Item response theory analysis applied to the Spanish version of the Personal Outcomes Scale
ConclusionsAs a result of this analysis, we must affirm that the administration of the POS, considering three sources of information, was adequate overall, but a correct interpretation of the results requires that it obtain much more information to consider, as well as some specific items in specific dimensions. The overall ratings, if these comments are considered, could result in bias. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 23, 2017 Category: Disability Authors: J. Gu àrdia‐Olmos, M. Carbó‐Carreté, M. Peró‐Cebollero, C. Giné Tags: Original Manuscript Source Type: research

‘At the end of the day, it is more important that he stays happy’: an interpretative phenomenological analysis of people who have a sibling with 22q11.2 deletion syndrome
ConclusionsThis phenomenological study provides a foundation for future research relating to 22q11.2DS and fostering family wellbeing, particularly around acceptance and psychological growth. The siblings in this study actively withdrew from their family to allow prioritisation of their affected sibling. However, this does not mean that their needs should be overlooked. There are easily accessible resources to support siblings of individuals with disabilities, and it is important for health professionals and parents to consider these options. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 17, 2017 Category: Disability Authors: J. Goodwin, S. Alam, L. E. Campbell Tags: Original Manuscript Source Type: research

Syndrome specific modules to enhance the Stepping Stones Triple P public health intervention
ConclusionsWe propose that enhancing SSTP with syndrome specific modules will increase the accessibility of support to families who have a child with a specific behaviour phenotype. We suggest that future research should confirm the public health impact of the modified SSTP programme using the RE‐AIM framework. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 17, 2017 Category: Disability Authors: L. A. Bezzina, L. J. Rice, P. Howlin, B. J. Tonge, S. L. Einfeld Tags: Commentary Source Type: research

Oral Abstracts
(Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 17, 2017 Category: Disability Tags: Abstract Source Type: research

Invited Speakers
(Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 17, 2017 Category: Disability Tags: Abstract Source Type: research

Genetic disorders and neurobehavioural phenotypes
(Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 17, 2017 Category: Disability Authors: S. Huijbregts, A. Jansen Tags: Editorial Source Type: research

False belief attribution in children with Williams syndrome: the answer is in the emotion
ConclusionCorrect answers to questions on emotion reveal an implicit understanding of false belief. The Representational redescription process could be impaired in the domain of ToM in this population. This finding has relevant implications for the design of supports aiming to optimise the development of ToM competences in individuals with WS. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 1, 2017 Category: Disability Authors: R. Campos, P. Mart ínez‐Castilla, M. Sotillo Tags: Original Manuscript Source Type: research

The construct of maternal positivity in mothers of children with intellectual disability
ConclusionsThese findings lend support to the importance of examining parental positivity in families raising a child with ID, and using multiple indicators of positivity. Associations with negative psychological outcomes suggest that interventions focused on increasing parental positivity may have beneficial effects for parents. Further research is needed, especially in relation to such interventions. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 1, 2017 Category: Disability Authors: M. Jess, R. P. Hastings, V. Totsika Tags: Original Manuscript Source Type: research

Spanish validation of the PAS ‐ADD Checklist Questionnaire for people with intellectual disabilities for Spanish population
ConclusionsThe PAS‐ADD Checklist is a feasible and reliable instrument for carrying out initial assessment of the mental health status of adults with intellectual disabilities, referring cases to more specialised diagnosis and treatment. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 27, 2017 Category: Disability Authors: A. Martorell, M. C. Gonz ález, P. Gutiérrez, F. Rincón, M. H. Núñez‐Polo Tags: Mental Health Source Type: research

A comparison between linguistic skills and socio ‐communicative abilities in Williams syndrome
ConclusionsOur results underlined the importance of assessing linguistic abilities in the context of adaptive functioning, to guide educational and rehabilitative strategies for individuals with WS. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 26, 2017 Category: Disability Authors: P. Alfieri, D. Menghini, L. Marotta, L. De Peppo, L. Rav à, F. Salvaguardia, C. Varuzza, S. Vicari Tags: Original Manuscript Source Type: research

A cross ‐sectional analysis of executive function in Down syndrome from 2 to 35 years
ConclusionsThis study extends previous research on EF in DS by providing an initial description of EF profiles across the lifespan. More longitudinal and behavioural research is needed to further characterise the development of EF in DS. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 20, 2017 Category: Disability Authors: S. J. Loveall, F. A. Conners, A. S. Tungate, L. J. Hahn, T. D. Osso Tags: Original Manuscript Source Type: research

