The challenges of research data management in cardiovascular science: a DGK and DZHK position paper —executive summary
AbstractThe sharing and documentation of cardiovascular research data are essential for efficient use and reuse of data, thereby aiding scientific transparency, accelerating the progress of cardiovascular research and healthcare, and contributing to the reproducibility of research results. However, challenges remain. This position paper, written on behalf of and approved by the German Cardiac Society and German Centre for Cardiovascular Research, summarizes our current understanding of the challenges in cardiovascular research data management (RDM). These challenges include lack of time, awareness, incentives, and funding ...
Source: Clinical Research in Cardiology - April 19, 2024 Category: Cardiology Source Type: research
Identification of Prognostic Markers of Glioblastoma through Bioinformatics Analysis
CONCLUSION: The prognostic risk model can effectively classify patients with glioblastoma into high-risk and low-risk groups in terms of overall survival rate, which may help select high-risk patients with glioblastoma for more intensive treatment.PMID:38639614 (Source: Alternative Therapies in Health and Medicine)
Source: Alternative Therapies in Health and Medicine - April 19, 2024 Category: Complementary Medicine Authors: Jieying Wen Haojie Zheng Xi Yuan Cuilan Huang Xiaogang Yang Zhiying Lin Guanglong Huang Source Type: research
Promoting Collaborative CL Psychiatry and Palliative Care Education via Combined Fellow-focused Case Conferences
1. Describe the benefits of integrating palliative care and psychiatry education and practice.2. Apply a collaborative model of training between palliative care and psychiatry to educational initiatives. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Dinaz Irani, Craig D. Blinderman, Jon Levenson, Sara S. Nash, Mary Callahan, Peter Shapiro, Daniel Shalev Source Type: research
TACCT: Trainee Approach to Condolence Communication Training - A Pilot Study in Early Bereavement Education
1. Learners will be able to recognize high quality evidence for the importance of bereavement educations amongst medical trainees.2. Learners will see data on reactions of medical trainees to condolence-writing education and potential impact for their future practice. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Phoebe A. Winn, Taylor Aglio, Erica C. Kaye, Amanda Linz, Carrie Stallings, Arshia Madni Source Type: research
Psychological Distress Among Caregivers for Patients Experiencing End of Life While Incarcerated
1. Evaluate psychosocial factors that may impact symptom management and the end of life experience for hospice patients who are incarcerated.2. Identify resources for further training, education, and understanding of local/national guidelines to provide equitable care for patients who are incarcerated. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Heidi Hallam Source Type: research
Beyond the Labs: Need for Primary Palliative Medicine Training in an Internal Medicine Residency
1. Understand the need for formalized curriculum for palliative medicine elective.2. Apply skills related to conducting family meetings and being familiar with signs and symptoms at end of life. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Katie Masters, Zeba Anwar Source Type: research
Early Impact: Integrating Core Palliative Care Skills into Medical Education
1. Participants will be able to identify three strategies to incorporate palliative care knowledge and skills into medical education.2. Participants will be able to discuss the role of online clinical training modules in filling curricular gaps around serious illness care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Katie Grogan, Rachael Heitner, Alina Kung, Elizabeth Jurczak Goldsborough, Allison Silvers Source Type: research
Empowering Hospital Social Workers with Goals-of-Care Skills Training Using Simulation
1. Participants will be able to learn how to design an effective communication skills training workshop for hospital social workers.2. Participants will be able to review Serious Illness Conversation Guide modified for use by hospital social workers for goals of care discussions with patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Nancy McCool, Jennifer Reidy, Shawna Steadman, Vandana Nagpal Source Type: research
Serious Illness Conversation Training for Primary Care Residents: Feasibility, Effectiveness and Sustainability
1. Describe the components of the modified SIC training, which may increase clinicians ’ comfort levels in having ACP conversations.2. Discuss strategies to enhance clinicians’ ability to engage patients in ACP in primary care settings. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Eriko Onishi, Harry Krulewitch, Erin Gallivan, Cynthia Davis-O'Reilly, Sumathi Devarajan, Seiko Izumi Source Type: research
Exploring the Acceptability of a Community-Enhanced Intervention to Improve Decision Support Partnership
1. Describe and understand the current literature gap regarding advanced illness decision-making for patients with chronic kidney disease and their family caregivers.2. Explain how decision support training can be used to positively influence how patients with chronic kidney disease engage in the decision-making process and in future serious illness planning. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Shena Gazaway, Tamara Nix Parker, Claretha Lyas, James Nicholas Odom Source Type: research
Implementing an End of Life Curriculum in a National Cohort of Emergency Medical Services Clinicians
1. Participants will better comprehend EMS clinician prior experience, confidence and subject knowledge caring for and communicating for patients near the end of life.2. Participants will learn strategies on how to target clinical and communication skills training for EMS clinicians. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Amelia Breyre, David H. Wang, Charles Dunn, Justin K. Brooten, Brian Gacioch, Michael Taigman, Zili He Source Type: research
Early Goal of Care Discussions in Healthcare: A Survey Case Report on Benefits and Perceptions
1. Healthcare institutions should invest in communication training for healthcare professionals to facilitate effective early goal of care discussions. Creating standardized protocols for initiating these conversations and allocating resources for meaningful patient-provider interactions can lead to improved patient outcomes and satisfaction.2. Creating standardized protocols for initiating these conversations and allocating resources for meaningful patient-provider interactions can lead to improved patient outcomes and satisfaction. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Noreena Aslam, Aamir Hayat Source Type: research
Beyond the Incision: A Palliative Care Curriculum for General Surgery Residents
1. Utilizing resident needs-based assessments, the participants will self-report the ability to survey residents in order to identify and fill resident-reported training deficiencies.2. Utilizing a multimodal approach, the participants will self-report the ability to design, integrate, implement, and tailor a surgical palliative care curriculum. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Andrea M. Lifrieri, Taylor Kline, Lee Schmidt, Allen Zhong, Celia M. Divino, Noelle Marie C. Javier Source Type: research
SOPHIE: Testing a Virtual, Interactive, AI-Augmented End-of-Life Communication Training Tool (RP122)
1. Comprehension - Participants will demonstrate an understanding of how SOPHIE addresses the challenges of traditional communication workshops and its potential to enhance clinician-patient interactions.2. Application - Participants will be able to assess the research design used in the study and evaluate its appropriateness for investigating the effectiveness of communication training tools. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Kurtis G. Haut, Ronald Epstein, Thomas M. Carroll, Benjamin Kane, Lenhart Schubert, Ehsan Hoque Source Type: research
Enhancing Quality of Serious Illness Conversations: Is Communication Skills Training a Must?
1. Understand the importance for standardized templates in the EMR for documentation and retrieval of serious illness/goals of care conversations.2. Identify processes that can help sustain behavior change at a systems level. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: M. Hazeltine, Shawna Steadman, Vandana Nagpal Source Type: research
