The Unsung Stories of 3 Pioneering Black Female Doctors
Jasmine Brown is still in medical school at the University of Pennsylvania, but she has already published a book about medicine: Twice as Hard: The Stories of Black Women Who Fought to Become Physicians, from the Civil War to the 21st Century. It’s the culmination of research she started while a Rhodes Scholar at the University of Oxford. She noticed a lack of literature on Black female doctors, and was immediately struck by an oral history by Dr. May Chinn, one of Harlem’s first Black female doctors. Chinn’s story resonated with Brown, who, despite being the daughter of engineers, was often discouraged f...
Source: TIME: Health - March 1, 2023 Category: Consumer Health News Authors: Olivia B. Waxman Tags: Uncategorized Books News Team Source Type: news

Sickle-cell gene therapy developer stops program, cuts half of staff
Gene therapy offered hope for thousands of sickle cell disease patients. Now many are ending their programs. (Source: bizjournals.com Health Care News Headlines)
Source: bizjournals.com Health Care News Headlines - February 23, 2023 Category: Health Management Authors: Ron Leuty Source Type: news

Access to care: reducing health inequalities for people living with sickle cell disorder
Imagine you have a disease that leaves you in severe pain, and frequently means you need emergency strong opioid pain relief. But your condition is rare, and A&E staff often have very limited knowledge of your condition. And on top of that you ' re black, and staff assume you ' re drug seeking, and this happens over and over again. This is just one of the ways people with sickle cell disorder face discrimination when trying to access health care. Is it any wonder you ' d rather avoid the health and care service than have substandard care and/or face stigmatisation? (Source: Current Awareness Service for Health (CASH))
Source: Current Awareness Service for Health (CASH) - February 20, 2023 Category: Consumer Health News Source Type: news

Access to care: reducing health inequalities for people living with sickle cell
Imagine you have a disease that leaves you in severe pain, and frequently means you need emergency strong opioid pain relief. But your condition is rare, and A&E staff often have very limited knowledge of your condition. And on top of that you ' re black, and staff assume you ' re drug seeking, and this happens over and over again. This is just one of the ways people with sickle cell disorder face discrimination when trying to access health care. Is it any wonder you ' d rather avoid the health and care service than have substandard care and/or face stigmatisation? (Source: Current Awareness Service for Health (CASH))
Source: Current Awareness Service for Health (CASH) - February 10, 2023 Category: Consumer Health News Source Type: news

ASA: Stem Cell Transplant Improves Vasculopathy in Sickle Cell Patients
THURSDAY, Feb. 9, 2023 -- For adults with sickle cell disease (SCD), hematopoietic stem cell transplantation (HSCT) seems to improve or prevent development of vasculopathies, according to a study presented at the American Stroke Association... (Source: Drugs.com - Pharma News)
Source: Drugs.com - Pharma News - February 9, 2023 Category: Pharmaceuticals Source Type: news

U.S. Maternal Mortality, Morbidity Increased in Sickle Cell Disease
WEDNESDAY, Feb. 8, 2023 -- The risk for maternal mortality and severe maternal morbidity is increased for people with sickle cell disease (SCD) compared with those without SCD, according to a study published online Feb. 2 in JAMA Network Open. Macy... (Source: Drugs.com - Pharma News)
Source: Drugs.com - Pharma News - February 8, 2023 Category: Pharmaceuticals Source Type: news

Roche announces positive data from global phase III programme for crovalimab in PNH, a rare life-threatening blood condition
The COMMODORE 2 study met its co-primary efficacy endpoints, showingcrovalimab achieved disease control in people with paroxysmal nocturnalhaemoglobinuria (PNH) who have not been previously treated with complement inhibitorsThe results of the phase III COMMODORE 1 study in people with PNH switching from currently approved C5 inhibitors, supported thefavourable benefit-risk profile ofcrovalimab, as seen in the pivotal COMMODORE 2 studyResults from both studies will be submitted to regulatory authorities around the world and presented at an upcoming medical meetingBasel, 7 February 2023 - Roche (SIX: RO, ROG; OTCQX: RHHBY) t...
Source: Roche Media News - February 7, 2023 Category: Pharmaceuticals Source Type: news