Reciprocity in autistic and typically developing children and adolescents with and without mild intellectual disabilities
This study explored differences in reciprocal behaviour of 35 children and adolescents with MID (intelligence quotient 50–85): 15 with ASD (ASD‐MID) and 20 with typical development (TD‐MID) using the Interactive Drawing Test (IDT). ASD‐MID participants showed a lower quality of reciprocal behaviour compared with TD‐MID participants. The difference in quality of reciprocal behaviour between ASD‐MID and TD‐MID participants was not significantly related with Peabody Picture Vocabulary Test scores and thus not attributable to verbal capacity. The IDT is likely to reflect the child's inclination to display rec...
Source: Journal of Intellectual Disability Research - July 13, 2017 Category: Disability Authors: T. Backer van Ommeren, H. M. Koot, S. Begeer Tags: Original Manuscript Source Type: research

The feasibility of using pedometers for self ‐report of steps and accelerometers for measuring physical activity in adults with intellectual and developmental disabilities across an 18‐month intervention
ConclusionsAdults with IDD will adhere reasonably well to wearing a pedometer long term, but may be unable to record the step data accurately. Furthermore, adults with IDD have poor compliance with accelerometer protocols, and future studies should determine if a shorter wear time protocol would produce valid data in this population. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 13, 2017 Category: Disability Authors: L. T. Ptomey, E. A. Willis, J. Lee, R. A. Washburn, C. A. Gibson, J. J. Honas, J. E. Donnelly Tags: Original Manuscript Source Type: research

Intellectual disability in children aged less than seven years born moderately and late preterm compared with very preterm and term ‐born children – a nationwide birth cohort study
Abstract BackgroundPrematurity has been shown to be associated with an increased risk of intellectual disability (ID). MethodThe aim was to establish whether the prevalence of ID, defined as significant limitations in both intellectual (intelligence quotient below 70) and adaptive functioning among moderately preterm (MP; 32+0–33+6 weeks) and late preterm (LP; 34+0–36+6 weeks) infants, is increased compared with that in term infants (≥37+0 weeks). Antenatal and neonatal risk factors for ID among gestational age groups were sought. The national register study included all live‐born infants in...
Source: Journal of Intellectual Disability Research - July 1, 2017 Category: Disability Authors: M. Hirvonen, R. Ojala, P. Korhonen, P. Haataja, K. Eriksson, K. Rantanen, M. Gissler, T. Luukkaala, O. Tammela Tags: Original Manuscript Source Type: research

Prevalence of hypertension and prehypertension in children and adolescents with intellectual disability in southeastern Poland
ConclusionThe prevalence of HPT among students with ID was more than three times higher than in the general population. The level of ID, age, sex and body mass significantly correlated with HPT in the study group. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - July 1, 2017 Category: Disability Authors: J. Wyszy ńska, J. Podgórska‐Bednarz, J. Leszczak, A. Mazur Tags: Original Manuscript Source Type: research

A prospective 20 ‐year longitudinal follow‐up of dementia in persons with Down syndrome
ConclusionThe previously reported high risk levels for dementia among people with Down syndrome were confirmed in this data as was the relationship with late onset epilepsy. The value of the instruments utilised in tracking decline and helping to confirm diagnosis is further highlighted. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - June 30, 2017 Category: Disability Authors: M. McCarron, P. McCallion, E. Reilly, P. Dunne, R. Carroll, N. Mulryan Tags: Original Manuscript Source Type: research

Prevalence, patterns and factors associated with psychotropic use in older adults with intellectual disabilities in Ireland
ConclusionsPsychotropic use and polypharmacy were commonplace for older adults with ID. Psychotropic use, particularly the use of psychotropic combinations, needs to be regularly reviewed for safety, efficacy and adverse effects, and rationale for use of multiple agents needs to be clear and documented. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - June 22, 2017 Category: Disability Authors: M. O'Dwyer, J. Peklar, N. Mulryan, P. McCallion, M. McCarron, M. C. Henman Tags: Original Manuscript Source Type: research

