Cystic Fibrosis Exercise and Fitness Forum 
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So I have been reading different post about different workouts and ways to gain weight and stay healthy but there isn't anything current. I was wondering has anyone found good works and etc.. (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - March 3, 2015 Category: Respiratory Medicine Authors: slugo21 Tags: Exercise & Fitness Source Type: forums
Motivational CF Workout Video
My wife and I came across this song and made it her motivational workout song to keep going with her treatments and exercise when its hard. We put together this CF awareness music video showing treatments and PT workouts while she was in the hospital. We posted it on youtube a few days ago and have had an overwhelming support of over 45,000 views. We thought it might be an encouragement to some of you to keep on fighting!
Check it out here: http://youtu.be/FJw4NytwRNw (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - February 10, 2015 Category: Respiratory Medicine Authors: thefreylife Tags: Exercise & Fitness Source Type: forums
More lung scarring
I got chest x rays and the tech let me see. I noticed more lung scarring, although, I was a tad confused with everything because it didn't look a whole like my last chest X-ray. But from what I saw, I had a lot more lung scarring.
What does this mean? What do I need to do to prevent further scarring and damage? Any way to fix what has been done, any what so ever, even if its small????
I'm scared to hear the results which will take till Tuesday or so. (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - January 23, 2015 Category: Respiratory Medicine Authors: Enzo2311 Tags: Exercise & Fitness Source Type: forums
Exercise as a treatment
I am 20 and feel like I have tried everything my doctors have asked of me. The vest has been a problem for me. I absolutely hate the vest, I hate feeling restricted, I hate sitting still, I hate the way I felt during the treatment. Now I understand that there are benefits of the vest, I do. However, I think we all have that one thing we just really hate, mine just happens to be a vest. Sure I will swallow 100 pills (just not ADEK vitamins, I will not even negotiate doing this med), I will eat extra food, but I will fight you on the vest. I have always been active, involved in different sports. Gymnastics, cheer leading, tr...
Source: Cystic Fibrosis Exercise and Fitness Forum - January 20, 2015 Category: Respiratory Medicine Authors: SaltyPrincess Tags: Exercise & Fitness Source Type: forums
Making exercise a habit
This NYTimes mini article is about making exercise a habit. In the comment section that follows the article, there are all sorts of interesting and inspirational ideas.
I think people with CF tend to develop tremendous discipline because of their treatment regimens, so a lot of the talk of making a commitment and following through might seem basic. But I still think this article/the comments give good ideas for how different people to find the right activity or right approach for making exercise a habit (...realizing that at the lower levels of lung function, activities of daily living ARE exercise).
http://well.blogs.n...
Source: Cystic Fibrosis Exercise and Fitness Forum - January 11, 2015 Category: Respiratory Medicine Authors: Melissa75 Tags: Exercise & Fitness Source Type: forums
how much exercise is to much
I try my best and it takes all of my time to do treatments and exercise but Im tring to breathe better iwork out 5 days a week with wts. And jump rope and run on treadmill each day but starting 2days ago having streaks of blood and pain in upper chest on both sides is it cause of workin out or do I have infection do I go into hospital im upset cause I try so hard amd all I do Is to try to stay healthy or atleast breathe better and im worried its something bad I was doin ok now this sorry my emotions r goin wild im sad mad scared worried and scared I just want everyome to have there health it should b the one thing everyone...
Source: Cystic Fibrosis Exercise and Fitness Forum - December 24, 2014 Category: Respiratory Medicine Authors: cam Tags: Exercise & Fitness Source Type: forums
What does your CF Clinic say re Exercise
I'm cross posting in case some folks look only at forums and not for latest posts:
I'm wondering what different CF tell patients re exercise. Obviously it is good, but do your Centers:
1) Give specifics of what types to do and how long, like they do for nutrition (eat so many calories a day), so say exercise 20 minutes per day, jogging or stairmaster?
2) Do they ever tell you not to exercise because of weight loss and a need to preserve weight?
3) Does this change as the kids get older??
Thanks (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - December 18, 2014 Category: Respiratory Medicine Authors: Aboveallislove Tags: Exercise & Fitness Source Type: forums
I really want to become CF healthy
So last time I got my FEV (I think it's called that), I scored 106%. I fear that I have decreased by a large number. My last chest x-ray I had minor lung scarring.
