Co-constructing effective collective intelligence networks in rare diseases: a mixed method approach to identify the parameters that matter for patients, professionals and policy-makers, piloted in Cyprus
Rare diseases are a particular field of public health that is characterized by scattered, often insufficient knowledge and infrastructure. The scarcity of specialized knowledge often forces clinicians and pati...
Source: Orphanet Journal of Rare Diseases - Category: Internal Medicine Authors: Victoria Antoniadou and Adamos Hadjipanayis Tags: Research Source Type: research