Sleep ‐disordered breathing and cognitive functioning in preschool children with and without Down syndrome
ConclusionsThe findings in the TD group support our hypotheses. We recommend that sleep problems are screened for and treated as even mild SDB may prompt poorer cognition and behaviour. For children with DS, we expect that multiple factors in this complex syndrome mask or mediate the association between sleep and cognitive development and tighter controls are necessary to uncover effects of sleep. We propose longitudinal studies as a necessary tool to assess the precise impact of sleep on cognitive development in accounting for individual differences in DS. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - June 14, 2017 Category: Disability Authors: A. Joyce, D. Dimitriou Tags: Original Manuscript Source Type: research

Association between speech –language, general cognitive functioning and behaviour problems in individuals with Williams syndrome
ConclusionsAssociations reported in the present study may represent an insightful background for future predictive studies of speech–language, cognition and behaviour problems in WS. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - June 13, 2017 Category: Disability Authors: N. F. Rossi, C. M. Giacheti Tags: Original Manuscript Source Type: research

Inter ‐rater reliability of professional‐caregiver‐reported life events in adults with intellectual disabilities
ConclusionsInter‐rater reliability in general was found to be acceptable. Further development and research are needed to improve the reliability of life event measures for more severe ID. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - June 13, 2017 Category: Disability Authors: O. Hove, J. Assmus, K. Braatveit, O. E. Havik Tags: Original Manuscript Source Type: research

How HIV affects health and service use for adults with intellectual and developmental disabilities
DiscussionAdults with IDD and HIV have complex health profiles and greater health service use than HIV‐negative adults with IDD. These findings call for closer integration of programs delivered by the HIV and disability sectors to optimise the health of this patient population. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - June 13, 2017 Category: Disability Authors: A. Durbin, H. K. Brown, S. Bansal, T. Antoniou, J. K. H. Jung, Y. Lunsky Tags: Original Manuscript Source Type: research

Autism awareness in children and young people: surveys of two populations
ConclusionsChildren and young people have good levels of awareness and knowledge about autism and reported positive attitudes towards peers with autism and are willing to help those who are bullied. A higher than expected number of children and young people self‐reported being on the autism spectrum. These findings bode well for peer‐mediated support strategies for inclusive education. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - June 1, 2017 Category: Disability Authors: K. Dillenburger, J. ‐A. Jordan, L. McKerr, K. Lloyd, D. Schubotz Tags: Original Manuscript Source Type: research

Wii ‐based exercise program to improve physical fitness, motor proficiency and functional mobility in adults with Down syndrome
ConclusionsOur findings suggest that Wii‐based exercise can be an effective tool to improve physical fitness, functional mobility and motor proficiency of adults with DS, including crucial measures such as aerobic capacity and lower limb strength. Exergames using Wii Fit or other equipment can be appealing alternatives for adults with DS to engage in regular physical activity, preventing sedentary behaviour and decreasing the risk to develop cardiovascular diseases. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - June 1, 2017 Category: Disability Authors: V. Silva, C. Campos, A. S á, M. Cavadas, J. Pinto, P. Simões, S. Machado, E. Murillo‐Rodríguez, N. Barbosa‐Rocha Tags: Original Manuscript Source Type: research

Offenders with intellectual disabilities in prison: what happens when they leave?
ConclusionsCommunity teams need to provide better support to this very vulnerable group. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - June 1, 2017 Category: Disability Authors: G. H. Murphy, P. Chiu, P. Triantafyllopoulou, M. Barnoux, E. Blake, J. Cooke, R. V. E. Forrester ‐Jones, N. J. Gore, J. K. Beecham Tags: Original Manuscript Source Type: research

Physicians' reasons not to discontinue long ‐term used off‐label antipsychotic drugs in people with intellectual disability
ConclusionsThe prevalence of antipsychotic drug use for off‐label indications in people with ID remains high. The results of this study indicate that there is a large variation in clinical practice of physicians regarding discontinuation of long‐term antipsychotic drug prescriptions, which may be partially related to environmental factors as setting culture and attitudes of staff towards off‐label antipsychotic drug use in persons with ID. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - May 31, 2017 Category: Disability Authors: G. M. Kuijper, P. J. Hoekstra Tags: Original Manuscript Source Type: research

