How to develop a patient and carer advisory group in stroke care research.

CONCLUSION: Stroke patients are likely to be older and have long-term physical disabilities or communication problems that may make their involvement in research more challenging to implement. However, with planning and consideration and the allocation of sufficient time and resources, stroke patients and their carers can be effectively involved, resulting in benefits to the research process and output, and to researchers, patients and carers. IMPLICATIONS FOR PRACTICE/RESEARCH: Pay attention to planning and the practical details of involving stroke patients and their carers in research, ensuring that meetings are arranged in an accessible venue. Use straightforward language in all forms of communication. Listen carefully to their views and perspectives and be prepared to make changes to the study and revise methods if appropriate.
PMID: 23346772 [PubMed - in process]

Source: Nurse Researcher - January 1, 2013 Category: Nursing Authors: Sims S, Brearley S, Hewitt G, Greenwood N, Jones F, Ross F, Harris R Tags: Nurse Res Source Type: research