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Prevalence and patterns of anti ‐epileptic medication prescribing in the treatment of epilepsy in older adults with intellectual disabilities
ConclusionsPrevalence of epilepsy was high among older people with ID, and half were exposed to two or more AEDs. Despite the use of AED therapy, over half had seizures in the previous 2 years. As the primary goals of optimal AED treatment are to achieve seizure freedom without unacceptable adverse effects, this was not achievable for many older patients with ID and epilepsy. Our findings indicated that people with ID and epilepsy were often exposed to psychotropic medications that may lower the seizure threshold. Regular review of epilepsy and medicines (including medicines that may interact with AEDs or lower the se...
Source: Journal of Intellectual Disability Research - January 5, 2018 Category: Disability Authors: M. O'Dwyer, J. Peklar, N. Mulryan, P. McCallion, M. McCarron, M. C. Henman Tags: Original Manuscript Source Type: research

Convergent validity of actigraphy with polysomnography and parent reports when measuring sleep in children with Down syndrome
ConclusionOur current data suggest that actigraph watches demonstrate convergent validity and are sensitive to measuring certain sleep constructs (duration, efficiency) in children with Down syndrome. However, parent reports, such as the Children's Sleep Habits Questionnaire, may be measuring other sleep constructs. These findings highlight the importance of selecting measures of sleep related to target concerns. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - January 1, 2018 Category: Disability Authors: A. J. Esbensen, E. K. Hoffman, E. Stansberry, R. Shaffer Tags: Original Manuscript Source Type: research

The Spanish version of the Self ‐Determination Inventory Student Report: application of item response theory to self‐determination measurement
ConclusionsThese findings further support the instrument's psychometric properties and outline future research directions. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 28, 2017 Category: Disability Authors: C. Mumbard ó‐Adam, J. Guàrdia‐Olmos, C. Giné, S. K. Raley, K. A. Shogren Tags: Original Manuscript Source Type: research

Links between sleep and daytime behaviour problems in children with Down syndrome
ConclusionThe study findings suggest that sleep problems have complex relationships to both parent‐reported and teacher‐reported daytime behaviour concerns in children with Down syndrome. These findings have implications for understanding the factors impacting behavioural concerns and their treatment in school‐age children with Down syndrome. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 28, 2017 Category: Disability Authors: A. J. Esbensen, E. K. Hoffman, D. W. Beebe, K. C. Byars, J. Epstein Tags: Original Manuscript Source Type: research

High prevalence of diabetes mellitus, hypertension and obesity among persons with a recorded diagnosis of intellectual disability or autism spectrum disorder
ConclusionsDiabetes and blood pressure health screening, along with efforts to prevent development of obesity already in childhood, are necessary for individuals with IDs and ASD. We believe that there is a need for adapted community‐based health promotion programmes to ensure more equitable health for these populations. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 27, 2017 Category: Disability Authors: E. Flygare Wall én, G. Ljunggren, A. C. Carlsson, D. Pettersson, P. Wändell Tags: Original Manuscript Source Type: research

A systematic review and meta ‐analysis of interventions to increase physical activity in children and adolescents with intellectual disabilities
Abstract BackgroundIncreasing physical activity (PA) through intervention can promote physical and mental health benefits in children and adolescents. However, children and adolescents with intellectual disabilities (ID) have consistently been shown to engage in low levels of PA, which are insufficient for long‐term health. Despite this, little is known about the effectiveness of interventions to increase PA in children and adolescents with ID. The aims of this study were therefore to systematically review how effective interventions are at increasing PA levels in children and adolescents with ID and to further examine w...
Source: Journal of Intellectual Disability Research - December 26, 2017 Category: Disability Authors: A. M. McGarty, S. J. Downs, C. A. Melville, L. Harris Tags: Original Manuscript Source Type: research

7q11.23 microduplication syndrome: neurophysiological and neuroradiological insights into a rare chromosomal disorder
ConclusionTaken together, we enlarged the yet‐underrepresented cohort in the literature of patients affected by 7q11.23 microduplication syndrome and shed further light on neuroradiological and neurophysiological aspects of this rare genetic syndrome. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 20, 2017 Category: Disability Authors: L. Castiglia, R.A. Husain, I. Marquardt, C. Fink, T. Liehr, D. Serino, M. Elia, E.G. Coci Tags: Original Manuscript Source Type: research

