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James, 6, was saved by his mother's kidney
In 2013, James Lewis was diagnosed with incurable restrictive cardiomyopathy (RCM), and after a 11-month battle he also suffered kidney failure. His mother Kate donated her own kidney to save his life. (Source: the Mail online | Health)
Source: the Mail online | Health - February 13, 2017 Category: Consumer Health News Source Type: news

Three decades beat as one: 30 years of heart transplants
Tina Medina and her son Luke Tina Medina was not a sickly child, yet she grew up knowing something was physically wrong. She had difficulty keeping up with the other kids in her sixth-grade class and couldn’t run without becoming breathless. Local physicians near her home in Moriah, New York, shrugged it off as asthma — until Tina’s heart stopped twice during a routine appendectomy. “I was told I had a severe heart condition and needed to see a cardiologist right away,” she says. At 15, Tina was diagnosed with restrictive cardiomyopathy, a rare type of cardiomyopathy that causes the heart...
Source: Thrive, Children's Hospital Boston - June 13, 2016 Category: Pediatrics Authors: Emily Williams Tags: Diseases & Conditions Our Patients’ Stories Research and Innovation cardiac surgery cardiomyopathy congential heart defect Department of Cardiac Surgery Dr. Elizabeth Blume Dr. John Mayer ECMO Heart Center heart transplant Heart Source Type: news

Winchester boy James Lewis bounced back from the brink with heart transplant
James Lewis, six, from Winchester, Hants, has restrictive cardiomyopathy, and had a heart transplant in November 2014. (Source: the Mail online | Health)
Source: the Mail online | Health - May 10, 2016 Category: Consumer Health News Source Type: news

Use of left-ventricular assist devices on heart failure patients: Findings, treatment criteria released
Researchers are announcing results of a study on the effectiveness of left-ventricular assist devices (LVAD) in treating patients with a form of cardiomyopathy called restrictive cardiomyopathy (RCM). (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - July 29, 2015 Category: Science Source Type: news

Mayo Clinic LVAD Study Suggests Market Expansion
A recent Mayo Clinic study shows improved survival rates in patients with end-stage restrictive cardiomyopathy (RCM) who received left ventricular assist devices (LVADs). The potential to treat more heart failure patients could expand the market for LVADs, which currently are used in the treatment of other types of cardiomyopathy, either as a bridge to transplant (BTT), or as a destination therapy (DT). (Source: Medical Design Online News)
Source: Medical Design Online News - July 29, 2015 Category: Medical Equipment Source Type: news

Mayo Clinic releases findings and treatment criteria for use of left-ventricular assist devices on heart failure patients
ROCHESTER, Minn. — Mayo Clinic is announcing results of a study on the effectiveness of left-ventricular assist devices (LVAD) in treating patients with a form of cardiomyopathy called restrictive cardiomyopathy (RCM). The Mayo Clinic study, which is the largest study of its kind to date, demonstrates that LVAD devices are a viable and accessible option for treating [...] (Source: Mayo Clinic Research News)
Source: Mayo Clinic Research News - July 28, 2015 Category: Research Source Type: news

News for the EORP Cardiomyopathy and Myocarditis Registry
On behalf of the Cardiomyopathy Executive Committee of the EURObservational Research Programme (EORP), we are pleased to announce the launch of the Long-Term Cardiomyopathies and Myocarditis Registry and invite you to contact us in order to participate in this exciting endeavour. The registry is open to adult and paediatric cardiology units. Data will be collected on the following disorders: hypertrophic cardiomyopathy; dilated cardiomyopathy; arrhythmogenic right ventricular cardiomyopathy; restrictive cardiomyopathy; and clinically suspected myocarditis. (Source: ESC News and Press)
Source: ESC News and Press - July 1, 2014 Category: Cardiology Source Type: news