-White J Abstract A challenging issue in contemporary Canadian Medicare is the evolution of end-of-life care. Utilizing data from the 2016 and 2018 Health Care in Canada (HCIC) surveys, this paper compares the support and priorities of the adult public (n = 1500), health professionals (n = 400), and administrators (n = 100) regarding key components for end-of-life care just prior to and post legalization of medical assistance in dying (MAiD) in Canada. In 2016 and 2018, the public, health professionals and administrators strongly suppor...
Source: Journal of Palliative Care - May 15, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Trends and Utilization of Inpatient Palliative Care Among Patients With Metastatic Bladder Cancer.
Authors: Han H, Yu F, Wu C, Dai L, Ruan Y, Cao Y, He J Abstract OBJECTIVE: To explore the trends and utilization of palliative care (PC) service among inpatients with metastatic bladder cancer (MBC). METHODS: A retrospective, cross-sectional analysis was performed using data from the 2003 to 2014 National Inpatient Sample. Palliative care was identified through International Classification of Diseases, Ninth Revision code V66.7. Demographics, comorbidities, hospital characteristics, tumor-related, and treatment-related factors were compared between patients with and without PC. Multivariable logistic regression...
Source: Journal of Palliative Care - May 15, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Death and End of Life: Perceptions Throughout The Career About Death, Palliative Care, and Educational Process.
CONCLUSIONS: Medical education plays a fundamental role in the development of knowledge and skills on death, dying, and PC. Such practices should extend throughout the course and be continuously improved after graduates move to clinical practice. PMID: 32390540 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - May 12, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Evaluation of a Video Decision Aid to Reduce Decisional Conflict in Physician Orders for Life-Sustaining Treatment (POLST) Decision-Making.
Authors: Gallegos JV, Edelstein B, Moss AH Abstract BACKGROUND/OBJECTIVES: Physician Orders for Life-Sustaining Treatment (POLST) is recommended as a preferred practice for advance care planning with seriously ill patients. Decision aids can assist patients in advance care planning, but there are limited studies on their use for POLST decisions. We hypothesized that after viewing a POLST video, decision aid participants would demonstrate increased knowledge and satisfaction and decreased decisional conflict. DESIGN: Pre-and postintervention with no control group. SETTING/PARTICIPANTS: Fifty community-dwelli...
Source: Journal of Palliative Care - May 8, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Building a Medical Undergraduate Palliative Care Curriculum: Lessons Learned.
We describe building a comprehensive palliative and end-of-life care curriculum for medical undergraduates at our university. As with recent European and US studies, we found that the process of university curriculum renewal provided a critical opportunity to integrate palliative care content, but needed a local palliative care champion already in place as an energetic and tireless advocate. The development and integration of a substantive bilingual (English and French) palliative and end-of-life care curriculum over the 4-year medical undergraduate program at our university has occurred over the course of 14 years, and re...
Source: Journal of Palliative Care - April 15, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

The Role of Hospice Palliative Care Volunteers With Respect to Conversations About Medical Assistance in Dying (MAiD).
Authors: Claxton-Oldfield S PMID: 32264756 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - April 9, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Palliative Care and the Tragedy of the Commons.
This article outlines the way in which applying frameworks from economics to end-of-life care can contribute to conversations about reform, particularly in terms of how to reform palliative care to harness its full potential to limit overtreatment, improve quality of life, and lower costs. The authors use principles from economics and political science to propose a series of possible reforms to end-of-life care, starting with reimbursement bundling and ending with pause points and more conscious ownership of care decisions by patients and their teams of providers. PMID: 32131680 [PubMed - as supplied by publisher] (Sou...
Source: Journal of Palliative Care - March 8, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

To What Extent Does Clinically Assisted Nutrition and Hydration Have a Role in the Care of Dying People?
Authors: Carter AN Abstract The question over whether to administer clinically assisted nutrition and hydration (CANH) to a dying patient is controversial, with much debate concerning this sensitive issue. The administration of CANH poses clinical and ethical dilemmas, with supporting and opposing views. Proposed positive effects of CANH include preventing thirst, delirium, hypercalcemia, and opioid toxicity. However, CANH has been shown to increase the risk of aspiration, pressure ulcers, infections, and hospital admissions as well as potentially causing discomfort to the patient. Guidance from several national bo...
Source: Journal of Palliative Care - March 6, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Transitioning to Life in a Nursing Home: The Potential Role of Palliative Care.
This article describes the perceptions of NH PC-eligible residents and families transitioning to life in a NH. METHODS: Residents at 3 NHs in Northern California (N = 228) were screened for PC eligibility. A convenience sample of PC-eligible residents and their family members (n = 28) participated in qualitative interviews that explored the experience of living as a NH resident with serious illness. Data were analyzed using grounded theory methodology. RESULTS: Our study provides insights into the experiences of transitioning to a NH from the perspectives of PC-eligible residents and their families. These data desc...
Source: Journal of Palliative Care - March 1, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Gender Differences in End-of-Life Care in Older Mexican American Adults.
Authors: Ortiz-Dowling EM, Crist JD, Shea K, Phillips LR Abstract Mexican Americans (MAs), 1 of 10 subgroups of Latinos, are the largest and fastest growing Latino subgroup in the United States; yet, their access to end-of-life (EOL) care using hospice services is low. An investigation was needed into extant research-based knowledge about factors influencing EOL care decisions among MAs to guide health-care professionals in assisting MAs to make timely, acceptable, and satisfactory EOL care decisions. To determine whether gender was an influence on EOL decision-making among older MAs, CINAHL and PubMed were searche...
Source: Journal of Palliative Care - February 27, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research

Hospice Utilization Among Residents in Long-Term Care Facilities.
CONCLUSION: Only a small proportion of residents in LTCFs received hospice care. Further investigation of standardized assessment of terminal status is needed as accuracy of end-stage diagnosis continues to be challenging and criteria for hospice eligibility are narrow. Special attention should be paid to improve access to hospice care among residents with dementia or other progressive chronic diseases with severe and complex clinical needs. PMID: 32093589 [PubMed - as supplied by publisher] (Source: Journal of Palliative Care)
Source: Journal of Palliative Care - February 27, 2020 Category: Palliative Care Tags: J Palliat Care Source Type: research