Participation in school ‐related activities that require hand use for children with and without developmental disabilities
This study specifically focused on physical engagement in school‐related activities that require hand use for the comparison between this group of children with DD and typically developing children. MethodsThe sample consisted of 97 children with DD who attended special schools (mean age 8.2 ± 2.9 years; 60 boys and 37 girls) and 105 typically developing children who attended mainstream schools/kindergartens (mean age 8.6 ± 2.4 years; 48 boys and 57 girls). Parents completed the Children's Assessment of Participation with Hands, one of the domains of which captures participatio...
Source: Journal of Intellectual Disability Research - December 18, 2017 Category: Disability Authors: M. Cho, S. Rodger, J. Copley, C. ‐W. Chien Tags: Brief Report Source Type: research

Corrigendum
(Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 7, 2017 Category: Disability Tags: Corrigendum Source Type: research

A population ‐based, cross‐sectional study of the prevalence and correlates of sedentary behaviour of adults with intellectual disabilities
ConclusionsThis is the first study to publish population‐based data on the prevalence and correlates of sedentary behaviour in adults with ID. Compared with adults who do not have ID, adults with ID have higher levels, and different correlates, of sedentary behaviour. A better understanding of the social context of sedentary behaviour will inform the design of effective behaviour change programmes for adults with ID. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 7, 2017 Category: Disability Authors: C. A. Melville, A. McGarty, L. Harris, L. Hughes ‐McCormack, M. Baltzer, L. A. McArthur, J. Morrison, L. Allan, S.‐A. Cooper Tags: Original Manuscript Source Type: research

Skin injuries and joint contractures of the upper extremities in Rett syndrome
ConclusionAlmost half of the Rett syndrome subjects assessed in the present study had skin injuries and joint contractures. Especially, the incidence of joint contractures was affected by age and disease severity. Thus, it is important that medical staff attempt to prevent the occurrence of skin injuries and joint contractures in this patient population. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 7, 2017 Category: Disability Authors: D. Hirano, T. Taniguchi Tags: Original Manuscript Source Type: research

Adaptive behaviour, executive function and employment in adults with Down syndrome
ConclusionsSpecific aspects of the DS cognitive profile may have an important influence on employment status in primarily young adults with DS. Implications for interventions are discussed. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 7, 2017 Category: Disability Authors: B. Tomaszewski, D. Fidler, D. Talapatra, K. Riley Tags: Original Manuscript Source Type: research

Issue Information
(Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - December 7, 2017 Category: Disability Tags: Issue Information Source Type: research

Coaching parents to assess and treat self ‐injurious behaviour via telehealth
Abstract The application of telehealth technology to conduct functional analysis (FA) and functional communication training (FCT) is emerging for children with developmental disabilities and behaviour support needs. The current study was designed to extend FA + FCT for self‐injurious behaviour by using telehealth in home with parents as interventionists receiving real‐time remote coaching. Two families with school‐aged boys with developmental disabilities associated with intellectual disability participated, one with cerebral palsy and the other with autism spectrum disorder. Results indicated that parent...
Source: Journal of Intellectual Disability Research - December 5, 2017 Category: Disability Authors: S. S. Benson, A. F. Dimian, M. Elmquist, J. Simacek, J. J. McComas, F. J. Symons Tags: Original Manuscript Source Type: research

Fundamental movement skills and balance of children with Down syndrome
This study therefore examined the relationship between FMS proficiency and balance ability in children with DS, with the aim of contributing evidence to programmes that address FMS delay. MethodsParticipants consisted of 20 children with DS (7.1 ± 2.9 years old) and an age‐matched control group of children with typical development (7.25 ± 2.5 years). In the first part of the study, FMS (i.e. locomotor and object control) proficiency of the children was tested using the Test of Gross Motor Development‐2. Balance ability was assessed using a force platform to measure centre of ...
Source: Journal of Intellectual Disability Research - December 1, 2017 Category: Disability Authors: C. M. Capio, T. C. T. Mak, M. A. Tse, R. S. W. Masters Tags: Original Manuscript Source Type: research

Quality improvement of physical health monitoring for people with intellectual disabilities: an integrative review
(Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 29, 2017 Category: Disability Authors: J. Edwards, F. Mold, D. Knivett, P. Boulter, M. Firn, N. Carey Tags: Original Manuscript Source Type: research

