What advancements can we celebrate 25 years after passage of the Americans with Disabilities Act?
Meltzer on ADA
Submitted by Ali on Tue, 07/07/2015 - 07:51
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Weir on ADA
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Source: PHRMA - July 2, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Jon Retzlaff
Managing Director of Science Policy and Government AffairsBefore joining the American Association for Cancer Research in 2010 as the managing director of science policy and government affairs, Jon Retzlaff led the health and biomedical practice for a government relations firm in Washington, D.C. Prior to these two positions, he served as legislative director for the Federation of American Societies for Experimental Biology from 2004-2007. Additionally, Retzlaff worked for the National Institutes of Health from 1993 to 2004 in various legislative and management positions, which also included being assigned to the House (199...
Source: PHRMA - June 18, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Hiers on Ryan White
Soon we will be celebrating the 25th anniversary of the Ryan White Act, which has saved and improved the lives of hundreds of thousands of persons living with HIV in the United States. We commemorate both the wisdom of the law, which was introduced by the late Senator Edward Kennedy to provide a safety net for low-income persons in need of HIV care, medications, and services, and the brave young advocate himself, Ryan White, who only wanted to be treated like a normal little boy. Instead he was expelled from his school; in response he became an activist for all people living with HIV. Ryan was diagnosed with HIV in 1...
Source: PHRMA - June 8, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Terry on Ryan White
The Ryan White CARE (Comprehensive AIDS Resources Emergency) Act has facilitated tremendous advancements in the treatment of HIV and AIDS, particularly with regard to connecting people living with HIV to care and keeping those individuals in care. Specifically, the development of Early Intervention Specialist (EIS) services and Medical Case Management (MCM) services have made a significant impact on low-income people living with HIV.
Appointments, transportation, childcare, navigating insurance fees and finding the appropriate medical provider can be difficult or even impossible for people living with HIV, whether they are...
Source: PHRMA - June 8, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Marvell Terry II
HIV/AIDS FellowMarvell Terry II has been living with HIV since 2007 – and advocating against stigma and for prevention and treatment for the last 10 years. In January, he joined the Human Rights Campaign Foundation as the HIV and AIDS Project Fellow, where he works to help those within the LGBT community who are most affected by HIV and AIDS.
Conversations ContributorsCompany: Human Rights CampaignRelated Conversation: What advancements in the treatment of HIV/AIDS should be celebrated during the anniversary of the Ryan White Care Act? (Source: PHRMA)
Source: PHRMA - June 8, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Schmid on Ryan White
When the Ryan White Care Act was passed 25 years ago, Congress was responding to a national health emergency that was overwhelming our Nation, particularly hospitals and health clinics in large urban areas. People were dying because there were no effective long lasting treatments and the only option was just AZT. Emergency funding was needed to help pay for hospital beds, doctors and nurses, drugs, hospice care, and the city and state public health systems that were struggling to respond to the epidemic.
A lot has changed since 1990 thanks to the courageous people living with HIV and their families and friends, who ...
Source: PHRMA - June 4, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
What advancements in the treatment of HIV/AIDS should be celebrated during the anniversary of the Ryan White Care Act?
Schmid on Ryan White
Submitted by Ali on Thu, 06/04/2015 - 04:13
When the Ryan White Care Act was passed 25 years ago, Congress was responding to a national health emergency that was overwhelming our Nation, particularly hospitals and health clinics in large urban areas. People were dying because there were no effective long lasting treatments and the only option was just AZT. Emergency funding was needed to help pay for hospital beds, doctors and nurses, drugs, hospice care, and the city and state public health systems that were struggling to respond to the epidemic. ...
Source: PHRMA - June 4, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Valdez on Nurses Week
With National Nurses Week concluding recently, I’m proud of the contribution my fellow nurses on the front lines do for the communities in which they serve each and every day. Our health care system is stronger because of nurses who continuously put the patient first.
From my experience, education is a gift which can be imparted on our patients. Underserved communities in particular appreciate the knowledge which nurses share and the sensitivity they take to make sure patients are informed. One challenge we often face is breaking down cultural barriers to get to the patients who need us most. Sometimes it means finding a...
Source: PHRMA - May 21, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Sonia Valdez
National SecretarySonia Valdez, BSN, RN, PHN, CVRN serves as a House Supervisor at St. Joseph Hospital in Orange, CA. There, she promotes and restores patients health by developing day-to-day management and long-term planning of the patient care area; directing and developing staff; collaborating with physicians and multidisciplinary professional staffs; providing physical and psychological support for patients, friends, and families. In addition to her daily duties serving patients, Sonia has been the National Secretary for the National Association of Hispanic Nurses Executive Board since 1997. She also serves as a member...
Source: PHRMA - May 21, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Brigner on National Nurse Week
As a nurse, I’ve found one of the most rewarding aspects of my profession and chosen path is the ability to advocate for patients not just at the bedside, but also at the policy table. Nurses are in the unique and privileged position of caring for patients holistically: before, after, and during treatment. This approach can be extended to the lawmaking process, where a nurse’s voice is valuable in communicating how new policy or regulatory proposals would impact not only the health care system but patients themselves, and their families.
In my career, I’ve had the honor of caring for patients during their time of nee...
Source: PHRMA - May 12, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Sharon Brigner, MS, RN
Deputy Vice President in State Government AffairsMs. Brigner is a Deputy Vice President in State Government Affairs for the Pharmaceutical Research and Manufacturers of America (PhRMA), a trade association in Washington, DC. She provides clinical expertise on legislation and key policy positions for her organization and works closely with the patient and provider community on access issues. For the past several years, Ms. Brigner worked on the weekends at her local INOVA Emergency Room in Reston, Virginia in addition to her work with PhRMA.
Previously, Ms. Brigner worked for the National Committee to Preserve Social ...
Source: PHRMA - May 12, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Barton-Burke on National Nurses Week
Like I do on every National Nurses Day, I pause and reflect. So much has changed in the past 33 years since the day was officially recognized and is celebrated by millions every year. Yet so much remains the same. Nurses are at the heart of caring for patients and their families. According to the annual Gallup Survey, nurses are the most trusted profession. They are integral partners in care coordination.
As a university professor, research scientist, public health advisor, and nurse activist, I celebrate National Nurses Day by looking to the future. Nurses of the past, such as Florence Nightingale, Clara Barton, and Dorot...
Source: PHRMA - May 12, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
How did you celebrate the important role nurses play in health care during National Nurses Week?
Barton-Burke on National Nurses Week
Submitted by Ali on Tue, 05/12/2015 - 04:08
Like I do on every National Nurses Day, I pause and reflect. So much has changed in the past 33 years since the day was officially recognized and is celebrated by millions every year. Yet so much remains the same. Nurses are at the heart of caring for patients and their families. According to the annual Gallup Survey, nurses are the most trusted profession. They are integral partners in care coordination.
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Source: PHRMA - May 12, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
Meunier on Clinical Research
The most important thing for a potential clinical trial volunteer to know about clinical research is how invaluable a contribution it is to participate.
Recruiting volunteers to participate in clinical trials is a well-known and enduring obstacle to research progress, and the effect is staggering: 85 percent of trials across all diseases face delays and 30 percent never even get off the ground due to low enrollment. And Parkinson’s disease (PD) trials are no exception – fewer than 10 percent of Parkinson’s patients participate.
Today, there are more promising Parkinson’s drugs in the development pipeline than we’...
Source: PHRMA - May 5, 2015 Category: Pharmaceuticals Authors: Ali Source Type: news
