A web-based psychological support program for caregivers of children with rare chronic diseases: a randomized controlled trial

Approximately 50% of rare diseases have symptom onset during childhood. A high level of nursing care and an often uncertain prognosis put caregivers of the affected children at high risk for psychological dist...

Source: Orphanet Journal of Rare Diseases - January 27, 2024 Category: Internal Medicine Authors: Dunja Tutus, Mandy Niemitz, Paul L. Plener, J örg M. Fegert, Christine Lehmann, Christa Weiss, Christine Knaevelsrud, Lisa Biehl and Miriam Rassenhofer Tags: Research Source Type: research