New CF vitamin DEKAs
Just wanted to let you know there is a new CF vitamin available called DEKAs - if you have any questions I will try and answer them for you. (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - November 23, 2015 Category: Nutrition Authors: BarbaraRS Tags: Nutrition Source Type: forums

aquADEKS on Ebay
In Europe and Canada, the aquADEKs multivitamin drops (pediatric) is no longer available. In Europe there is still no substitute. I would like to know if there are aquADEKs available in USA. I would like to buy it. Anyone know where I can buy it? I found aquADEKS drops for sale on ebay (bluemedical) but I'm not sure if the product is still on production. Is it possible the aquADEKs for sale on ebay is not the original? Someone has any knowledge about this? (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - November 13, 2015 Category: Nutrition Authors: taafom Tags: Nutrition Source Type: forums

Giving newborn salt
Hello everyone, my 11 week old daughter has just been diagnosed with c.f.. The doctors told us we need to start giving her 1/8th tsp of salt everyday. The problem is they told me to give it to her straight (wet my finger, dip it in salt then put it in her mouth a few times a day) and not to mix it with any water or my expressed breast milk. I guess they don't want her to associate feedings with a negative taste. I have been following their instructions so far but she absolutely hates it and screams when I give it to her, which usually makes her cough from being so upset. Anyways, I was just wondering if any other parents o...
Source: Cystic Fibrosis Nutrition Forum - October 16, 2015 Category: Nutrition Authors: Martina Banks Tags: Nutrition Source Type: forums

Just discovered an easy high fat product
DS is extremely picky but I've discovered I can expand his food acceptance with familiar foods that have something new...so I tried these which have pizza and cheese and bacon but also egg. It's super easy to cook and very delicious and now he's asking for scrambled eggs whereas before he would have nothing to do with them....I'm going to wait a few more times before moving on to the eggs, but am happy to have this as an easy meal when it's a hectic day. He also does better with crunchy solids and so it's also a good option for those in the toddler want to feed myself stage. https://www.redbaron.com/products/si...es/defaul...
Source: Cystic Fibrosis Nutrition Forum - August 31, 2015 Category: Nutrition Authors: Aboveallislove Tags: Nutrition Source Type: forums

Not absorbing pills
I've noticed that some of my pills are not getting absorbed at all and ending up in my stools even though I'm taking 6 enzymes. Has anyone else had this issue? Were you able to fix it? (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - August 27, 2015 Category: Nutrition Authors: kenna2 Tags: Nutrition Source Type: forums

How do you maintain appetite ??
Now that I am off prednisone I don't have half the appetite. What do you do to maintain your appetite? (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - August 8, 2015 Category: Nutrition Authors: Dank Tags: Nutrition Source Type: forums

pickles anyone?
I do not have cf...but my daughter does. She's one and seems to really like pickles. So I was wondering uf a sodium thing or if a pickle taste thing. Anyone with cf love pickles? Does it make you feel better. Anyone drink the juice? I once read that one shot of pickle juice has as much electrolytes as a bottle of gaterade. But I dunno how true that is. (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - July 22, 2015 Category: Nutrition Authors: lrs2015 Tags: Nutrition Source Type: forums

not gaining weight at 1 yr
I am a parent of a cf child. I've posted a thread like this before wanting advice on helping my lil one with weight gain. I've been giving her pedisure, pudding, cheetos, yogurt, juice, vd milk, and now I bou ghten new stuff like chef boy'rd cheese ravoli , and just all kids. One sugessted I use ovaltine. So I got ovaltine and nesquick to add. But she's teething and is being real finicky. Calories are getting so hard to get into her diet. I'm just running out of ideas on what I can do to help her gain weight and eat more. I need what ever advice any one has. Yes salt and adek viatims are added in her diet. I just don't kno...
Source: Cystic Fibrosis Nutrition Forum - July 17, 2015 Category: Nutrition Authors: lrs2015 Tags: Nutrition Source Type: forums