But I really want to get healthy in terms of my lungs. I'm at a good weight (and my doctors have given me the 'go head' sign to lose, at most, 10 lb.). But when it comes to my lung health, it's not as great as I think it should be. I don't use my Pulmozyme as much as I should, and I use my inhaler a lot more than I do my Pulmozyme. I workout every other day (and if not every other day, the day after every other day).
So here's what i want to know:
1. How c...
Source: Cystic Fibrosis Exercise and Fitness Forum - December 16, 2014 Category: Respiratory Medicine Authors: Enzo2311 Tags: Exercise & Fitness Source Type: forums
Exercise Examples an workout templates an info galour
www.exrx.net has all sorts of info concerning exercise, as for as what exercise for what bodypart, stretches an other general info thats great for all around health.Hope this helps some, I just found it an interesting site an wanted to share. (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - December 12, 2014 Category: Respiratory Medicine Authors: Ascastlat Tags: Exercise & Fitness Source Type: forums
yoga breathing
a little while back someone told me something about some type of breathing, I think associated with a certain yoga style, through which some guy has increased his lung capacity to three times what is average. For some reason I wasn't paying much attention at the time.I know capacity isn't really a problem with cf, but I also think it may help in some ways. I was wondering if anyone else knows anything about this; what style of yoga it is associated with, or if it's something completely different, and anything at all about it together with cf. (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - December 12, 2014 Category: Respiratory Medicine Authors: Ascastlat Tags: Exercise & Fitness Source Type: forums
Interval Training proven safe and beneficial for people with severe CF disease
Conclusion
The present study showed that IT is an exercise training
method which is safe in patients with CF who are unable to
participate in SEP. IT is less time consuming than SEP (Standard Exercise Program'and
patients perceived IT as less strenuous compared to constant
workload. Compared to SEP, IT improved submaximal exercise
capacity to a greater extent than SEP, whereas responsiveness of
maximal exercise capacity was higher in the SEP. Overall this
seems to indicate a specific potential for positive peripheral
muscular adaptations in spite of minimal or diminishing potential
of pulmonary improvement. From a practica...
Source: Cystic Fibrosis Exercise and Fitness Forum - November 25, 2014 Category: Respiratory Medicine Authors: ladybird Tags: Exercise & Fitness Source Type: forums
Cub Scouting Precautions?
My 9 year old has joined the cub scouts. He has wanted to for three years and he is thrilled to be there. But after only a couple of months, they are planning a 5km hike and an overnight camping trip. My initial reaction was no, no. No hiking. But I know it will be good for him . . . .if we can get them to carry enough Gatorade to keep him hydrated. He dehydrates SO fast, he's beenin trouble a couple of times despite our efforts to keep him well hydrated. But even if I can get myself past that, the overnight camping trip has me confounded. I see aspergillis in the leaves, b cepacia in the dirt, pseudo in the river, ...
Source: Cystic Fibrosis Exercise and Fitness Forum - October 10, 2014 Category: Respiratory Medicine Authors: Gammaw Tags: Exercise & Fitness Source Type: forums
Pro's & Con's of Medical Marijuana
What are the pro's and con's of using Medical Marijuana VIA vaporizer and eating (NOT Smoking, or causing combustion of the plant) ???
Have you ever considered applying for the Medical Marijuana Program of your state? Did you? Why or why not? (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - October 9, 2014 Category: Respiratory Medicine Authors: jrocco Tags: Exercise & Fitness Source Type: forums
thinner air in the winter
would anyone happen to know if the air is thinner in the fall/winter compared to the summer? When I have been running this past week I have felt like my lungs and legs could not get oxygen they needed. And I had been running all summer and there were no problems. Any ideas would be great. Thanks in advance. (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - October 5, 2014 Category: Respiratory Medicine Authors: tylerp Tags: Exercise & Fitness Source Type: forums
Work out regime
Hey everyone,
I am brand new to this forum! I just got released from hospital after having a course of IV antibiotics. I have fallen off the band wagon for working out numerous times, however I know how important it is..
I am wondering what is a good work out routine that you found useful? I sometimes cough up blood, but I've been told this is sometimes typical.
I look forward to all your help and cant wait to read more on the forums. (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - October 1, 2014 Category: Respiratory Medicine Authors: helmut28 Tags: Exercise & Fitness Source Type: forums