Roche announces positive data from global phase III programme for crovalimab in PNH, a rare life-threatening blood condition
The COMMODORE 2 study met its co-primary efficacy endpoints, showingcrovalimab achieved disease control in people with paroxysmal nocturnalhaemoglobinuria (PNH) who have not been previously treated with complement inhibitorsThe results of the phase III COMMODORE 1 study in people with PNH switching from currently approved C5 inhibitors, supported thefavourable benefit-risk profile ofcrovalimab, as seen in the pivotal COMMODORE 2 studyResults from both studies will be submitted to regulatory authorities around the world and presented at an upcoming medical meetingBasel, 7 February 2023 - Roche (SIX: RO, ROG; OTCQX: RHHBY) t...
Source: Roche Investor Update - February 7, 2023 Category: Pharmaceuticals Source Type: news

Death, Morbidity in Pregnancy Continue to Plague Sickle Cell Disease Patients
(MedPage Today) -- Sickle cell disease (SCD) patients in recent years continued to have a much greater risk of adverse pregnancy outcomes, including death, compared with the general population, researchers found. The maternal mortality rate in... (Source: MedPage Today OB/GYN)
Source: MedPage Today OB/GYN - February 6, 2023 Category: OBGYN Source Type: news

Digital care plans can transform NHS services for sickle cell patients
New report describes first-hand accounts of patients suffering acute, painful sickle cell episodes and reveals poor experiences of hospital care. It found a lack of individual care plans in place, and more broadly, no clear definition of what constitutes an actual care plan. (Source: Current Awareness Service for Health (CASH))
Source: Current Awareness Service for Health (CASH) - February 2, 2023 Category: Consumer Health News Source Type: news

Mission to eliminate sickle cell anaemia By 2047: Finance Minister
The government also announced to establish 157 new nursing colleges will be in co-location with the existing 157 medical colleges established since 2014. (Source: The Economic Times)
Source: The Economic Times - February 1, 2023 Category: Consumer Health News Source Type: news

Health ministry's fight against sickle cell anaemia to follow Gujarat playbook
Prevalent among the tribal population in India, sickle cell disease is a genetic condition that affects haemoglobin -- responsible for carrying oxygen in the body-- in red blood cells. Anaemia, debilitating acute and chronic pain, infection, acute chest syndrome, stroke, and renal failure are among the problems it can lead to. (Source: The Economic Times)
Source: The Economic Times - February 1, 2023 Category: Consumer Health News Source Type: news

Black members pass motions on disability and cost of living crisis
There are an estimated 185,000 Black members in UNISON, the majority of whom work in health and local government services, and the union has declared 2023 as the Year of Black Workers. During the morning session, chaired by Kebba Manneh – the chair of the national Black members committee – conference passed motions on young Black members and mental health at work, and on Black members feeling undervalued and like they don’t belong. A key motion was unanimously passed on Black workers and non-apparent impairments. Introduced by Tansaim Hussain-Gul of the union’s national disabled members committee, the motion calle...
Source: UNISON Health care news - January 22, 2023 Category: UK Health Authors: Janey Starling Tags: Article News 2023 National Black Members Conference cost of living disability Source Type: news

Sickle Cell Cure Brings Mix of Anxiety and Hope
Some people who have long lived with the disease say they worry about living as a healthy person, while others worry about the obstacles to getting treatment. (Source: NYT Health)
Source: NYT Health - January 17, 2023 Category: Consumer Health News Authors: Gina Kolata Tags: emergingtech Source Type: news

Ghana: Sickle Cell Disease Not a Death Sentence
[Ghanaian Times] Having conquered her 21 years deadline, Regina Atatsi is among the millions of people around the world living with Sickle Cell Disease (SCD). (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - January 17, 2023 Category: African Health Source Type: news