There's a hospital ship waiting for sick Puerto Ricans -- but no one knows how to get on it

Sammy Rolon is living in a makeshift clinic set up at a school. He has cerebral palsy and epilepsy and is bedridden. He's waiting for surgery that was scheduled before Hurricane Maria smashed into Puerto Rico. Now, he can't even get the oxygen he needs.
Source: CNN.com - Health - Category: Consumer Health News Source Type: news

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In conclusion, the efficacy of OHM is promising for some pediatric neurological disorders such as epilepsy and cerebral palsy. However, more high-quality evidence is needed to make clinical recommendations on OHM use. PMID: 30518236 [PubMed - as supplied by publisher]
Source: The American Journal of Chinese Medicine - Category: Complementary Medicine Authors: Tags: Am J Chin Med Source Type: research
We described comorbidities and the prevalence of multimorbidity in this population. We explored the relationship between multimorbidity and age, gender, ethnicity, severity of ID, socio‐economic status, physical activity, sedentary behaviour, fruit and vegetable consumption and smoking status using multiple logistic regression.ResultsThe prevalence of multimorbidity was 61.2% (95% CI 57.7 –64.7). Multimorbidity was independently associated with being female (P 
Source: Journal of Intellectual Disability Research - Category: Disability Authors: Tags: Original Manuscript Source Type: research
AbstractNeonatal seizures are the most common neurological event in newborns, showing higher prevalence in preterm than in full-term infants. In the majority of cases they represent acute symptomatic phenomena, the main etiologies being intraventricular haemorrhage, hypoxic-ischemic encephalopathy, central nervous system infections and transient metabolic derangements.Current definition of neonatal seizures requires detection of paroxysmal EEG-changes, and in preterm newborns the incidence of electrographic-only seizures seems to be particularly high, further stressing the crucial role of electroencephalogram monitoring in...
Source: Italian Journal of Pediatrics - Category: Pediatrics Source Type: research
ConclusionsThe findings suggest that the stigma associated with parenting a child with disabilities may be one mechanism that places such parents at risk for poor health. Efforts to alleviate the stigma associated with developmental disorders or mental health problems may have beneficial effects on health of parents of individuals with such conditions.
Source: Social Science and Medicine - Category: Psychiatry & Psychology Source Type: research
Neonatal seizures occur in 1.5 –3.5 per 1000 term live births, with a higher incidence (10–130 per 1000) in preterm live births. They often remain undiagnosed, accurate diagnosis is highly dependent upon clinical expertise and the availability of monitoring equipment. There is a strong association between neonatal seizures an d adverse neurodevelopmental outcome. Up to 50% of infants with seizures will go on to have some form of long term neurological sequelae, e.g. epilepsy, cerebral palsy, and/or intellectual disability.
Source: Paediatrics and Child Health - Category: Pediatrics Authors: Tags: Personal practice Source Type: research
CONCLUSIONS: Our results show that a diagnosis of confirmed isolated mild ventriculomegaly was associated with an increased risk of neurodevelopmental disorders compared to the reference population, but the absolute risk was low and there were no cases of intellectual disability or cerebral palsy. This article is protected by copyright. All rights reserved. PMID: 30168217 [PubMed - as supplied by publisher]
Source: The Ultrasound Review of Obstetrics and Gynecology - Category: Radiology Authors: Tags: Ultrasound Obstet Gynecol Source Type: research
ConclusionsThe long-term quality of life after paediatric intensive care is good for the majority of children and young people, and it is dependent on the number of chronic diagnoses and the burden of the chronic disease, especially neurological diseases.
Source: Intensive Care Medicine - Category: Intensive Care Source Type: research
Perinatal arterial ischaemic stroke (PAIS) affects between 1:2300 and 1:4000 births, so most paediatricians and neonatologists will see a number of cases during their working life. The exact cause of PAIS in an individual usually is unknown, and discussion may occur about whether prothrombotic investigations, aspirin or anticoagulation are needed. The causes, investigation and treatment of PAIS are completely different from stroke in the older paediatric and adult group. Outcome tends to be good, although cerebral palsy may be seen in up to 30% of cases, epilepsy in 15 –25% and cognitive problems may also occur.
Source: Paediatrics and Child Health - Category: Pediatrics Authors: Tags: Symposium: neonatology Source Type: research
Publication date: Available online 10 August 2018Source: Neurotoxicology and TeratologyAuthor(s): Takashi Yorifuji, Shigeru Takaoka, Philippe GrandjeanAbstractSevere methylmercury poisoning occurred in Minamata and neighboring communities in Japan during the 1950s and 1960s. A considerable number of children were born with conditions resembling cerebral palsy, later known as congenital Minamata disease. Although surviving patients are now in their 50s or 60s, few assessments of functional capacities in daily living have been performed. We assessed the changes in Activities of Daily Living (ADL) status of 11 patients over a...
Source: Neurotoxicology and Teratology - Category: Toxicology Source Type: research
CONCLUSIONS: The use of population registers allows a better knowledge of cerebral palsy as well as the evaluation and development of prevention strategies and optimization of care resources with objective data. It is necessary to generalize the use of this type of records in our environment. PMID: 30047119 [PubMed - in process]
Source: Revista de Neurologia - Category: Neurology Authors: Tags: Rev Neurol Source Type: research
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