Intellectual disability is a risk factor for delayed emergence from total intravenous anaesthesia
ConclusionOur results suggest that ID is associated with a longer emergence time from GA. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 29, 2017 Category: Disability Authors: H. Higuchi, S. Maeda, M. Ishii ‐Maruhama, Y. Honda‐Wakasugi, A. Yabuki‐Kawase, T. Miyawaki Tags: Original Manuscript Source Type: research

Adults with intellectual disabilities in China: comorbid psychiatric disorder and its association with health service utilisation
ConclusionsThe prevalence of psychiatric disorder in adults with ID was strikingly higher than that in the general population. Health service utilisation among Chinese adults with ID remained a big challenge. There is a possibility of diagnostic overshadowing by local clinicians, which may have resulted in overdiagnosis of dementia and underdiagnosis of common mental disorders. This study informs further investigations regarding common mental disorders among people with ID and has implications for public health strategies and health policies to meet health service need for this population. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 27, 2017 Category: Disability Authors: P. He, G. Chen, Z. Wang, C. Guo, N. Li, C. Yun, X. Zheng Tags: Original Manuscript Source Type: research

Salivary α‐amylase as a marker of stress reduction in individuals with intellectual disability and autism in response to occupational and music therapy
ConclusionsNot only do these results confirm the stress‐reducing nature of two types of multisensory therapy, but they support the use of sAA as a potential tool for evaluating stress levels in individuals with intellectual disability and autism spectrum disorder, providing an important physiological lens that may guide strategies in clinical and non‐clinical care for individuals with disabilities. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 21, 2017 Category: Disability Authors: J. Poqu érusse, A. Azhari, P. Setoh, S. Cainelli, C. Ripoli, P. Venuti, G. Esposito Tags: Brief Report Source Type: research

Verbal short ‐term memory shows a specific association with receptive but not productive vocabulary measures in Down syndrome
ConclusionsIn Down syndrome, verbal STM abilities may be predictive of specific task demands associated with receptive vocabulary tasks rather than of vocabulary development per se. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 20, 2017 Category: Disability Authors: S. Majerus, K. Barisnikov Tags: Original Manuscript Source Type: research

The experience of sexuality in adults with intellectual disability
ConclusionIn conclusion, there is a need to draw up educational programmes, differentiated according to gender and adapted to their reality, which include contents related with sexual health, sexual abuse and condom use. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 20, 2017 Category: Disability Authors: M. D. Gil ‐Llario, V. Morell‐Mengual, R. Ballester‐Arnal, I. Díaz‐Rodríguez Tags: Original Manuscript Source Type: research

Corrigendum
(Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 20, 2017 Category: Disability Tags: Corrigendum Source Type: research

Characteristics of prisoners with intellectual disabilities
ConclusionsThe findings confirm the presence of significant numbers of people with ID with high levels of mental illness in a male prison. Services across the CJS are required for this group, specifically, there is a need for raised awareness among those working in prison about ID and improved skills to recognise offenders with ID and address major gaps in current healthcare provision in prison. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 20, 2017 Category: Disability Authors: E. Chaplin, J. McCarthy, L. Underwood, A. Forrester, H. Hayward, J. Sabet, R. Mills, S. Young, P. Asherson, D. Murphy Tags: Original Manuscript Source Type: research

Does differential visual exploration contribute to visual memory impairments in 22q11.2 microdeletion syndrome?
ConclusionsThis study is the first to investigate visual attention in 22q11.2DS during a memory task. The results delineate impaired processes during encoding that affect visual memory performance. The findings may be especially useful for informing interventions intended to boost visual learning in patients with 22q11.2DS. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 20, 2017 Category: Disability Authors: M. Bostelmann, B. Glaser, A. Zaharia, S. Eliez, M. Schneider Tags: Original Manuscript Source Type: research

Can interpersonal contact help improve attitudes toward soldiers with intellectual disability? An Israeli study
DiscussionResults support the importance of contact between soldiers with and without ID to bring about improved attitudes toward the former. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 20, 2017 Category: Disability Authors: S. Werner Tags: Original Manuscript Source Type: research

Exploring factors that impact activity participation of children and adolescents with severe developmental disabilities
ConclusionChild, family and community factors were all important in understanding the activity participation of children with severe DD, thus supporting the value of an ecological approach. Suggestions for future research and clinical implications are discussed. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 20, 2017 Category: Disability Authors: A. Taheri, A. Perry, P. Minnes Tags: Original Manuscript Source Type: research