Type 2 diabetes and glucose intolerance in a population with intellectual disabilities: the STOP diabetes cross ‐sectional screening study
ConclusionsResults from this large multi‐ethnic cohort suggest a low prevalence of screen‐detected (previously undiagnosed) type 2 diabetes and impaired glucose regulation in adults with ID. However, the high levels of overweight and obesity we found emphasise the need for targeted lifestyle prevention strategies, which are specifically tailored for the needs of people with ID. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - May 22, 2017 Category: Disability Authors: A. J. Dunkley, F. Tyrer, L. J. Gray, S. Bhaumik, R. Spong, Y. Chudasama, S. ‐A. Cooper, S. Ganghadaran, M. Davies, K. Khunti Tags: Original Manuscript Source Type: research

Prognostic models for identifying adults with intellectual disabilities and mealtime support needs who are at greatest risk of respiratory infection and emergency hospitalisation
ConclusionsOur findings highlight the importance of carefully monitoring health issues experienced by adults with ID and EDS problems, as well as their eating, drinking and swallowing skills. However, the models developed in this exploratory research require validation through future studies addressing the EDS problems commonly experienced by adults with ID and their implications for health outcomes and quality of life. Further research into the relationship between epilepsy and EDS problems would provide much‐needed insight into the complex relationship between the two areas. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - May 12, 2017 Category: Disability Authors: C. M. Perez, A. P. Wagner, S. L. Ball, S. R. White, I. C. H. Clare, A. J. Holland, M. Redley Tags: Original Manuscript Source Type: research

New horizons for mental health research in intellectual disabilities
(Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - May 11, 2017 Category: Disability Authors: Andr é Strydom, Craig Melville Tags: Editorial Source Type: research

Optimism and positive and negative feelings in parents of young children with developmental delay
ConclusionResults suggest that optimism may impact how parents perceive their children with DD. Future research should examine how positive and negative feelings impact positive parenting behaviour and the trajectory of problem behaviour specifically for children with DD. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - April 26, 2017 Category: Disability Authors: E. Kurtz ‐Nelson, L. L. McIntyre Tags: Brief Report Source Type: research

Clinical and genetic aspects of the 15q11.2 BP1 –BP2 microdeletion disorder
ConclusionsThe summarised results indicate that chromosome 15q11.2 BP1–BP2 microdeletion is emerging as one of the most common cytogenetic abnormalities seen in individuals with intellectual impairment, autism spectrum disorder and other related behavioural or clinical findings, but more research is needed. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - April 7, 2017 Category: Disability Authors: M. G. Butler Tags: Original Manuscript Source Type: research

A randomised controlled trial on evaluation of the clinical efficacy of massage therapy in a multisensory environment for residents with severe and profound intellectual disabilities: a pilot study
ConclusionsParticipants of MT in multisensory environment acquired more inactive state than the other study groups. This inactive state indicates a state of ‘passive alertness’, which is more likely in a relaxing manner. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - April 7, 2017 Category: Disability Authors: J. S. L. Chan, W. T. Chien Tags: Original Manuscript Source Type: research

Investigating the factors that affect the communication of death ‐related bad news to people with intellectual disabilities by staff in residential and supported living services: An interview study
ConclusionsService managers should ensure not only that all their staff receive training in death, loss and communication but also that staff are enabled to reflect on their practice, through emotional support, supervision and team discussions. Future work should focus on the development and testing of strategies to enable intellectual disability staff to support their clients in the areas of dying, death and bereavement. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - April 1, 2017 Category: Disability Authors: I Tuffrey ‐Wijne, T Rose Tags: Original Manuscript Source Type: research

A nationwide, cross ‐sectional survey on unusual sleep postures and sleep‐disordered breathing‐related symptoms in people with Down syndrome
ConclusionsOur study shows that there is a close relationship between unusual sleep postures and SDB‐RSs. We recommend that all people with DS with unusual sleep postures should be checked for the presence of SDB. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - April 1, 2017 Category: Disability Authors: H. Kuroda, H. Sawatari, S. Ando, T. Ohkusa, A. Rahmawati, J. Ono, M. Nishizaka, N. Hashiguchi, F. Matsuoka, A. Chishaki Tags: Original Manuscript Source Type: research

Parental attributions for positive behaviours in children with autism spectrum disorder
ConclusionsInterventions that alter parental attributions may offer pathways to increase closeness in the parent–child relationship. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - March 23, 2017 Category: Disability Authors: P. Bussanich, S. L. Hartley, D. Bolt Tags: Original Manuscript Source Type: research

