Knee Replacement More Challenging in People With Sickle Cell
WEDNESDAY, April 19, 2023 -- While joint reconstruction surgeries are fairly common, they may be anything but routine for people with sickle cell disease. Patients with the blood disorder who undergo total knee replacement are at a higher risk for... (Source: Drugs.com - Daily MedNews)
Source: Drugs.com - Daily MedNews - April 19, 2023 Category: General Medicine Source Type: news

St. Jude, Broad Institute of MIT and Harvard advance ‘potentially curative approach’ for sickle cell disease
Millions of people are afflicted with the debilitating effects of sickle cell disease, which predominately affects individuals of African descent. In a metro that is majority Black, like Memphis, such a disease is life-altering for thousands of patients and their families. St. Jude Children's Research Hospital announced today, April 17, a "potentially curative approach" where the hospital's researchers, in conjunction with the Broad Institute of MIT and Harvard, showed that a type of precise gene … (Source: bizjournals.com Health Care:Physician Practices headlines)
Source: bizjournals.com Health Care:Physician Practices headlines - April 17, 2023 Category: American Health Authors: Jason Bolton Source Type: news

Angola: Angola and Brazil Exchange Experience in Health
[ANGOP] Luanda -- A multidisciplinary team from Angola's Ministry of Health has been working since Monday in Brasilia, with officials of the Brazilian Health Ministry to get in touch with the South American country's policy on Comprehensive Care for People with Sickle Cell Disease. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - April 13, 2023 Category: African Health Source Type: news

Bluebird stock slides as company delays sickle-cell drug
Bluebird bio once planned to launch three drugs by the end of 2023. The first two are on track, but the third drug, a treatment for sickle-cell disease, is likely to be delayed. (Source: bizjournals.com Health Care:Biotechnology headlines)
Source: bizjournals.com Health Care:Biotechnology headlines - March 29, 2023 Category: Biotechnology Authors: Rowan Walrath Source Type: news

Hydroxyurea Underused in Youth With Sickle Cell
TUESDAY, March 28, 2023 -- Few youths with sickle cell anemia (SCA) receive hydroxyurea despite national guidelines recommending its use, according to a study published online March 24 in JAMA Network Open. Sarah L. Reeves, Ph.D., from University... (Source: Drugs.com - Pharma News)
Source: Drugs.com - Pharma News - March 28, 2023 Category: Pharmaceuticals Source Type: news

Hydroxyurea Underused in Youth With Sickle Cell Anemia Hydroxyurea Underused in Youth With Sickle Cell Anemia
Sickle cell anemia can lead to pain crises, stroke, and early death. Hydroxyurea, an oral disease-modifying medication, can reduce the complications.MDedge News (Source: Medscape Hematology-Oncology Headlines)
Source: Medscape Hematology-Oncology Headlines - March 28, 2023 Category: Cancer & Oncology Tags: Pediatrics News Source Type: news

When it comes to identifying new gene therapies, she ’s in it for the long run
Like any experienced distance runner, Grace McAuley always keeps her focus on the finish line — even if it’s out of sight. That’s what makes her such a promising young scientist.In spring 2021, McAuley was a UCLA senior who was wrapping up four years on the Bruin track and cross-country teams. Not long after running her last race for UCLA, she joined the lab of Dr. Donald Kohn, a UCLA physician-scientist known for developing gene therapies for blood and immune disorders.“I kept telling Grace she was too busy to join the lab, but she wouldn’t take no for an answer,” says Kohn, a member of theEli and Edythe Broad...
Source: UCLA Newsroom: Health Sciences - March 23, 2023 Category: Universities & Medical Training Source Type: news

Sickle Cell Disease Patients Miss Out on Decades of Life
(MedPage Today) -- A cohort study of Medicare and Medicaid beneficiaries with sickle cell disease (SCD) showed a life expectancy of just 52.6 years, well below that of the general population. And among SCD patients, survival varied by sex and... (Source: MedPage Today Pediatrics)
Source: MedPage Today Pediatrics - March 17, 2023 Category: Pediatrics Source Type: news

Sickle cell patient's success with gene editing raises hopes and questions
(Source: NPR Health and Science)
Source: NPR Health and Science - March 16, 2023 Category: Consumer Health News Authors: Rob Stein Source Type: news

How will gene editing change medicine and who will benefit?
Ian Sample speaks to Guardian science correspondent Hannah Devlin about the latest developments and debates about gene editing to emerge from a summit at the Francis Crick Institute in London. The summit heard from the first person with sickle cell disease to be treated with a technique known asCrispr. He also hears from Prof Claire Booth about ensuring these cutting edge treatments are made available to everyone who needs themClips: Francis Crick Institute, BBC NewsContinue reading... (Source: Guardian Unlimited Science)
Source: Guardian Unlimited Science - March 16, 2023 Category: Science Authors: Presented by Ian Sample, with Hannah Devlin and Professor Claire Booth, sound designed by Tony Onuchukwu and executive produced by Ellie Bury Tags: Science Gene editing Sickle cell disease Health Genetics Society Source Type: news

Newly Approved Meds Rarely Used for Sickle Cell Disease
FRIDAY, March 10, 2023 -- Newly approved medications are rarely used for sickle cell disease (SCD), according to a study published online March 8 in Blood Advances. Robert Cronin, M.D., from The Ohio State University in Columbus, and colleagues... (Source: Drugs.com - Pharma News)
Source: Drugs.com - Pharma News - March 10, 2023 Category: Pharmaceuticals Source Type: news

How human gene editing is moving on after the CRISPR baby scandal
CRISPR gene editing means a cure for sickle cell disease is on the horizon. However, the life-changing treatment is likely to remain out of reach for most of those who could benefit. (Source: CNN.com - Health)
Source: CNN.com - Health - March 9, 2023 Category: Consumer Health News Source Type: news

Few Sickle Cell Disease Patients Are Adequately Treated for Pain
(MedPage Today) -- Despite the availability of medications designed to prevent vaso-occlusive events in persons with sickle cell disease (SCD), few who experience these chronic pain episodes have prescriptions for these drugs, researchers found... (Source: MedPage Today Public Health)
Source: MedPage Today Public Health - March 8, 2023 Category: American Health Source Type: news

Why genetic engineering experts are putting a spotlight on Victoria Gray's case
Victoria Gray's life has been transformed by her treatment for sickle cell disease with the gene-editing technique called CRISPR. She's in London telling her story at a scientific summit. (Source: NPR Health and Science)
Source: NPR Health and Science - March 7, 2023 Category: Consumer Health News Authors: Rob Stein Source Type: news

Nemours Children's Health gets $78M gift from du Pont heiress foundation
The donation to Nemours Children's Health will be used to fund research and create a new inpatient unit focused on treating children with sickle cell disease, cancer and blood disorders. (Source: bizjournals.com Health Care News Headlines)
Source: bizjournals.com Health Care News Headlines - March 2, 2023 Category: Health Management Authors: John George Source Type: news