No enzymes?
What happens with a person that has CF and does not take their enzymes when they eat? Besides stomach aches, do they have really oily loose stools??? does it happen every time some one forgets to take their enzymes, or just some of the time??? Is stomach cramping common with this also? What if the doctors diagnose with "malabsorption" does that necessarily mean pancreatic insufficient ?? (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - June 20, 2015 Category: Nutrition Authors: princesskinzy Tags: Nutrition Source Type: forums

need ideas for help gaining weight for my lil one.
I have a 1 yr old with cf. She always seems to be two pounds lower than they would like her to be. Shes just so small. Cutest darn thing though so funny even at a year. I seem to have tried a lot. Tried avacados, nope she don't like them. Sour cream, strawberry syrup, maple syrup, ciannamon , sugar, ice cream bars. How do I get her to take food even when she refuses. Some days she eats like a pig 700-950 calories a day. Sometimes only 600-750. Dietiation tells me she needs to be eating around 900. We've condensed her formula, now were tryingvto switch her between whole milk and pedisure drinks. So much difficulty trying to...
Source: Cystic Fibrosis Nutrition Forum - June 6, 2015 Category: Nutrition Authors: lrs2015 Tags: Nutrition Source Type: forums

The risks of cystic fibrosis diet
Hey guys, Do any of you know if there's a risk to eating such fatty foods that our nutritionalists are always encouraging? I know it's important to keep our weight up, but what about the long term affects? What about increased risk of heart disease from such unhealthy foods? I just want to make sure that adding extra calories to each of my meals isn't going to affect more of my health in the future. Lots of love. (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - May 25, 2015 Category: Nutrition Authors: sheilaaa14191 Tags: Nutrition Source Type: forums

Vitamin Programs
My pharmacist just called asking where we get our CF vitamins as he received a call from a nurse at a CF clinic who had a patient who needed aquaADEKs, but insurance doesn't cover and parents couldn't afford. Last month I ran out of cf vitamins and had to order online and a 30 day supply ran me $30-40 out of pocket.... I sent him the links for CFCareforward which is where we get vitamins after we submit receipts from DS' creon and the link for the Zenpep program, which appears to be similar. Are there any other programs which provide vitamins for people wcf? (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - May 20, 2015 Category: Nutrition Authors: Ratatosk Tags: Nutrition Source Type: forums

Survey: CF nutrition requirements
Hello everyone! (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - April 20, 2015 Category: Nutrition Authors: Manvi Makhijani Tags: Nutrition Source Type: forums

Vitamin D advice
I got some bloodwork back and my D level is 15 (normal is 30-100, according to my dr). I have been taking supplements on an off over the year. I guess I need to be on and on. :) I'm wondering if anyone has a brand of Vit D supplement or a food they recommend. Since I have non-CF bronchiectasis, I don't take ADEKs, but am curious if anyone has advice anyway. I read some of this article http://ods.od.nih.gov/factsheets/Vit...hProfessional/ and saw that Cod Liver Oil has 1360 units per Tbsp, which is 340% of the DV. I'm wondering if anyone has tried that? Or if the oil/fat of that option makes it a no-go. On a side note,...
Source: Cystic Fibrosis Nutrition Forum - April 6, 2015 Category: Nutrition Authors: Melissa75 Tags: Nutrition Source Type: forums

Negative reaction to enzymes, anyone pretty familiar with them?
Hey guys, first off sorry for having a ton of questions, I'm new to being treated for cf and this forum has been great. I was wondering if anyone has ever has any adverse reactions to enzymes? I was prescribed zenpep and every time I take it I have an adverse reaction, the best way I can describe it which sounds odd is I basically have the symptoms that the enzymes are meant to help. I will have bad stomach pains as soon as I eat with them and then go to the bathroom where I have floating loose stool, but any other time my stool sinks normally. But what's worse is I get the worst intergestion ever with them like a tightne...
Source: Cystic Fibrosis Nutrition Forum - March 14, 2015 Category: Nutrition Authors: Mike Brown Tags: Nutrition Source Type: forums

Do those with CF have difficulty digesting protein?
I have cf and wondered this, do i have a hard time digesting protein AND fat or just fat? f (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - March 10, 2015 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums

Alcohol and cf?
Anyone with cf still occasionally indulge in a few drinks? Was wondering if being pancreas insufficient was the same as having pancreatis? I know cf effects your pancreas because of the mucous clogging it up, but is this same same as having pancreatis? If so, I know ithat you can't have any alcohol. I haven't had a drink since being diagnosed a month ago and will continue not to if that's the best course of action, but was unsure if occasionally having a drink or two is a big issue or not. Can anyone with experience chime in that would be much appreciated. (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - February 28, 2015 Category: Nutrition Authors: Mike Brown Tags: Nutrition Source Type: forums

