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1st Sitting Workshop for neuromuscular disorders Denmark, 30 September - 1 October 2019
From 30th September to 1st October 2019 a workshop was organized on sitting for persons with neuromuscular disorders, specifically focusing on Duchenne muscular dystrophy (DMD), Spinal muscular atrophy (SMA), congenital muscular dystrophy (CMD) and myopathy (CM), in Musholm Ferie-Sport-Konference in Kors ør, Denmark. Recruitment for occupational therapists was done in Western European countries; participating countries were Denmark, Norway, Sweden, Belgium, France and the Netherlands. A pre-workshop questionnaire was sent around concerning the use of standard evaluating methods and possible interve ntions.
Source: Neuromuscular Disorders - May 6, 2020 Category: Neurology Authors: Imelda JM de Groot, Ulla Werlauff, Working group Sitting in NMDs Tags: Workshop report Source Type: research

1st Sitting Workshop for Neuromuscular disorders. Denmark 30 September – 1 October 2019
From 30th September till 1st October 2019 a workshop was organized on sitting of persons with neuromuscular disorders, specifically focusing on Duchenne muscular dystrophy (DMD), Spinal muscular atrophy (SMA), congenital muscular dystrophy (CMD) and myopathy (CM), in Musholm Ferie-Sport- Konference in Kors ør, Denmark. Recruitment for occupational therapists was done in western European countries, participating countries were Denmark, Norway, Sweden, Belgium, France and the Netherlands. A pre-workshop questionnaire was send around concerning the use of standard evaluating methods and possible interve ntions.
Source: Neuromuscular Disorders - May 6, 2020 Category: Neurology Authors: Imelda JM de Groot, Ulla Werlauff, Working group sitting in NMD Tags: Workshop report Source Type: research

234th ENMC International Workshop: Chaperone dysfunction in muscle disease Naarden, The Netherlands, 8 –10 December 2017
Twenty participants from Australia, Belgium, Denmark, Finland, France, Germany, Italy, Israel, The Netherlands, Sweden, UK and the USA met in Naarden, The Netherlands from December 8th –10th, 2017. This group included clinicians, clinical trialists, basic scientists, industry and patient representatives. Patients were represented by the Muscular Dystrophy Association and Alexander's Way (BAG3 associated myopathy). The goals were to discuss the role of protein chaperones in norma l muscle function, muscle disease and future therapies.
Source: Neuromuscular Disorders - September 24, 2018 Category: Neurology Authors: Conrad C. Weihl, Bjarne Udd, Michael Hanna, on behalf of the ENMC workshop study group Tags: Workshop report Source Type: research

234th ENMC International Workshop: Chaperone dysfunction in muscle disease, December 8-10th 2017, Naarden, Netherlands
Twenty participants from Australia, Belgium, Denmark, Finland, France, Germany, Italy, Israel, The Netherlands, Sweden, UK and the USA met in Naarden, The Netherlands from December 8th-10th, 2017. This group included clinicians, clinical trialists, basic scientists, industry and patient representatives. Patients were represented by the Muscular Dystrophy Association and Alexander's Way (BAG3 associated myopathy). The goals were to discuss the role of protein chaperones in normal muscle function, muscle disease and future therapies.
Source: Neuromuscular Disorders - September 24, 2018 Category: Neurology Authors: Conrad C. Weihl, Bjarne Udd, Michael Hanna, Workshop Participants Tags: Workshop Report Source Type: research