Relationships between atypical sensory processing patterns, maladaptive behaviour and maternal stress in Spanish children with autism spectrum disorder
ConclusionsThe findings suggest that sensory features in ASD may be driving the high prevalence of parental stress in carers. They also suggest that the effect on parental stress that has been attributed traditionally to maladaptive behaviours may be driven by sensory difficulties. The implications of these findings are discussed in relation to the development of interventions and the need to explore contextual and cultural variables as possible sources of variability. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 20, 2017 Category: Disability Authors: C. Nieto, B. L ópez, H. Gandía Tags: Original Manuscript Source Type: research

The importance of knowing when to be precise.
(Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 20, 2017 Category: Disability Authors: C. Oliver Tags: Editorial Source Type: research

Reported gum disease as a cardiovascular risk factor in adults with intellectual disabilities
ConclusionAfter controlling for other risk factors, reported gum disease among adults with ID may be associated with a higher risk of CVD. However, further research that also includes clinical indices of periodontal disease and CVD for this population is needed to determine if there is a causal relationship between gum disease and CVD. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 8, 2017 Category: Disability Authors: K. Hsieh, S. Murthy, T. Heller, J. H. Rimmer, G. Yen Tags: Original Manuscript Source Type: research

Environment learning from virtual exploration in individuals with down syndrome: the role of perspective and sketch maps
ConclusionsDS reduces children's ability to benefit from additional survey information and may be related to difficulty in elaborating configural/simultaneous information. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 1, 2017 Category: Disability Authors: E. Toffalini, C. Meneghetti, B. Carretti, S. Lanfranchi Tags: Original Manuscript Source Type: research

Suicide amongst people with intellectual disability: An Australian online study of disability support staff experiences and perceptions
ConclusionsThe current findings indicate that support staff recognise the capacity of people with ID to conceptualise suicide, note the existence of suicidal discussions and behaviours and report on actual suicides. This represents one of the few Australian studies that has specifically considered suicide amongst this cohort of people and reinforces the fact that suicide is not unknown in this population. The data indicate a possible divide between the reports of people with ID actively talking about and acting on suicidal thoughts and the lack of any proactive use of any tools to assess for this risk. (Source: Journal of ...
Source: Journal of Intellectual Disability Research - November 1, 2017 Category: Disability Authors: S. Wark, K. McKay, P. Ryan, A. M üller Tags: Original Manuscript Source Type: research

Use of key word signing by staff in special schools and in day centres for adults with intellectual disabilities
ConclusionsStaff communicated frequently but did not often model sign use during daily activities. To investigate influence from training background, further detailed measurements are warranted. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - November 1, 2017 Category: Disability Authors: E. Rombouts, B. Maes, I. Zink Tags: Original Manuscript Source Type: research

Rate and characteristics of urgent hospitalisation in persons with profound intellectual disabilities compared with general population
ConclusionsIn contrast to previous results reported for the group with ID as a whole, patients with PID consulting the emergency service were not admitted to hospital more frequently than the general population nor did they present a higher rate of inappropriate admissions. These results support the utility of maintaining two distinct groups of people with ID: mild‐moderate and severe‐profound. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - October 30, 2017 Category: Disability Authors: A. Amor ‐Salamanca, J. M. Menchon Tags: Original Manuscript Source Type: research

Meeting the support needs of persons with mild intellectual disability or borderline intellectual functioning: still a long way to go
ConclusionsThe support programs for a heterogeneous population of persons with mild intellectual disability or borderline intellectual functioning seem to be suboptimal, indicating that more differentiation is required in the services offered to these individuals. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - October 19, 2017 Category: Disability Authors: P. J. G. Nouwens, N. B. M. Smulders, P. J. C. M. Embregts, C. Nieuwenhuizen Tags: Original Manuscript Source Type: research

Do men and women with intellectual disabilities understand death?
ConclusionThe results indicate that individuals with ID do have a partial to full understanding of the concepts of death. The culture of Hong Kong is one that considers death to be a taboo or unlucky subject. Therefore, the results mirror the the lack of understanding of universality and inevitability concepts as it is forbidden to speak of these concepts. An open and honest environment is encouraged to educate individuals with ID about death and bereavement. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - October 18, 2017 Category: Disability Authors: A. Y. M. Chow, J. McEvoy, I. K. N. Chan, M. Borschel, J. H. L. Yuen, J. Y. M. Lo Tags: Original Manuscript Source Type: research