Any ideas?
My son has struggled so hard with weight. He is 5'5, and weighs 76 pounds. He is pancreatic insufficent, enzymes are not the issue. He is allergic to gluten, milk, dairy, soy, and rice. Plus he has autism and because of textures and tastes he will only willingly eat 7 foods. He does have a g tube receiving 10-12 hrs feeds a day. Still everytime we gain a few, he ends up loosing them. He tends to hover between 75-77 pounds. gi doc is amazing and has tried just about everything. He and the dietician are speaking with specialists outside the hospital to try to find a new formula with higher calories for him. He even had an al...
Source: Cystic Fibrosis Nutrition Forum - February 13, 2015 Category: Nutrition Authors: jshet Tags: Nutrition Source Type: forums

Weight and BMI before feeding tube?
Okay, so I am trying to find out from CF folks what was your BMI and weight prior to getting a feeding tube and did you gain weight after placement and if so how much? I've lost quite a bit of weight since my Celiacs diagnosis and I was concerned cause my BMI is 19.32 right now and I weight 110lbs. I also can't have dairy products or anything with soy protein cause I have cross-reactivity issues due to the Celiac so this makes gaining weight difficult. I know, eat avocados, peanut butter (which I hate), nuts, olive oil, ect. but there's only so much of that stuff you can eat and I'm starting to feel completely uninterested...
Source: Cystic Fibrosis Nutrition Forum - December 27, 2014 Category: Nutrition Authors: RobinB29 Tags: Nutrition Source Type: forums

Memo box - an aide memoire for pills : is it sufficient?
Dear community, My son was born 8 weeks ago with CF (meconeum ileus). I don't know that much about the practical treatment yet but I have belief in digitalisation. On that account, I saw this project on Kickstarter: https://www.kickstarter.com/projects...lls-and-vitami It's a pill box that connects with a mobile device and keeps you up to date concerning the intake of medicine. In their revised idea, they do have 7 day boxes divided in even smaller compartiments. I've contacted the creators and they're willing to adapt their design to your needs. But, in order to pass on demands, I need to know what you need. How woul...
Source: Cystic Fibrosis Nutrition Forum - November 11, 2014 Category: Nutrition Authors: Arphy Tags: Nutrition Source Type: forums

Take a break from enzymes?
Will I notice any immediate changes or would they be more gradual if I don't take as many enzymes as I should or stop taking them for awhile? I'm only mildly PI, take 8-10 5,000 lipase unites/pill for each meal and 3-4 pills for each snack that has protein or fat. Any thoughts? I know it depends on a lot of stuff...so it might not be that fair of a question... (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - September 28, 2014 Category: Nutrition Authors: Michael Klein Tags: Nutrition Source Type: forums

I probably need enzymes for medical brownies?
So I feel like an alien sometimes. Because there are times I eat a ton of dairy or meat without enzymes, and I feel perfect. I do eat a lot of yogurt during those times, which makes me even more confused cause isn't there a nice amount of fat in yogurt?? I am a medical patient for my state. So this is something I've wondered about. Like whenever I eat normal brownies i never take enzymes, but I'm wondering since this is medical grade brownies with thc would i need enzymes to feel the benefits ??? This is a touchy subject ik. Some of you may be for it, especially since you have cf. while others may not be for it. my pol...
Source: Cystic Fibrosis Nutrition Forum - September 14, 2014 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums

Mum needs help on getting toddle to use a sippy cup to drink is milk
Hi I was hoping for some advice on my 2 year old. He won't drink his milk/pediasure through anything other than a baby bottle we have been trying to switch him for ages, his twin sister is already on to using a grown up cup, And while there are a million forums on the net saying don't give in and only offer a sippy cup my little one is not a great eater either so this is his main source of calories and with our clinic breathing down our necks on weight gain I don't think I can do the wait it out thing with him. He will happily use a sippy cup of any variety for water. also any advice on getting a toddler with cf to eat - ...
Source: Cystic Fibrosis Nutrition Forum - September 12, 2014 Category: Nutrition Authors: lovemyboy507 Tags: Nutrition Source Type: forums