Prevalence, types and associations of medically unexplained symptoms and signs. A cross ‐sectional study of 1023 adults with intellectual disabilities
ConclusionsPeople with ID have substantial additional unexplained symptoms and signs, some of which are painful or disabling. These findings should inform the content of health checks undertaken for adults with intellectual disabilities, which should not just focus on management of their long‐term conditions and health promotion. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - March 10, 2017 Category: Disability Authors: M. Osugo, J. Morrison, L. Allan, D. Kinnear, S. ‐A. Cooper Tags: Original Manuscript Source Type: research

Childhood predictors of written expression in late adolescents with 22q11.2 deletion syndrome: a longitudinal study
ConclusionsChildhood predictors of late adolescent written expression in 22q11DS differ in meaningful ways from predictors in the non‐22q11DS population. These results offer some guidance on the underlying factors that may be useful to consider when developing written expression interventions for children with 22q11DS. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - March 9, 2017 Category: Disability Authors: N. Hamsho, K. M. Antshel, T. L. Eckert, W. R. Kates Tags: Original Manuscript Source Type: research

Measuring choice for adults with an intellectual disability – a factor analysis of the adapted daily choice inventory scale
ConclusionTwo broad types of choice were found to exist for adults with ID – everyday decisions and key life decisions. In addition, the factor analysis support for the inclusion of a ‘no choice’ response may help reduce the potential for missing data. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - March 8, 2017 Category: Disability Authors: M. ‐A. O'Donovan, E. Byrne, P. McCallion, M. McCarron Tags: Original Manuscript Source Type: research

Problem behaviour and psychosocial functioning in young children with Williams syndrome: parent and teacher perspectives
DiscussionSome aspects of problem behaviour evident in older children (e.g. attention problems, social problems) are also apparent for young children with WS, while other areas are less prominent (e.g. anxiety). The implications of the findings for understanding the behavioural phenotype associated with WS are discussed. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - March 8, 2017 Category: Disability Authors: B. P. Klein ‐Tasman, K. Lee Tags: Special Issue Source Type: research

Rigidity in routines and the development of resistance to change in individuals with Prader –Willi syndrome
ConclusionBecause task switching appears to evidence a period of high developmental sensitivity during early primary school years, we propose that this period may represent a critical time when increasing flexibility in the routines of children with PWS could limit the development of resistance to change. However, a careful balance would need to be struck, given the apparent benefit of rigid routines on current behaviour. Further work in this area is much needed. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - March 7, 2017 Category: Disability Authors: E. L. Haig, K. A. Woodcock Tags: Original Manuscript Source Type: research

Estimates of live birth prevalence of children with Down syndrome in the period 1991 –2015 in the Netherlands
ConclusionsIn spite of expansion of antenatal screening in the Netherlands in the 1990s and early 2000s, actual DS LB prevalence increased during this period. However, after 2002, this trend reversed, probably because of informing all pregnant women about prenatal testing since 2004 and the implementation of a national screening program in 2007. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 28, 2017 Category: Disability Authors: G. Graaf, J. J. M. Engelen, A. C. J. Gijsbers, R. Hochstenbach, M. J. V. Hoffer, A. J. A. Kooper, B. Sikkema ‐Raddatz, M. I. Srebniak, A. M. F. Kevie‐Kersemaekers, L. J. C. M. Zutven, E. Voorhoeve Tags: Original Manuscript Source Type: research

The Outcomes and Impact Scale – Revised: the psychometric properties of a scale assessing the impact of service provision
ConclusionsThe O&IS‐R is a psychometrically sound scale that can be used in service and research settings to measure the impact of services and supports. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 28, 2017 Category: Disability Authors: S. Koritsas, N. Hagiliassis, C. Cuzzillo Tags: Original Manuscript Source Type: research

Improving diabetes care for people with intellectual disabilities: a qualitative study exploring the perceptions and experiences of professionals in diabetes and intellectual disability services
ConclusionsThe findings of this study have important international implications in how diabetes practitioners plan and deliver services for people with ID and other vulnerable groups with limited cognitive ability and communication skills and difficulties in self‐management. The findings highlight that access to diabetes education and adapted resources is needed, and if ‘reasonable adjustments’ are made to service provision and practice, people with ID can benefit from improved healthcare. Developing joint clinics to share knowledge and resources between diabetes and ID practitioners may improve service deliv...
Source: Journal of Intellectual Disability Research - February 28, 2017 Category: Disability Authors: M. Brown, L. Taggart, T. Karatzias, M. Truesdale, R. Walley, R. Northway, S. Macrae, M. Carey, M. Davies Tags: Original Manuscript Source Type: research

