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Inclusive, engaged, and accountable institutional review boards
Account Res. 2023 Jun 5:1-9. doi: 10.1080/08989621.2023.2220884. Online ahead of print.ABSTRACTIn February 2023, the U.S. Government Accountability Office (GAO) released another report acknowledging that we still lack meaningful, validated, widely-accepted measures for evaluating institutional review board (IRB) quality and effectiveness. This challenge is well known to the Consortium to Advance Effective Research Ethics Oversight (www.AEREO.org), a collaborative group of human research protection (HRP) professionals, researchers, and research ethicists founded in 2018 to do precisely what GAO recommends: examine approache...
Source: Accountability in Research - June 5, 2023 Category: Medical Ethics Authors: Emily E Anderson Ann Johnson Holly Fernandez Lynch Source Type: research

Promoting Equality in the Governance of Heritable Human Genome Editing through Ubuntu: Reflecting on a South African Public Engagement Study
Am J Bioeth. 2023 May 19:1-7. doi: 10.1080/15265161.2023.2207524. Online ahead of print.ABSTRACTIn a recent public engagement study on heritable human genome editing (HHGE) conducted among South Africans, participants approved of using HHGE for serious health conditions-viewing it as a means of bringing about valuable social goods-and proposed that the government should actively invest resources to ensure everyone has equal access to the technology for these purposes. This position was animated by the view that future generations have a claim to these social goods, and this entitlement justified making HHGE available in th...
Source: The American Journal of Bioethics : AJOB - May 19, 2023 Category: Medical Ethics Authors: Bonginkosi Shozi Donrich Thaldar Source Type: research

Cruzan after Dobbs: What Remains of the Constitutional Right to Refuse Treatment?
Hastings Cent Rep. 2023 Mar;53(2):9-11. doi: 10.1002/hast.1469.ABSTRACTIn 2022, the U.S. Supreme Court removed constitutional protection from the individual's right to end a pregnancy. In Dobbs v. Jackson Women's Health Organization, the Court invalidated previous rulings protecting that right as part of the individual liberty and privacy interests embedded in the U.S. Constitution. Now, many observers are speculating about the fate of other rights founded on those interests. The Dobbs ruling conflicts with the Court's 1990 Cruzan decision restricting the government's power to interfere with personal medical choices. The l...
Source: The Hastings Center Report - April 24, 2023 Category: Medical Ethics Authors: Rebecca Dresser Source Type: research

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