Dr Adrienne Sprouse
https://m.youtube.com/watch?v=iMkQT18RVqc My good friend Adrienne always can say something important in a minute! (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - August 27, 2014 Category: Nutrition Authors: Imogene Tags: Nutrition Source Type: forums

How to know Creon is helping
Hi, I'm new to the board. My doctor suspects pancreatic insufficiency and I'm trying samples of Creon 36,000. So far I've been trying them two weeks and having mixed results. Some days it feels like my energy is better and I'm making myself eat more fat and calories. However, somedays the constipation and energy is bad. I used to have frequent loose stools, but they stopped being bad after taking antibiotics earlier this year. Now I'm more constipated. But if I eat a lot of fat, the stools will be loose. I have a few questions that I would love to hear thoughts on: How will I know if Creon is working? Does the gas/bloat...
Source: Cystic Fibrosis Nutrition Forum - August 10, 2014 Category: Nutrition Authors: Chrono34 Tags: Nutrition Source Type: forums

Check out my blog!
Hi everyone! I've launched a new blog, Sardines on the Subway, about my experience using a Paleo diet to treat my CF symptoms. I'm only a few posts in but I'd love for more people from this community to take a look: www.sardinesonthesubway.com. And leave a comment to let me know what you think. Thanks so much! (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - August 5, 2014 Category: Nutrition Authors: AH11201 Tags: Nutrition Source Type: forums

Is it illegal to reuse an "outdated" prescription?
So for the past year I've gone through trial and errors with my doctors trying out different prescription (ie. Paxi, Prozac, Klonopin, Xanax, etc.). About 8 months ago I asked my doctor to switch me from Klonopin back to Xanax (something I had taken previously) because I figured that worked better. I still have my Klonopin prescription bottle with some pills in it, if I were to finish off that bottle, would that be illegal? It still has about 10 pills in it, so it'd take me about 5 months to use it all up. (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - July 29, 2014 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums

High Fiber Diet??
I've been trying to figure out how my own GI system works for years and have never quite been able to determine what works best in terms of absorption. I had a large portion of my colon removed when i was about 4 or 5 due to an obstruction caused by my doctor at the time prescribing massive amounts of enzymes. I always have issues with very loose and frequent stools. I eat something and 30 minutes later out it comes. Particularly in the morning, which is why i try to stick to smoothies in the morning instead of whole foods, seems to put much less stress on my insides. Anyways, recently i've been experimenting with a consum...
Source: Cystic Fibrosis Nutrition Forum - June 24, 2014 Category: Nutrition Authors: uklejasm Tags: Nutrition Source Type: forums

If i dont take my enzymes with a meal high in fats and proteins and what not will I..
Will I not digest the calories? Or will I only get calories from the foods I can digest, like veggies and fruit. I'm watching what I eat while working out and I sometimes cheat and eat high calorie foods, so what I do is I don't take my enzymes, cause my reasoning is if I can't digest it I don't get any of the calories. Is this true? If not, how's it work? (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - June 6, 2014 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums

Vit E in olive & sunflower oil may help lungs
while vit E in corn, canola, soybean oil may harm lungs. http://well.blogs.nytimes.com/2014/0...ef=health&_r=0 (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - June 4, 2014 Category: Nutrition Authors: Melissa75 Tags: Nutrition Source Type: forums

stressing out about how to feed everyone
Hello everyone. I have been lurking for some time but finally decided to ask a question. My son was diagnosed 2 yrs ago at age 15. He does not take enzymes at this time but they still want him to have more calories,fat, and salt. My husband is on the total opposite side of the coin with low calories, no fat, salt, (mostly no anything it feels like). Does anyone else have problems feeding everyone in the family something different and still having a meal/meals together? I like to cook dinner for everyone but son is somewhat picky so just slopping on gravy or butter or whatever doesnt work for him. Thanks for listening and h...
Source: Cystic Fibrosis Nutrition Forum - May 29, 2014 Category: Nutrition Authors: Theresa Johnson Schader Tags: Nutrition Source Type: forums