Medication use by adolescents and adults with fragile X syndrome
ConclusionsFindings highlight the elevated and ongoing use of medication by individuals with FXS. Implications for social and behavioural research on FXS are discussed. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - October 16, 2017 Category: Disability Authors: D. J. Laxman, J. S. Greenberg, L. S. DaWalt, J. Hong, M. G. Aman, M. Mailick Tags: Original Manuscript Source Type: research

Classification of self ‐injurious behaviour across the continuum of relative environmental–biological influence
Abstract Self‐injurious behaviour (SIB) is generally considered to be the product of interactions between dysfunction stemming from the primary developmental disability and experiences that occasion and reinforce SIB. As a result of these complex interactions, SIB presents as a heterogeneous problem. Recent research delineating subtypes of SIB that are nonsocially mediated, including one that is amenable to change and one that is highly invariant, enables classification of SIB across a broader continuum of relative environmental–biological influence. Directly examining how the functional classes of SIB differ has t...
Source: Journal of Intellectual Disability Research - October 13, 2017 Category: Disability Authors: L. P. Hagopian, M. A. Frank ‐Crawford Tags: Commentary Source Type: research

Factors associated with ambulatory care sensitive emergency department visits for South Carolina Medicaid members with intellectual disability
ConclusionPrevention of ACSC ED visits may be possible by targeting adults with ID who live at home without health support services. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - October 13, 2017 Category: Disability Authors: S. McDermott, J. Royer, J. R. Mann, B. S. Armour Tags: Original Manuscript Source Type: research

Sexuality and individual support plans for people with intellectual disabilities
ConclusionsAlthough sexuality is addressed in most ISP documents, there is little information available about the provision of professional support in this area that would give people the opportunity to exert sexual rights. As sexuality and exerting sexual rights are important for people with ID as well as for other people, it is recommended that issues surrounding proactive sex education, shared decision‐making and the implementation of sexual healthcare plans are addressed in the ISP. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - October 11, 2017 Category: Disability Authors: J. M. T. Stoffelen, M. A. Herps, W. H. E. Buntinx, D. Schaafsma, G. Kok, L. M. G. Curfs Tags: Original Manuscript Source Type: research

The determinants of service complexity in children with intellectual disabilities
ConclusionsThe findings of this study indicate that a variety of factors are related to service complexity ranged from children's nonclinical (age and experiences of bullying) to clinical (e.g. aggression, learning/communication problems and autism spectrum disorder) characteristics. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - October 11, 2017 Category: Disability Authors: S. L. Stewart, K. Falah Hassani, J. Poss, J. Hirdes Tags: Original Manuscript Source Type: research

Dimensionality and internal structure of the Colombian version of the INICO ‐FEAPS quality of life scale
ConclusionsThis study contributes to research on QoL measurement by providing the first empirical evidence regarding the dimensionality, internal structure and psychometric properties of the Colombian version of the INICO‐FEAPS scale. Moreover, the study presents the first adaptation of a specific QoL scale for people with ID in Colombia, which may in the future be useful for implementing evidence‐based practices and developing person‐centred support plans. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - October 10, 2017 Category: Disability Authors: M. A. Verdugo ‐Alonso, C. P. Henao‐Lema, L. Córdoba‐Andrade, V. B. Arias González Tags: Original Manuscript Source Type: research

Comparing the broad socio ‐cognitive profile of youth with Williams syndrome and 22q11.2 deletion syndrome
ConclusionsOverall, our multi‐facet socio‐cognitive battery uncovered strengths and weaknesses in social cognition that are syndrome‐specific, shared among the genetic syndromes, or common to the three clinical groups compared with healthy controls. Our findings underscore the need to devise age‐specific and condition‐specific assessment tools and intervention programs towards improving these children's socio‐cognitive deficits. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - October 1, 2017 Category: Disability Authors: O. Weisman, R. Feldman, M. Burg ‐Malki, M. Keren, R. Geva, G. Diesendruck, D. Gothelf Tags: Original Manuscript Source Type: research

Self ‐reported psychological wellbeing in adolescents: the role of intellectual/developmental disability and gender
ConclusionsIncluding the subjective perspective of young persons with ID/DD through self‐reports can provide essential information about wellbeing that cannot be gained from proxy ratings. The results suggest both differences and similarities in self‐reported wellbeing between boys and girls with and without ID/DD and potentially also in how they perceived the concepts measured. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - October 1, 2017 Category: Disability Authors: P. Bostr öm, J. Åsberg Johnels, M. Broberg Tags: Original Manuscript Source Type: research

