How does it feel to come face to face with your own heart?
Jennifer Sutton (pictured) had restrictive cardiomyopathy, a disease of the heart muscle where the walls of the heart chambers progressively stiffen. (Source: the Mail online | Health)
Source: the Mail online | Health - June 12, 2023 Category: Consumer Health News Source Type: news
Untangling the Physiology of Transthyretin Cardiac Amyloidosis Untangling the Physiology of Transthyretin Cardiac Amyloidosis
A new study investigates echocardiographic phenotypes of transthyretin cardiac amyloidosis, the most common etiology of restrictive cardiomyopathy, identifying parameters predictive of survival.European Heart Journal (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - May 11, 2020 Category: Consumer Health News Tags: Cardiology Journal Article Source Type: news
What Is the Most Common Type of Cardiomyopathy?
Discussion
Barth syndrome is characterized by a dilated cardiomyopathy, proximal skeletal muscle weakness, neutropenia and short stature that usually presents at birth or soon after. It is a rare X-linked recessive disease process caused by mutations in the TAZ gene. The TAZ gene codes for tafazzin which alters cardiolipin in mitochondria. Characteristic facies can be seen especially in infancy including a tall and broad forehead, prominent chin and full cheeks, larger ears, and deep-set eyes. Most patients present at birth or soon afterwards but some may not until later in life. Life expectancy is reduced with many childr...
Source: PediatricEducation.org - February 25, 2019 Category: Pediatrics Authors: pediatriceducationmin Tags: Uncategorized Source Type: news
Student has heart transplant after her tiredness became deadly
Charlotte Carney, from Northwich in Cheshire, was diagnosed with restrictive cardiomyopathy last year after spending years suffering from fatigue and sleeping for up to 20 hours a day. (Source: the Mail online | Health)
Source: the Mail online | Health - January 2, 2019 Category: Consumer Health News Source Type: news
James, 6, was saved by his mother's kidney
In 2013, James Lewis was diagnosed with incurable restrictive cardiomyopathy (RCM), and after a 11-month battle he also suffered kidney failure. His mother Kate donated her own kidney to save his life. (Source: the Mail online | Health)
Source: the Mail online | Health - February 13, 2017 Category: Consumer Health News Source Type: news
Three decades beat as one: 30 years of heart transplants
Tina Medina and her son Luke
Tina Medina was not a sickly child, yet she grew up knowing something was physically wrong.
She had difficulty keeping up with the other kids in her sixth-grade class and couldn’t run without becoming breathless. Local physicians near her home in Moriah, New York, shrugged it off as asthma — until Tina’s heart stopped twice during a routine appendectomy. “I was told I had a severe heart condition and needed to see a cardiologist right away,” she says.
At 15, Tina was diagnosed with restrictive cardiomyopathy, a rare type of cardiomyopathy that causes the heart muscle to become stiff,...
Source: Thrive, Children's Hospital Boston - June 13, 2016 Category: Pediatrics Authors: Emily Williams Tags: Diseases & Conditions Our Patients’ Stories Research and Innovation cardiac surgery cardiomyopathy congential heart defect Department of Cardiac Surgery Dr. Elizabeth Blume Dr. John Mayer ECMO Heart Center heart transplant Heart Source Type: news
Winchester boy James Lewis bounced back from the brink with heart transplant
James Lewis, six, from Winchester, Hants, has restrictive cardiomyopathy, and had a heart transplant in November 2014. (Source: the Mail online | Health)
Source: the Mail online | Health - May 10, 2016 Category: Consumer Health News Source Type: news
Use of left-ventricular assist devices on heart failure patients: Findings, treatment criteria released
Researchers are announcing results of a study on the effectiveness of left-ventricular assist devices (LVAD) in treating patients with a form of cardiomyopathy called restrictive cardiomyopathy (RCM). (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - July 29, 2015 Category: Science Source Type: news
Mayo Clinic LVAD Study Suggests Market Expansion
A recent Mayo Clinic study shows improved survival rates in patients with end-stage restrictive cardiomyopathy (RCM) who received left ventricular assist devices (LVADs). The potential to treat more heart failure patients could expand the market for LVADs, which currently are used in the treatment of other types of cardiomyopathy, either as a bridge to transplant (BTT), or as a destination therapy (DT). (Source: Medical Design Online News)
Source: Medical Design Online News - July 29, 2015 Category: Medical Equipment Source Type: news
Mayo Clinic releases findings and treatment criteria for use of left-ventricular assist devices on heart failure patients
ROCHESTER, Minn. — Mayo Clinic is announcing results of a study on the effectiveness of left-ventricular assist devices (LVAD) in treating patients with a form of cardiomyopathy called restrictive cardiomyopathy (RCM). The Mayo Clinic study, which is the largest study of its kind to date, demonstrates that LVAD devices are a viable and accessible option for treating [...] (Source: Mayo Clinic Research News)
Source: Mayo Clinic Research News - July 28, 2015 Category: Research Source Type: news
News for the EORP Cardiomyopathy and Myocarditis Registry
On behalf of the Cardiomyopathy Executive Committee of the EURObservational Research Programme (EORP), we are pleased to announce the launch of the Long-Term Cardiomyopathies and Myocarditis Registry and invite you to contact us in order to participate in this exciting endeavour. The registry is open to adult and paediatric cardiology units. Data will be collected on the following disorders: hypertrophic cardiomyopathy; dilated cardiomyopathy; arrhythmogenic right ventricular cardiomyopathy; restrictive cardiomyopathy; and clinically suspected myocarditis. (Source: ESC News and Press)
Source: ESC News and Press - July 1, 2014 Category: Cardiology Source Type: news