MSM for lung health
I have heard MSM is an excellent supplement for lung health with the role it plays to reduce inflammation in the body amongst other important things that would have a positive impact for those with CF. Does anyone have any knowledge or experience with using this as a supplement? Thanks, Jenny (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - May 20, 2014 Category: Nutrition Authors: jennywotherspoon Tags: Nutrition Source Type: forums

Anyone Familiar With These Symptoms
Hi There, I'm a 47 y/o male with CF. About 3 years ago I started noticing when I ate anything sweet I would get light headed and as time has gone on I have been tested for various things and nothing seems to be wrong. So here are my current symptoms and tests: When I eat sweet stuff I get lightheadedI drink 1 gallon of water and I pee it all out.I consume lots of salt so my salt levels are high normal.My blood glucose levels are testing normal at fast.Glucose tolerance is 1 hour is 165 and 2 hour is 70.My Ha1c is 5.7 high normalDry skin, wrinkly and sign of dehydration when I skin test.Weight has been stable about 165lb...
Source: Cystic Fibrosis Nutrition Forum - May 16, 2014 Category: Nutrition Authors: yesaloha Tags: Nutrition Source Type: forums

I just got that device diabetes people use, what should be my blood sugar to lose lb?
So my blood level was at a whopping 179 yesterday. So I'm curious to know, what should it be between to lose fat? (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - May 3, 2014 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums

Constipation? Or something else...help!
Recently I started properly taking my medicine (about two months ago). Then one night I woke up with a lot of lower back/ pelvic pain and constipation....is this a side effect of now appropriately taking my enzymes? It's now moved from my lower back to the front but still constipation. (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - April 9, 2014 Category: Nutrition Authors: Max Potter Tags: Nutrition Source Type: forums

I'm taking Hydroxycut hardcore elite
And I notice it causes extreme hypoglycemia. Is this normal? I wanna lose 20 lb or so by May 5-20th. I have a be clearance from my doctor btw she just doesn't know about me taking this supplement. When I take 2 pills I notice it makes me feel sick so I'll just take one for now. (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - March 30, 2014 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums

Anybody have extreme digestive issues after eating sushi?
So I don't always take my enzymes, and usually when I go to sushi, it's especially worse. I love sushi so much, so much that I'll suffer through the pain and long hours it gives after. Does anyone else experience diarrhea, extreme stomach pain, etc? Like it's the worst food not to take enzymes with. (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - March 23, 2014 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums

Has Anyone Tried Whole30 Diet to Fight Inflammation (not to lose weight)
I've been reading about the Whole30 diet/approach to eating (http://whole30.com/whole30-program-rules/ and in the book, "It Starts With Food") and could not find a thread on this forum. Whether based on food sensitivities, overactive immune systems, etc., inflammation is a true enemy for the general population for sure and certainly for CFers. Adopting their recommended nutritional approach would be extremely difficult, but what I'm reading hits home regarding fighting systemic inflammation--a key problem in CF. Of course there are loads of testimonials from people with serious disease (not CF) who saw incredible...
Source: Cystic Fibrosis Nutrition Forum - March 20, 2014 Category: Nutrition Authors: 2roses Tags: Nutrition Source Type: forums

Gluten free? Anybody know anything?
I did a search and it doesn't look like there are any topics regarding this... Where I am in California 'Gluten free' is an extremely hot thing. I've done some research and haven't found a ton of data so have sort of assumed it was a fad and people were feeling a placebo effect or felt better because cutting out gluten changed other parts of their diet and they attributed the better health to being gluten free. But then I started dating someone who is incredibly healthy, vegan and very focused on eating right.... and she's been recommending I try less gluten as it's supposed to be an inflammatory. I don't mind trying it,...
Source: Cystic Fibrosis Nutrition Forum - March 18, 2014 Category: Nutrition Authors: Lance2020x Tags: Nutrition Source Type: forums

malabsorption and belly fat
Does malapsorption cause belly fat? Or is that more a diabetes thing? I work out hard by doing Insanity and weights and biking. But it seems the only place I store fat is my stomach. I noticed that lots of people with CF seem to be built the same way I am. Thin legs and arms and a thicker midsection. I have lots of muscle on my stomach which I'm guessing is compensation for the lungs having to work harder and coughing all of the time. I know CFers have larger rib cages. My respiratory therapist told me that. Nothing I do gets rid of this little belly flab though. (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - March 15, 2014 Category: Nutrition Authors: Kayla11 Tags: Nutrition Source Type: forums