Concurrence of the strengths and difficulties questionnaire and developmental behaviour checklist among children with an intellectual disability
ConclusionThe SDQ borderline cut‐off has some validity as a measure of overall levels of behavioural and emotional problems in young people with ID, and may be useful in epidemiological studies that include participants with and without ID. However, where it is important to focus on behavioural profiles in children with ID, a specialised ID instrument with established psychometric properties, such as the DBC‐P, may provide more reliable and valid information. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - October 1, 2017 Category: Disability Authors: L. J. Rice, E. Emerson, K. M. Gray, P. Howlin, B. J. Tonge, G. L. Warner, S. L. Einfeld Tags: Brief Report Source Type: research

Physical and mental health of young people with and without intellectual disabilities: cross ‐sectional analysis of a whole country population
ConclusionsThis largest‐to‐date study quantifies the extent of the substantial health disparities experienced by young people with intellectual disabilities compared with people without intellectual disabilities. The young population with intellectual disabilities have substantial health problems; therefore, transition between child and adult services must be carefully planned in order to ensure that existing health conditions are managed and emerging problems minimised. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - September 11, 2017 Category: Disability Authors: G. Young ‐Southward, E. Rydzewska, C. Philo, S.‐A. Cooper Tags: Original Manuscript Source Type: research

The effects of optimism, religion, and hope on mood and anxiety disorders in women with the FMR1 premutation
ConclusionsIn women with the FMR1 premutation, elevated optimism may reduce the occurrence or severity of MDD and anxiety disorders. These findings underscore the importance of supporting mental health across the FMR1 spectrum of involvement. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - September 11, 2017 Category: Disability Authors: E. P. Lowell, B. L. Tonnsen, D. B. Bailey, J. E. Roberts Tags: Original Manuscript Source Type: research

Numerical activities of daily living in adults with neurofibromatosis type 1
ConclusionThe findings indicate that NF1 affects calculation but not the basic comprehension or representation of numbers in adult patients. These data have important implications for designing cognitive interventions tailored to the cognitive profile of individuals with NF1. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 30, 2017 Category: Disability Authors: F. Burgio, S. Benavides ‐Varela, G. Arcara, E. Trevisson, D. Frizziero, M. Clementi, C. Semenza Tags: Brief Report Source Type: research

Suspension rates of students with autism or intellectual disabilities in Maryland from 2004 to 2015
ConclusionsOverall risk for suspension in Maryland decreased over time. African American students with autism or intellectual disability, as well as white students with autism or intellectual disability, experienced significantly higher odds of suspension when compared to their White students without a disability. This relatively unexplored issue commands attention from researchers and policymakers alike. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 24, 2017 Category: Disability Authors: M. P. Krezmien, J. C. Travers, K. Camacho Tags: Original Manuscript Source Type: research

Item response theory analysis applied to the Spanish version of the Personal Outcomes Scale
ConclusionsAs a result of this analysis, we must affirm that the administration of the POS, considering three sources of information, was adequate overall, but a correct interpretation of the results requires that it obtain much more information to consider, as well as some specific items in specific dimensions. The overall ratings, if these comments are considered, could result in bias. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 23, 2017 Category: Disability Authors: J. Gu àrdia‐Olmos, M. Carbó‐Carreté, M. Peró‐Cebollero, C. Giné Tags: Original Manuscript Source Type: research

‘At the end of the day, it is more important that he stays happy’: an interpretative phenomenological analysis of people who have a sibling with 22q11.2 deletion syndrome
ConclusionsThis phenomenological study provides a foundation for future research relating to 22q11.2DS and fostering family wellbeing, particularly around acceptance and psychological growth. The siblings in this study actively withdrew from their family to allow prioritisation of their affected sibling. However, this does not mean that their needs should be overlooked. There are easily accessible resources to support siblings of individuals with disabilities, and it is important for health professionals and parents to consider these options. (Source: Journal of Intellectual Disability Research)
Source: Journal of Intellectual Disability Research - August 17, 2017 Category: Disability Authors: J. Goodwin, S. Alam, L. E. Campbell Tags: Original Manuscript Source Type: research