Development of the Fabry Disease Patient-Reported Outcome (FD-PRO): a new instrument to measure the symptoms and impacts of Fabry Disease
The systematic collection of disease-specific symptoms and impacts on the lives of patients with Fabry Disease (FD) can offer unique insights into the patient experience, yet no disease-specific tool to measur...
Source: Orphanet Journal of Rare Diseases - Category: Internal Medicine Authors: Alaa Hamed, Pronabesh DasMahapatra, Nicole Lyn, Chad Gwaltney and Robert J. Hopkin Tags: Research Source Type: research