The applicability of bright light therapy in adults with moderate, severe or profound intellectual disabilities: a brief report
ConclusionsBright light therapy is applicable in adults with moderate, severe of profound ID. Its effectiveness as a treatment for depression in adults with ID should be further studied. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 22, 2017 Category: Disability Authors: H. Hermans, N. Soerokromo, H. Evenhuis Tags: Brief Report Source Type: research

Mainstream health professionals' stigmatising attitudes towards people with intellectual disabilities: a systematic review
ConclusionsStigmatising attitudes towards people with ID appeared to be present among mainstream health professionals. This might affect the ongoing challenges regarding inclusion in mainstream healthcare services. To facilitate inclusion in mainstream healthcare services, it is recommended to include contact and collaboration with experts‐by‐experience in education programs of health professionals. Future research should progress beyond descriptive accounts of stigma towards exploring relationships between cognitive, affective and behavioural dimensions as pointers for intervention. Finally, inclusion would benefit fr...
Source: Journal of Intellectual Disability Research - February 15, 2017 Category: Disability Authors: H. A. Pelleboer ‐Gunnink, W. M. W. J. Van Oorsouw, J. Van Weeghel, P. J. C. M. Embregts Tags: Original Manuscript Source Type: research

Distinguishing subtypes of extrinsic motivation among people with mild to borderline intellectual disability
ConclusionsOverall, the results of the current study provide initial evidence for the universality of the four subtypes of extrinsic motivation across populations with and without ID. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 10, 2017 Category: Disability Authors: N. Frielink, C. Schuengel, P. Embregts Tags: Original Manuscript Source Type: research

Where is the ‘subjective straight ahead’ in Williams syndrome?
ConclusionsIndividuals with WS showed a significant leftward deviation in the SSA task. This bias of the body's longitudinal axe representation could have a negative impact on the use of an egocentric reference system, which could be the cause for their difficulties in defining spatial relations (e.g. location and orientation) necessary for performing spatial tasks. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - February 9, 2017 Category: Disability Authors: A. Saj, J. Heiz, K. Barisnikov Tags: Brief Report Source Type: research

The nature and prevalence of catatonic symptoms in young people with autism
ConclusionCatatonic symptoms are more prevalent in young people with autism than previously thought, and the Attenuated Behaviour Questionnaire has potential as a clinical and research tool. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 31, 2017 Category: Disability Authors: J. Breen, D. J. Hare Tags: Original Manuscript Source Type: research

Development and psychometric properties of the Psychological Therapies Outcome Scale – Intellectual Disabilities (PTOS‐ID)
ConclusionsThis preliminary study suggests that the PTOS‐ID is a psychometrically robust measure of psychological distress and psychological well‐being that can be used with people with ID. Further research is required to assess its reliability and ability to detect change. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 26, 2017 Category: Disability Authors: N Vlissides, N Beail, T Jackson, K Williams, L Golding Tags: Mental Health Source Type: research

Nidotherapy compared with enhanced care programme approach training for adults with aggressive challenging behaviour and intellectual disability (NIDABID): cluster ‐randomised controlled trial
DiscussionNidotherapy shows promise in the management of aggressive challenging behaviour in care homes, but a delay in its benefit might be expected if given to staff only. The treatment is worthy of further evaluation and development. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 25, 2017 Category: Disability Authors: P. Tyrer, S. A. Tarabi, P. Bassett, N. Liedtka, R. Hall, J. Nagar, A. Imrie, H. Tyrer Tags: Original Manuscript Source Type: research

Primary health care for people with an intellectual disability: an exploration of consultations, problems identified, and their management in Australia
ConclusionThe significant differences in consultations, problems identified and managed suggest that GPs may require additional support to (1) identify and manage common medical conditions experienced by people with an ID; (2) manage the increased time required for consultations; and (3) directly consult with people with an ID. Further research is required to determine why GPs managed problems in a significantly different way for people with an ID. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 24, 2017 Category: Disability Authors: J. Weise, A. Pollack, H. Britt, J. N. Trollor Tags: Original manuscript Source Type: research