Picky eater and fighting 3 year old
Our little CFer is 3 1/2 years old. And she is a really picky eater. Currently all she wants to eat is baked potatoes with lots of butter and sour cream. What are your childs favorite foods? I am also looking for fun breakfast and dinner ideas.... (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - March 11, 2014 Category: Nutrition Authors: mehlingfamily Tags: Nutrition Source Type: forums

Testosterone boosting supplements
I just got a supplement that helps boost testosterone called D Aspartic Acid and it says it helps boost testosterone among other things. Will this help boost testosterone? If so, what will I notice within the first month of taking it? Would I need to take enzymes if I mix the white powder with water? It tastes pretty good like citrus (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - February 26, 2014 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums

Can CFers digest candy and bread?
Something I've always said to myself when it comes to things I can/can't digest is if it comes anywhere from an animal I can't digest it. That's been something that's helped me. But what about candy and bread and chips and stuff like that? (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - February 26, 2014 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums

Help, intestines keep getting clogged
My son keeps getting his intestines clogged. We've put 16 liters of peglyte through his g-tube and a couple of days later he's clogged up again. We give him 1-3 cups of peg each day as well. Have any of you had experience with this and have suggestions? (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - February 23, 2014 Category: Nutrition Authors: smiles Tags: Nutrition Source Type: forums

Getting my Medical marijuana card Friday!
.......................... (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - February 17, 2014 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums

Not taking enzymes...
Because of insurance problems, I haven't been able to take my enzymes for about a week...I've been getting constipation, is this normal? Like I feel that I have to go to the bathroom but after I sit I can't get anything out. Also, I think I've lost a little bit of weight...will that continue to happen? (I don't take a lot of enzymes...usually only 3 a day, have been taking them for 8 years) and I will get this insurance mishap cleared up, but I just wanted to know in the meantime. (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - February 17, 2014 Category: Nutrition Authors: dtc0507 Tags: Nutrition Source Type: forums

Antacid if enzymes don't seem to work properly?
Hello everyone, We have recently been told to increase Creon, because our son wasn't (and still isn't) gaining weight properly. It has been four weeks with the higher dose, without any significant changes of his weight. I was wondering whether it might be necessary to add an antacid. Or change from Creon to different enzymes. My son is 7 months old. We are adding enough oil or butter to all his food, so I don't think the problem is calories.. Thanks for any recommendations or your experiences! Becky (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - February 12, 2014 Category: Nutrition Authors: AllthebestforLiam Tags: Nutrition Source Type: forums

A miraculous home remedy !!!!!
I have a miracuolous home remedy that almost completely solve my problems. It's drinking Sodium-Chloride solution !!! Just a little every day, I also inhale it (boil it then inhale) and it cured muy lungs, I tried it first a month ago and it was a miracle to me. I advice everyone to try it. It is probably so beneficial as the main problem with cf is actually not transporting water and electrolites through lungs, intestines etc. This was a true miracle for me I advice everyone to try it it can do no harm. drinking Sodiium-Chloride solution for intravenouous rehidratation!!!​ A miraculous home remedy!!! (Source: Cysti...
Source: Cystic Fibrosis Nutrition Forum - February 4, 2014 Category: Nutrition Authors: purple88 Tags: Nutrition Source Type: forums

Do I have to take enzymes with Ensure Plus?
I hope not. (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - January 5, 2014 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums

Does anyone deal with constant nausea?
I've known I had CF for about four years now. I'm 51 years old. I have a deltaF508 and a D1152h so it's like medium onset instead of late onset. I've had constant daily nausea as well as very poor appetite since I was roughly in my mid thirties but getting worse now. Just wondering if anyone else experiences this extreme hunger pain / nausea on a regular basis? I assume it's part of the mal-absorption complex of symptoms.... extreme hunger pains could be a typical response to a failure to deliver the vitamin D and calcium like we're supposed to. I have the feeling of craving something but it's like an itch I can never...
Source: Cystic Fibrosis Nutrition Forum - December 29, 2013 Category: Nutrition Authors: badweather Tags: Nutrition Source Type: forums